Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could This Be A Problem

wowzer

Recommended Posts

wowzer Community Regular
wowzer
Posted

I've been trying to figure out what I've been missing. I feel that I'm somehow getting gluten. I checked the gluten free drug list again. I had overlooked a couple. One is my estodiol. I asked the pharmacist and she contacted the company and they can't guarantee that it's gluten free. I know it isn't a drug to just stop cold turkey. I just found out tonight, so I will check with my doctor. The name brand drug was on the gluten free list (estrace). The other was a steroid cream that works great for itching, but they can't guarantee it being gluten free either. The pharmacist felt that it shouldn't be a problem because I don't ingest it. I use it for the itchy rash, so I'm not sure that it couldn't be a problem. I just want to get this under control. I had so many benefits when I first went gluten free and now I can tell something isn't quite right.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


katecopsey Newbie
katecopsey
Posted
I've been trying to figure out what I've been missing. I feel that I'm somehow getting gluten. I checked the gluten free drug list again. I had overlooked a couple. One is my estodiol. I asked the pharmacist and she contacted the company and they can't guarantee that it's gluten free. I know it isn't a drug to just stop cold turkey. I just found out tonight, so I will check with my doctor. The name brand drug was on the gluten free list (estrace). The other was a steroid cream that works great for itching, but they can't guarantee it being gluten free either. The pharmacist felt that it shouldn't be a problem because I don't ingest it. I use it for the itchy rash, so I'm not sure that it couldn't be a problem. I just want to get this under control. I had so many benefits when I first went gluten free and now I can tell something isn't quite right.

i am not able to comment on the medical stuff itself, but do not blame everything on gluten. Perhaps the feeling is a reaction to the medical treatment itself. They used to say in England that wine was gluten free but hangovers caused very similar reactions to gluten - so don't blame your hangover on gluten! Talk to the doctor. From what I have read gluten cannot penetrate the skin, but I would avoid topicals that contain gluten anyway if there is a substitute. My take on this is that your body is sick, which is why you are taking medicine, so don't give it doubtful stuff if you can avoid it.

psawyer Proficient
psawyer
Posted

More and more companies are saying, "We can't guarantee it's gluten-free." I have put the key word in bold type. What this typically means is that at least one of the ingredients is obtained from an outside source, and, for legal reasons, they will not accept responsibilty for possible contamination due to an error by a party beyond their control.

"First thing we do, is kill all the lawyers." Shakespeare, Henry VI, Part II

GeoffCJ Enthusiast
GeoffCJ
Posted
"First thing we do, is kill all the lawyers." Shakespeare, Henry VI, Part II

Everyone love's that quote, but if you read it in context, it's in favor of lawyers. In the play, there is a plot to create a revolution. To do so, the perpetuator "Dick The Butcher" suggests killing the lawyers. This act is designed to bring chaos, underscoring the idea that lawyers were seen at that time to be protectors of society and free thought.

See : Open Original Shared Link

"Ironically, the rallying cry of the lawyer bashers has become Shakespeare's quote from Henry VI: "THE FIRST THING WE DO, LET'S KILL ALL THE LAWYERS."

Those who use this phrase pejoratively against lawyers are as miserably misguided about their Shakespeare as they are about the judicial system which they disdain so freely.

Even a cursory reading of the context in which the lawyer killing statement is made in King Henry VI, Part II, (Act IV), Scene 2, reveals that Shakespeare was paying great and deserved homage to our venerable profession as the front line defenders of democracy.

The accolade is spoken by Dick the Butcher, a follower of anarchist Jack Cade, whom Shakespeare depicts as "the head of an army of rabble and a demagogue pandering to the ignorant," who sought to overthrow the government. Shakespeare's acknowledgment that the first thing any potential tyrant must do to eliminate freedom is to "kill all the lawyers" is, indeed, a classic and well-deserved compliment to our distinguished profession."

Not a lawyer, but a shakespeare fan.

Geoff

tarnalberry Community Regular
tarnalberry
Posted

Estrace is fine. I use it regularly.

Hormone fluctuations can cause intestinal changes, however, so if this is a regular occurrence, perhaps on a monthly schedule, it could be that. (If the use of the Estrace is new, it could also be that.)

wowzer Community Regular
wowzer
Posted
  • Author

I know that Estrace is gluten free. I am on the generic version estrodiol and when the pharmasist called they couldn't guarantee that it was gluten free. My dose was changed, I wonder if there is a difference in the formulation. I am trying to wean off of it. My doctor suggested taking until like June to do it. I've went 2 days now without taking it. I do have the estrace cream I could use instead. I have had itching in the vaginal area, so haven't wanted to use it.

tarnalberry Community Regular
tarnalberry
Posted
I know that Estrace is gluten free. I am on the generic version estrodiol and when the pharmasist called they couldn't guarantee that it was gluten free. My dose was changed, I wonder if there is a difference in the formulation. I am trying to wean off of it. My doctor suggested taking until like June to do it. I've went 2 days now without taking it. I do have the estrace cream I could use instead. I have had itching in the vaginal area, so haven't wanted to use it.

