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Been Dealing With This For Almost 6 Years

kittykuddle

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kittykuddle Newbie
kittykuddle
Posted

Hello everyone! I am new here and thought I would share my story as I was shocked to actually find some other people who share the same symptoms as i do. So I guess I am not crazy! LOL Well it all started when I was pregnant with my daughter 5 1/2 years ago. I found that while I was pregnant, my body would go up and down in weight daily (about 10 to 12 pounds daily). The doctors were worried about the baby because of It, even though my child was fine. After I delievered my daughter I was hoping these weird weight fluctuations would stop,but of course they didn't. Some days I can go up 12 pounds! I have good days, where I can actually fit into my clothes. But more often then not I have bad days where my clothes don't fit at all. One day I can fit into my clothes and the next day I CANT! It Is sooo frustrating! I have measured my thighs and found one day from the next there can be a 1 1/2 inch diffrence! I have been to the doctors about this and have been laughed at! I have went to specialists and been told that It's all in my head!! I was told It Is not possible to gain that much weight daily!! My bloodwork has come back time and time again perfect. So I am not sure what Is wrong with me. I talked to a Natural doctor and was told that my symptoms sound like celiac disease, so thats why I am here.She also told me I might have Yeast Overgrowth (or something like that). Do you guys think with my symptoms and problems that Celiac disease might be what I have? Please let me know as I am tired of dealing with It! Thanks!

Michelle

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KJ11DU Newbie
KJ11DU
Posted

hey michelle! don't worry you're not alone. i too can gain up too about 8lbs a day. i haven't measured anywhere other than my stomach due to the fact that that is where i "swell" become distended after i eat anything. this has been going on everyday for over 3 years. i too have been told all of this is in my head. right! i have just recently found a GI doc. that is thinking i may have celiac disease and we're in the process of running test. after all i've been through i will welcome a gluten free diet with open arms if that is what it takes for my symptoms to go away.

Kerry

kittykuddle Newbie
kittykuddle
Posted
  • Author
hey michelle! don't worry you're not alone. i too can gain up too about 8lbs a day. i haven't measured anywhere other than my stomach due to the fact that that is where i "swell" become distended after i eat anything. this has been going on everyday for over 3 years. i too have been told all of this is in my head. right! i have just recently found a GI doc. that is thinking i may have celiac disease and we're in the process of running test. after all i've been through i will welcome a gluten free diet with open arms if that is what it takes for my symptoms to go away.

Kerry

Thanks for the reply! I hate having to deal with this daily. Yes my stomach swell's as well. People actually thought I was pregnant at times. Isn't It crap that doctors who we think we can trust will laugh In our faces and tell us "It's all In our heads" I have been following a gluten free diet for about 2 weeks now and I feel a little better, but I still seem to swell up a little still. I guess I will have to give It more time to see what happens. I really think that this Is what I have. I know I have food Intolerances as I only feel bad when I eat. The weird thing Is, Is that I tend to swell up even after drinking water. I find that very weird. Thanks again kerry,

Michelle

zansu Rookie
zansu
Posted

i'm another. I was having 7-10 lbs of difference between morning and evening before I went gluten-free.

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    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      I shop a fair bit with Azure Standard. I bought Teff flour there and like it. they have a lot of items on your list but probably no soy flour, at least not by that name. https://www.azurestandard.com/shop/product/food/flour/teff/brown/teff-flour-brown-unifine-gluten-free/11211?package=FL294 As mentioned in another answer, Palouse is a high quality brand for dry beans, peas and other stuff. I buy some foods on your list from Rani. I've been happy with their products. https://ranibrand.com/ Azure and Rani often use terms that skirt around explicit "gluten free". I've contacted both of them and gained some comfort but it's always hard to be certain. FWIW, my IgA antibody levels are very low now, (after including their foods in my diet) so it appears I am being successful at avoiding gluten. 
    • Aretaeus Cappadocia
      Finding gluten free ingredients

      By Aretaeus Cappadocia · Posted

      fwiw, I add nutritional yeast to some of my recipes. since going gluten free I eat almost no processed foods but I imagine you could sprinkle yeast on top.
    • knitty kitty
      Severe severe mouth pain

      By knitty kitty · Posted

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    • cristiana
      Severe severe mouth pain

      By cristiana · Posted

      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
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      By trents · Posted

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