Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rash? Is It Dh?


janelyb

Recommended Posts

janelyb Enthusiast

Don't worry we have an appoitment today. Anyways here is a picture of a rash that has been on my son for a few weeks now, it doesn't seem to be clearing and for a while there it seemed like it was spreading. I tried to look up online what a dh rash looks like and I see some really horrific pictures.

The rash only started when we were giving huge amounts of wheat/gluten...more than normal amounts to see if that would show up on the test but it didn't.

here is the link to the pic

http://i15.photobucket.com/albums/a381/ajb...i/DSCN2360a.webp

http://i15.photobucket.com/albums/a381/ajb...i/DSCN2360b.webp


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kibbie Contributor
Don't worry we have an appoitment today. Anyways here is a picture of a rash that has been on my son for a few weeks now, it doesn't seem to be clearing and for a while there it seemed like it was spreading. I tried to look up online what a dh rash looks like and I see some really horrific pictures.

The rash only started when we were giving huge amounts of wheat/gluten...more than normal amounts to see if that would show up on the test but it didn't.

here is the link to the pic

http://i15.photobucket.com/albums/a381/ajb...i/DSCN2360a.webp

http://i15.photobucket.com/albums/a381/ajb...i/DSCN2360b.webp

Is it itching like crazy??? If yes I would suspect DH if not it may be a viral rash or a karatosis of some sort.

FeedIndy Contributor

I'm definitely no expert on DH, but it looks a lot like the rash my DD got when she snuck a box of Girl Scout cookies. (Ugh!) I cropped up on her arm in just one place, lasted a couple weeks and then disappeared altogether until a month later when she cheated again. (The entire house is now gluten free except a few things in a garage freezer for dh to take to work.)

Regardless of what it is called, I'd say it is pretty clearly related to the gluten. If it is DH I had read that iodine is needed for the reaction so we cut out DD's salt intake for a couple weeks until it cleared.

janelyb Enthusiast

yes he's been itching it like crazy. We are going to the pedi in a couple of hours we shall see what he thinks of it. I'll update everyone this evening (west coast time zone here)

janelyb Enthusiast

so the pedi wasn't sure if it was a coincedence that he got the rash while on high doses of wheat but was kinda leading toward it being a rash related to gluten...he said it was hard to say...he didn't speifically say it was DH but I am taking/treating as tho it is.

All he told us to do is to use zinc on it??? Is this true???? Well I didn't want to say where the rash was to all of you but it is on the lowerbackside.

dally099 Contributor

hi, i get something that looks like that on the tops of my thighs above my knees and on my back where your ribs are, dosnt itch all the time but when it does look out, was never sure what DH looks like hard to find pics on the net of it.

;)

Suzie-GFfamily Apprentice

Those pictures look just like my daughter's rash (she is 17 months).

We found out about our family having celiac disease last spring- just a month or two before she started solids. We decided to keep gluten out of her diet- so she has never been fed any food with gluten (well maybe she was cc'ed a couple of times before her big brother and big sister went gluten-free and she did touch some play dough at a local children's centre once).

I can't remember when the rash started- but I remember that she had it before I went gluten-free. So I thought that it might be gluten related and perhaps she was getting gluten through my breastmilk. I hoped the rash would go away when I went gluten-free (she was 8 months old when I changed my diet).

Anyway- it hasn't gone away. It has spread. It was initially on her lower legs - just above her ankles and on her lower arms- just above her wrists. By the end of the summer/early fall it had spread up her legs and up her arms. She has never scratched it - so it is probably not itchy. She also has a rash on her cheeks (the ones on her face :rolleyes: ). She doesn't have the rash on her knees or on her elbows.

I don't know what is causing the rash. My most recent thought is that it could be the baby cleanser/shampoo that I use when she has a bath. I've been using Aveeno.... I just didn't think that it would be a problem, but there could definitely be some gluten contamination in the oats. So I'm planning to switch to a gluten-free baby cleanser and baby shampoo.

However, I'm wondering if I should have her seen by a dermatologist first? Would it be worthwhile have a biopsy done? Could it be DH if it is not itchy?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Christine E Newbie

It looks exactly like a rash my 3-year old had, across the top of his shoulders and behind his knees. It didn't appear to itch. Thanks so much for posting the picture. I described it to his nutritionist, (at Uof Chicago Celiac Program), and she said it probably wasn't related to Celiac since it didn't itch. BUT, I've never seen a rash like it before. He also has red cheeks and chin. The pediatritian said it is Keratosis?? a type of skin?(rough). Anyway, it does take a few weeks to go away. The stuff the ped gave me for his face he wiped off b/c he said it hurt. I try to put lotion on when he's sleeping, but I don't know if that helps. From reading posts, it seems anything can be related to celiac, but it's helpful to hear other parents/kids have experienced the same thing. I'm starting to wonder if my 6-year old, who tested negative, may be less moody on a gluten-free diet!

  • 3 weeks later...
April in KC Apprentice
I've been using Aveeno.... I just didn't think that it would be a problem, but there could definitely be some gluten contamination in the oats. So I'm planning to switch to a gluten-free baby cleanser and baby shampoo.

However, I'm wondering if I should have her seen by a dermatologist first? Would it be worthwhile have a biopsy done? Could it be DH if it is not itchy?

Suzie, did you make the switch to gluten-free bath products? Articles I have read say that people with DH _ARE_ sensitive to gluten in skin products...so removing the Aveeno and reading other products carefully is a good idea. Might scrub the tub, too.

Have you checked out California Baby products? They are gluten-free / nut free / milk free, etc., and very cute. You can get them on amazon .com or health food stores...or they have their own website.

April

janelyb Enthusiast

Well our pedi keeps saying oh it's just a really bad diaper rash....so far no cream helps and it actually spread up on his lower back. It is extremely itchy. I am so wondering if it is a reaction to dairy or maybe corn???? Anywho we have an appt this wednesday with GI and I want to get her take on it, and in 1 week we have an appt for skin testing for allergies.

It looks exactly like a rash my 3-year old had, across the top of his shoulders and behind his knees. It didn't appear to itch. Thanks so much for posting the picture. I described it to his nutritionist, (at Uof Chicago Celiac Program), and she said it probably wasn't related to Celiac since it didn't itch. BUT, I've never seen a rash like it before. He also has red cheeks and chin. The pediatritian said it is Keratosis?? a type of skin?(rough). Anyway, it does take a few weeks to go away. The stuff the ped gave me for his face he wiped off b/c he said it hurt. I try to put lotion on when he's sleeping, but I don't know if that helps. From reading posts, it seems anything can be related to celiac, but it's helpful to hear other parents/kids have experienced the same thing. I'm starting to wonder if my 6-year old, who tested negative, may be less moody on a gluten-free diet!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    2. - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

    3. - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

    4. - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,019
    • Most Online (within 30 mins)
      7,748

    Nancy Adams
    Newest Member
    Nancy Adams
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.