Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rash? Is It Dh?

janelyb

Recommended Posts

janelyb Enthusiast
janelyb
Posted

Don't worry we have an appoitment today. Anyways here is a picture of a rash that has been on my son for a few weeks now, it doesn't seem to be clearing and for a while there it seemed like it was spreading. I tried to look up online what a dh rash looks like and I see some really horrific pictures.

The rash only started when we were giving huge amounts of wheat/gluten...more than normal amounts to see if that would show up on the test but it didn't.

here is the link to the pic

http://i15.photobucket.com/albums/a381/ajb...i/DSCN2360a.webp

http://i15.photobucket.com/albums/a381/ajb...i/DSCN2360b.webp

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kibbie Contributor
Kibbie
Posted
Don't worry we have an appoitment today. Anyways here is a picture of a rash that has been on my son for a few weeks now, it doesn't seem to be clearing and for a while there it seemed like it was spreading. I tried to look up online what a dh rash looks like and I see some really horrific pictures.

The rash only started when we were giving huge amounts of wheat/gluten...more than normal amounts to see if that would show up on the test but it didn't.

here is the link to the pic

http://i15.photobucket.com/albums/a381/ajb...i/DSCN2360a.webp

http://i15.photobucket.com/albums/a381/ajb...i/DSCN2360b.webp

Is it itching like crazy??? If yes I would suspect DH if not it may be a viral rash or a karatosis of some sort.

FeedIndy Contributor
FeedIndy
Posted

I'm definitely no expert on DH, but it looks a lot like the rash my DD got when she snuck a box of Girl Scout cookies. (Ugh!) I cropped up on her arm in just one place, lasted a couple weeks and then disappeared altogether until a month later when she cheated again. (The entire house is now gluten free except a few things in a garage freezer for dh to take to work.)

Regardless of what it is called, I'd say it is pretty clearly related to the gluten. If it is DH I had read that iodine is needed for the reaction so we cut out DD's salt intake for a couple weeks until it cleared.

janelyb Enthusiast
janelyb
Posted
  • Author

yes he's been itching it like crazy. We are going to the pedi in a couple of hours we shall see what he thinks of it. I'll update everyone this evening (west coast time zone here)

janelyb Enthusiast
janelyb
Posted
  • Author

so the pedi wasn't sure if it was a coincedence that he got the rash while on high doses of wheat but was kinda leading toward it being a rash related to gluten...he said it was hard to say...he didn't speifically say it was DH but I am taking/treating as tho it is.

All he told us to do is to use zinc on it??? Is this true???? Well I didn't want to say where the rash was to all of you but it is on the lowerbackside.

dally099 Contributor
dally099
Posted

hi, i get something that looks like that on the tops of my thighs above my knees and on my back where your ribs are, dosnt itch all the time but when it does look out, was never sure what DH looks like hard to find pics on the net of it.

;)

Suzie-GFfamily Apprentice
Suzie-GFfamily
Posted

Those pictures look just like my daughter's rash (she is 17 months).

We found out about our family having celiac disease last spring- just a month or two before she started solids. We decided to keep gluten out of her diet- so she has never been fed any food with gluten (well maybe she was cc'ed a couple of times before her big brother and big sister went gluten-free and she did touch some play dough at a local children's centre once).

I can't remember when the rash started- but I remember that she had it before I went gluten-free. So I thought that it might be gluten related and perhaps she was getting gluten through my breastmilk. I hoped the rash would go away when I went gluten-free (she was 8 months old when I changed my diet).

Anyway- it hasn't gone away. It has spread. It was initially on her lower legs - just above her ankles and on her lower arms- just above her wrists. By the end of the summer/early fall it had spread up her legs and up her arms. She has never scratched it - so it is probably not itchy. She also has a rash on her cheeks (the ones on her face :rolleyes: ). She doesn't have the rash on her knees or on her elbows.

I don't know what is causing the rash. My most recent thought is that it could be the baby cleanser/shampoo that I use when she has a bath. I've been using Aveeno.... I just didn't think that it would be a problem, but there could definitely be some gluten contamination in the oats. So I'm planning to switch to a gluten-free baby cleanser and baby shampoo.

However, I'm wondering if I should have her seen by a dermatologist first? Would it be worthwhile have a biopsy done? Could it be DH if it is not itchy?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Christine E Newbie
Christine E
Posted

It looks exactly like a rash my 3-year old had, across the top of his shoulders and behind his knees. It didn't appear to itch. Thanks so much for posting the picture. I described it to his nutritionist, (at Uof Chicago Celiac Program), and she said it probably wasn't related to Celiac since it didn't itch. BUT, I've never seen a rash like it before. He also has red cheeks and chin. The pediatritian said it is Keratosis?? a type of skin?(rough). Anyway, it does take a few weeks to go away. The stuff the ped gave me for his face he wiped off b/c he said it hurt. I try to put lotion on when he's sleeping, but I don't know if that helps. From reading posts, it seems anything can be related to celiac, but it's helpful to hear other parents/kids have experienced the same thing. I'm starting to wonder if my 6-year old, who tested negative, may be less moody on a gluten-free diet!

  • 3 weeks later...
April in KC Apprentice
April in KC
Posted
I've been using Aveeno.... I just didn't think that it would be a problem, but there could definitely be some gluten contamination in the oats. So I'm planning to switch to a gluten-free baby cleanser and baby shampoo.

