Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blisters On Lips..doing Gluten Challenge..


MinxyMandy

Recommended Posts

MinxyMandy Apprentice

:(

Hello everyone..

My names mandy ..

After a long 14 month sof illness ..misery giving up my home etc..I THINK and hope I am on the right track..

I am doing challenge ready for biopsy as been so ill it all started after I had surgery and loads of antibiotics ..oh and also got made redundant after reporting sexual harrassement..so could be any one of these things that have triggered it..

My main symptoms are gi symptoms when it all started 14 months ago I had massive distention, constipation, diarreah, seizures, really bad deppression, anxiety, low self esteem, heart burn, pains in stomach, thick rash thing at base of my bum crack excuse my explanation!!!! I do suffer from herpes and thought it was that but I dont think it was now I am looking into this whole celiac thing..

Also, today my lip looks like I ve had btox and I have what I thought was a cold sore but does anyone get lots of little blisters on thier lips? I have 4 on my lip and one on my skin below my lip and you dont normally get them there do you??

May be its the stress of the challenge as I feel so ruff all the time and I am going out of my mind stuck in here as never feel up to go anywhere and I ve been signed off work til test got another 2 1/2 weeks yet ..

Oh well at least the sun is shinning ahey ...hope your all getting better..better..or recovering well

Take care everyone

:)Mand

and I have blisters

  • 2 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jesse Newbie

just spreading some thoughts to people:

anyway, anyone who sees this should attempt a "no table salt or iodized salty food diet" for a few weeks. if you have the same lip/mouth area dh/acne then its worth doing. i have also changed my soap from the dial gel which you need the sponge thingy to a bar of white ivory.

if you do this lmk how it works out for you, also kosher salt is okay, so if you do and want to go out to eat bring a little w/ you.

only the best,

jdog

confused Community Regular
just spreading some thoughts to people:

anyway, anyone who sees this should attempt a "no table salt or iodized salty food diet" for a few weeks. if you have the same lip/mouth area dh/acne then its worth doing. i have also changed my soap from the dial gel which you need the sponge thingy to a bar of white ivory.

if you do this lmk how it works out for you, also kosher salt is okay, so if you do and want to go out to eat bring a little w/ you.

only the best,

jdog

thanks about that tip about no salt. I have Dh and my son gets the mouth and lip blisters. So I hope this will make it better for both of us.

I only use dove, is that close enough to white ivory, or shouild i change to that.

paula

jesse Newbie

not sure about dove, but i was told that as long as its not colored soap then it should be okay and that is what im going by. not exactly the most scientific approach, but it seems to be fine.

anyways, w/ the salt though i do recommend that you avoid iodized salt and anything salty for a few weeks and see how it goes. it can difficult, but just eat more fruit and you'll be fine!

lmk how it goes,

jdog

ravenwoodglass Mentor
thanks about that tip about no salt. I have Dh and my son gets the mouth and lip blisters. So I hope this will make it better for both of us.

I only use dove, is that close enough to white ivory, or shouild i change to that.

paula

Stick with your Dove. They are safe. It is not the coloring in the soaps and shampoos and such we need to be careful of as 'Vitamin E', may be from wheat or soy, oats, wheat germ oil, and some of the vehicles for fragrances. Most products have a phone number or web site the safest thing to do with everything is to call the number. As a bonus many times the company will offer to send coupons or samples. Makes it doubly worth the call.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Larzipan's topic in Related Issues & Disorders
      41

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - Wheatwacked commented on Scott Adams's article in Latest Research
      6

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    3. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      41

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    4. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    5. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,381
    • Most Online (within 30 mins)
      7,748

    Becky Coleman
    Newest Member
    Becky Coleman
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I'd be very cautious about accepting these claims without robust evidence. The hypothesis requires a chain of biologically unlikely events: Gluten/gliadin survives the cow's rumen and entire digestive system intact. It is then absorbed whole into the cow's bloodstream. It bypasses the cow's immune system and liver. It is then secreted, still intact and immunogenic, into the milk. The cow's digestive system is designed to break down proteins, not transfer them whole into milk. This is not a recognized pathway in veterinary science. The provided backup shifts from cow's milk to human breastmilk, which is a classic bait-and-switch. While the transfer of food proteins in human breastmilk is a valid area of study, it doesn't validate the initial claim about commercial dairy. The use of a Dr. Osborne video is a major red flag. His entire platform is based on the idea that all grains are toxic, a view that far exceeds the established science on Celiac Disease and non-celiac gluten sensitivity. Extraordinary claims require extraordinary evidence, and a YouTube video from a known ideological source is not that evidence."  
    • Wheatwacked
      Some backup to my statement about gluten and milk. Some background.  When my son was born in 1976 he was colicky from the beginning.  When he transitioned to formula it got really bad.  That's when we found the only pediactric gastroenterologist (in a population of 6 million that dealt with Celiac Disease (and he only had 14 patients with celiac disease), who dianosed by biopsy and started him on Nutramegen.  Recovery was quick. The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.