Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Always Something


Katie618

Recommended Posts

Katie618 Apprentice

---


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



sharmom Newbie

I am sorry to hear that. I hope things start going better for you. I do have eczema and DH. I have been on a strict gluten free diet for only six weeks, but I do find that the more stress that I deal with the more I break out. In my research of DH/celiac disease even with the medication and a strict gluten free diet, you could still get out breaks for a couple years.

Hope this helps!!

sharmom Newbie

I am sorry to hear that. I hope things start going better for you. I do have eczema and DH. I have been on a strict gluten free diet for only six weeks, but I do find that the more stress that I deal with the more I break out. In my research of DH/celiac disease even with the medication and a strict gluten free diet, you could still get out breaks for a couple years.

Hope this helps!!

mf in CA Newbie

I feel bad for you, Katie, and everyone with DH and eczema. I didn't have eczema until recently. My DH was just about cleared up when I suddenly developed large patches of eczema! WTF? I am not familiar with eczema so have been trying various things to treat it. I did see a doctor to find out if it was infected with herpes or staff or whatever... luckily that was negative but it is a stubborn case of eczema (as if DH isn't enough).

I think the herpes virus can just stay in your body or bloodstream and then create outbreaks when you're stressed or sick. Did your doctor say anything about this?

I understand about losing hope... I was there very recently, but we just can't. I'm trying to be really healthy and eat lots of veggies and fruits, as well as keeping myself and my skin really hydrated. I noticed that sugar and alcohol (even just a little red wine) made it more inflamed the next day.

At its worst I was covering it with aloe vera and wrapping it with bandages at night to keep me from scratching. I didn't even let my husband see my arms for a couple of weeks, which made me really depressed and cranky. It is slowly healing now, I'm hoping it heals soon as it's depressing to stay all covered up in the spring sunshine!

Let us know how your healing comes along, and what seems to be working for you.

jesse Newbie

katie,

im posting this because it may be worth your while:

anyway, anyone who sees this should attempt a "no table salt or iodized salty food diet" for a few weeks. if you have the same lip/mouth area dh/acne then its worth doing. i have also changed my soap from the dial gel which you need the sponge thingy to a bar of white ivory.

give this a go, lmk how it works for you; interested to hear some feedback. also, kosher salt is good, so keep some of that w/ you if you decide to do this and want to go out to eat.

only the best,

jdog

Katie618 Apprentice

----

Guest JennyK
thanks for all your replies everyone... what happened after i originally posted this became a disaster...

as i said i got eczema herpeticum march2, went on some antivirals, and it came back march23rd. the dr re dxed me through an email picture ( i knew i had it again) and he warned me about it going into my eyes- rare but possible. i was home for spring break, went back to school on sunday, my eye started to swell on monday- monday night after class it was practically shut, needless to say, my mom drove up to my college tuesday morning to come get me. saw an eye dr up around school, she called Yale (where my DH dr is, they wouldnt help) so i went to my primary (all the way back in my home town) and she admitted me into the hospital through the ER.

was in the hospital for 6 days, my eye opened after 4. my hospital stay was awful, i was in isolation, was stuck in the ER as an admitted patient (i was waiting for a private room cause i needed to be isolated) so the ER nurses didnt help me.

on top of the eczema herpeticum they found staph and strep bacterial infections.

i can finally go back to school tomorrow.

i'm a senior in college- 5 weeks left, so the stress of school/internship/work got to me and i guess popped this virus out. i need to manage my stress better- i'm awful at it.

as for the salt-- i absolutely stay away from it, i have since i was dxed with DH in Sept 06

i'm started to look better and feel better from this virus. i just have my fingers crossed it doesnt come back.

thanks for all your support and suggestions :)

Hi Katie,

I started getting eczema on my face last fall. Sticking to a gluten free and dairy free diet helps but calendula gel (called Califlora by Boericke & Tafel) really helps with the symptoms of eczema. My sister mentioned she gets eczema around her eyes when she's really stressed out or when she gets a bad cold, and she said the itching is unbearable. I told her about this gel, she went out and bought it, and she said it helped relieve the itching and was very soothing. This particular brand is sold in health food stores like Whole Foods.

Sorry to hear you have to go through this right before finals. Good luck to you during your last few weeks of school.

Jenny


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to The Logician's topic in Related Issues & Disorders
      7

      Gluten Sensitivity

    2. - RMJ replied to Alibu's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Latent celiac, need to go gluten free, advice on kitchen "reset?"

    3. - The Logician replied to The Logician's topic in Related Issues & Disorders
      7

      Gluten Sensitivity

    4. - trents replied to The Logician's topic in Related Issues & Disorders
      7

      Gluten Sensitivity

    5. - The Logician replied to The Logician's topic in Related Issues & Disorders
      7

      Gluten Sensitivity


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,991
    • Most Online (within 30 mins)
      7,748

    Jubaroo
    Newest Member
    Jubaroo
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I would say two things and then I'm done. Many celiacs have been misdiagnosed for years with IBS. Testing for celiac disease requires regular and significant consumption of gluten for weeks/months in order to be valid.
    • RMJ
      Can the rest of your household eat the food with gluten instead of getting rid of it? Can you create one shelf, or partial shelf, for your new food in the pantry, in the fridge and in the cabinets as a start? My husband is not gluten free so we each have a cabinet, and separate shelves in the fridge. If we have to share space the gluten free foods go on the upper shelves so crumbs with gluten can’t fall onto them. Good luck!
    • The Logician
      Thanks for the advice, if my sensitivity comes back i’ll do that but I am 74, in good health for my age and probably have been sensitive to gluten for over 30 years the beginning of which I didn’t even know or suspect It was gluten. I’m seen by my doctor every three months with fasting labs, he knows I avoid gluten and has never suggested I should be concerned. It is quite possible a doctor did those tests on me 30 years ago, I just don’t remember, if they did and they were negative that’s why I wouldn’t remember. If you are interested I’ll keep you posted, but from what i’ve read there is no cure for genetic celiac disease and right now I’ve never felt worse than diarrhea eating wheat or better than I do now eating wheat. If there is no cure I doubt my episode with an antibiotic is the cure which means I don’t have celiac. This antibiotic may be a cure for sensitivity however….i hope.
    • trents
      Diarrhea is a classic symptom of celiac disease and may be the only symptom many people experience until damage to the small bowel lining becomes severe enough to spinoff other health issues. There are many with what we call "silent" celiac disease whose symptoms are so minor or occasional like yours that they blow them off. The only way to distinguish between celiac disease and NCGS (Non Celiac Gluten Sensitivity) is to get tested. I strongly recommend that you request your doctor to run these two blood antibody tests: total IGA and tTG-IGA. The antibiotic seems to have put you into some kind of remission at the present time but that may not last.
    • The Logician
      Not that I can remember but my reaction has never been more than diarrhea and I probably ate a lot of wheat products for years not knowing I was sensitive to it. Dr. never tested me because he attributed it to IBS. 
×
×
  • Create New...