However, I'm wondering if I should have her seen by a dermatologist first? Would it be worthwhile have a biopsy done? Could it be DH if it is not itchy?

Suzie, did you make the switch to gluten-free bath products? Articles I have read say that people with DH _ARE_ sensitive to gluten in skin products...so removing the Aveeno and reading other products carefully is a good idea. Might scrub the tub, too.

Have you checked out California Baby products? They are gluten-free / nut free / milk free, etc., and very cute. You can get them on amazon .com or health food stores...or they have their own website.

April

janelyb Enthusiast
janelyb
Posted
  • Author

Well our pedi keeps saying oh it's just a really bad diaper rash....so far no cream helps and it actually spread up on his lower back. It is extremely itchy. I am so wondering if it is a reaction to dairy or maybe corn???? Anywho we have an appt this wednesday with GI and I want to get her take on it, and in 1 week we have an appt for skin testing for allergies.

It looks exactly like a rash my 3-year old had, across the top of his shoulders and behind his knees. It didn't appear to itch. Thanks so much for posting the picture. I described it to his nutritionist, (at Uof Chicago Celiac Program), and she said it probably wasn't related to Celiac since it didn't itch. BUT, I've never seen a rash like it before. He also has red cheeks and chin. The pediatritian said it is Keratosis?? a type of skin?(rough). Anyway, it does take a few weeks to go away. The stuff the ped gave me for his face he wiped off b/c he said it hurt. I try to put lotion on when he's sleeping, but I don't know if that helps. From reading posts, it seems anything can be related to celiac, but it's helpful to hear other parents/kids have experienced the same thing. I'm starting to wonder if my 6-year old, who tested negative, may be less moody on a gluten-free diet!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. marlene333
      - marlene333 replied to Grace Good's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Bee balm lipbalm not gluten free

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    2. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      jmartes, Thank you for sharing more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is...
    3. Scott Adams
      - Scott Adams replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    4. catsrlife
      - catsrlife replied to catsrlife's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Patiently Waiting to See Results

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady...
    5. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,261
    • Most Online (within 30 mins)
      7,748
    Pbaentine
    Newest Member
    Pbaentine
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • marlene333
      Bee balm lipbalm not gluten free

      By marlene333 · Posted

      To play it safe, use Vasoline Lip Therapy. No questions as to it containing gluten.
    • Mari
      Related issues

      By Mari · Posted

      jmartes, Thank you for sharing  more information with us. Most of us Celiacs whose problems do not clear up with in a few years have to decide what to do next. We can keep seeing DR.s and hope that we will get some  medication or advice that will improve our health. Or we can go looking for other ways to improve our health. Usually Celiac Disease is not a killer disease, it is a disabling disease as  you have found out. You have time to find some ways to help you recover. Stay on your gluten-free diet and be more careful in avoiding cross contamination . KnittyKitty  and others here can give you advice about avoiding some foods that can give you the gluten auto immune reaction and advice about vitamins and supplement that help celiacs. You may need to take higher doses of Vit. B12  and D3.  About 20 years before a Dr. suggested I might have Celiac disease I had health problems that all other Dr said they could not identify or treat. I was very opposed to alternative providers and treatments. So many people were getting help from a local healer I decided to try that out. It was a little helpful but then, because I had a good education in medical laboraties she gave me a book  to read and what did I think. With great skeptism I started reading and before I was half way through it I began using the methods outlined in the book. Using those herbs and supplements I went from hardly able to work to being able to work almost fulltime. I still use that program. But because I had undiagnosed celiac disease by 10 years later some  of my problems returned and I started to loose weight.    So how does a person find a program that will benefit them? Among the programs you can find online there are many that are snake oil scams and some that will be beneficial. by asking around, as I did. Is there an ND in your area? Do they reccomend that person? If you would like to read about the program I use go to www.drclark.net   
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      It's unfortunate that they won't work with you on this, but in the end sometimes we have to take charge of our own health--which is exactly what happened to me. I did finally get the tests done, but only after years of going down various rabbit holes and suffering. Just quitting gluten may be the best path for you at this point.
    • catsrlife
      Patiently Waiting to See Results

      By catsrlife · Posted

      My doctor didn't take the time to listen to anything. I don't even think she knows what it means. She is more concerned about my blood pressure that is caused by her presence than anything else and just wants to push pills at me. The so-called dermatologist wouldn't do a skin test. she prescribed all of these silly antihistamine skin meds. This lady didn't even know what she was talking about and said "they never turn out as celiac, they usually just say it's dermatitis so here's your meds," just like my regular quack. I'm trying to change insurance companies at the moment and that has been a battle because of red tape, wrong turns, and workers having wrong phone numbers. What a joke! The allergy blood days say I have a wheat allergy of .31. Hopefully it's just that and until I find a decent doctor and dermatologist, I'll just lay off the wheat anyway, since it gives me asthma, high blood sugar, and joint pain. So frustrated at this point. The rash on my back of arms/elbows is mostly gone. Both calves and chest have started up. smh. It comes and goes. It fades faster now, though, although my forearms still produce one or two bumps on each side. The itching has calmed down a lot except for the bump area. I have dry skin to begin with so anything affecting it just makes it crazy. i'm never going to eat wheat again. I don't care if they need it to produce results or if it is just an intolerance, allergy, or celiac. It gives me hell.
    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.