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Been Dealing With This For Almost 6 Years

kittykuddle

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kittykuddle Newbie
kittykuddle
Posted

Hello everyone! I am new here and thought I would share my story as I was shocked to actually find some other people who share the same symptoms as i do. So I guess I am not crazy! LOL Well it all started when I was pregnant with my daughter 5 1/2 years ago. I found that while I was pregnant, my body would go up and down in weight daily (about 10 to 12 pounds daily). The doctors were worried about the baby because of It, even though my child was fine. After I delievered my daughter I was hoping these weird weight fluctuations would stop,but of course they didn't. Some days I can go up 12 pounds! I have good days, where I can actually fit into my clothes. But more often then not I have bad days where my clothes don't fit at all. One day I can fit into my clothes and the next day I CANT! It Is sooo frustrating! I have measured my thighs and found one day from the next there can be a 1 1/2 inch diffrence! I have been to the doctors about this and have been laughed at! I have went to specialists and been told that It's all in my head!! I was told It Is not possible to gain that much weight daily!! My bloodwork has come back time and time again perfect. So I am not sure what Is wrong with me. I talked to a Natural doctor and was told that my symptoms sound like celiac disease, so thats why I am here.She also told me I might have Yeast Overgrowth (or something like that). Do you guys think with my symptoms and problems that Celiac disease might be what I have? Please let me know as I am tired of dealing with It! Thanks!

Michelle

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KJ11DU Newbie
KJ11DU
Posted

hey michelle! don't worry you're not alone. i too can gain up too about 8lbs a day. i haven't measured anywhere other than my stomach due to the fact that that is where i "swell" become distended after i eat anything. this has been going on everyday for over 3 years. i too have been told all of this is in my head. right! i have just recently found a GI doc. that is thinking i may have celiac disease and we're in the process of running test. after all i've been through i will welcome a gluten free diet with open arms if that is what it takes for my symptoms to go away.

Kerry

kittykuddle Newbie
kittykuddle
Posted
  • Author
hey michelle! don't worry you're not alone. i too can gain up too about 8lbs a day. i haven't measured anywhere other than my stomach due to the fact that that is where i "swell" become distended after i eat anything. this has been going on everyday for over 3 years. i too have been told all of this is in my head. right! i have just recently found a GI doc. that is thinking i may have celiac disease and we're in the process of running test. after all i've been through i will welcome a gluten free diet with open arms if that is what it takes for my symptoms to go away.

Kerry

Thanks for the reply! I hate having to deal with this daily. Yes my stomach swell's as well. People actually thought I was pregnant at times. Isn't It crap that doctors who we think we can trust will laugh In our faces and tell us "It's all In our heads" I have been following a gluten free diet for about 2 weeks now and I feel a little better, but I still seem to swell up a little still. I guess I will have to give It more time to see what happens. I really think that this Is what I have. I know I have food Intolerances as I only feel bad when I eat. The weird thing Is, Is that I tend to swell up even after drinking water. I find that very weird. Thanks again kerry,

Michelle

zansu Rookie
zansu
Posted

i'm another. I was having 7-10 lbs of difference between morning and evening before I went gluten-free.

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      Guinness, can you drink it?

      By Rogol72 · Posted

      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
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      By Scott Adams · Posted

      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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