Topical application of estrogen should have no affect on a vaginal yeast infection (I've asked this question a number of time ;) ). If the itching is caused by dry skin, however, the estrogen might help.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wowzer Community Regular
wowzer
Posted
  • Author

I was originally prescribed the estrogen cream for that reason. I had 2 biopsies in that area. One came back eczema and the other spongiotic dermatitis. I really wonder if it was DH. Both are a blistery rash. The gluten free diet is a possible answer to any of those. I finally went gluten free the beginning of the year. I have a vast improvement, but still have a slight itch. I really thought this whole mess started as a yeast infection. I bought an over the counter yeast treatment and did find out later it could have contained gluten. I am beginning to think I never had a yeast infection. She even did a culture which came back negative. All I know is I never want to itch like that again. I did have blisters in the creases of my arms and underarms at the same time. I'm just trying to make sure I'm not missing anything. I haven't been officially diagnosed with DH. I suppose it is possible that even though I'm not ingesting gluten, it still is in my skin from what I've read on here. I guess because I had so much relief the first few weeks, I was hoping it would keep getting better. It's been over a year since I first started with this.

gfp Enthusiast
gfp
Posted
Everyone love's that quote, but if you read it in context, it's in favor of lawyers. In the play, there is a plot to create a revolution. To do so, the perpetuator "Dick The Butcher" suggests killing the lawyers. This act is designed to bring chaos, underscoring the idea that lawyers were seen at that time to be protectors of society and free thought.

See : Open Original Shared Link

"Ironically, the rallying cry of the lawyer bashers has become Shakespeare's quote from Henry VI: "THE FIRST THING WE DO, LET'S KILL ALL THE LAWYERS."

Those who use this phrase pejoratively against lawyers are as miserably misguided about their Shakespeare as they are about the judicial system which they disdain so freely.

Even a cursory reading of the context in which the lawyer killing statement is made in King Henry VI, Part II, (Act IV), Scene 2, reveals that Shakespeare was paying great and deserved homage to our venerable profession as the front line defenders of democracy.

The accolade is spoken by Dick the Butcher, a follower of anarchist Jack Cade, whom Shakespeare depicts as "the head of an army of rabble and a demagogue pandering to the ignorant," who sought to overthrow the government. Shakespeare's acknowledgment that the first thing any potential tyrant must do to eliminate freedom is to "kill all the lawyers" is, indeed, a classic and well-deserved compliment to our distinguished profession."

Not a lawyer, but a shakespeare fan.

Geoff

LOL.... Thanks Geoff...(I like dicovering stuff like that and I know something new and interesting today) and lets no forget who wrote your consitution... (both versions ;) )

As an outsider observation, the problem with lawyers in the USA is the justice system though... I doubt you will agree but IMHO lawyers are just allowed by the justice system to make far too much money if that is what they want... and its a rare person that decides to be a lawyer and isn't concerned about money. Its not that lawyers are bad... its just that lawyers wrote the system and its rules and just happen to be the most qualified in how to exploit it! I don't have any better suggestion though... so it just looks like Lawyers need a thick skin :D

The funny thing is in Roman times actors(esses) were regarded on the same level as prostitutes.(legally).. quite a few of them were celebrated and made a decent wage for a non equistrian class... and even some of the equistrian staff were entranced by the "candlelight" (for want of limelight) yet today ....!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,666
    • Most Online (within 30 mins)
      7,748
    bailey1023
    Newest Member
    bailey1023
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
    • Xravith
      Taking Probiotics but Still Getting Sick After Gluten – Advice?

      By Xravith · Posted

      Thank you for the advice. I’ve actually never checked for nutritional deficiencies, but for as long as I can remember, I’ve always taken vitamin and mineral supplements — otherwise my symptoms get worse. This week I stopped eating gluten to confirm whether my symptoms are really caused by it. Starting next week, I’ll reintroduce gluten — it’s sad to go back to how I was before — but at least I’ll be able to take the necessary tests properly. I think the diagnostic process will be long, but at least I’m happy that I finally decided to address this doubt I’ve had for years.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.