Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Challenge Time

dally099

Recommended Posts

dally099 Contributor
dally099
Posted

well as per the docs orders im now gluten-free for 2 months (except for the 4 days leading up to the dermatologist) im also dealing with a soy allergy so all i can find in the house that has gluten and wheat and no soy is hotdogs and kraft dinner, so this will be my lunch and snacks for the next week and we shall see! i am noticing that their is soy in breads and crackers so we are wondering if it is not celiac/gluten intolerance but rather the allergy to soy, so this is step one of figuring that out.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Hmmm. I suspect that your bloodwork was negative because you were already off gluten for two weeks when the blood was drawn.

How is your gluten challenge set up? Are you just waiting for a noticeable reaction or are you planning to have blood drawn or a biopsy?

Because now that your intestines have healed, it may take months for you to have a noticeable reaction to gluten (it can be a cumulative thing), andas far as I know, it will take minimum of a couple of months on gluten for your bloodwork to be accurate (ditto with a biopsy).

On the other hand, many gluten intolerant people do react IMMEDIATELY to gluten after having been off it for a while.

What about bread and pasta--they don't have soy, do they?

dally099 Contributor
dally099
Posted
  • Author

my doctor is open to diet as a way of testing for gluten/wheat intolerance when the blood work is negative, i am avoiding soy (which is in most breads) but not in pasta. he wants me to do this for at least a week, im hoping soy is the worst of my problems, we shall see. if i have problems then i am going to see a GI as well as an allergist next. I have a good doc, im also waiting results from enterolab.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

I'm so glad you have a good doc--that's something most of us haven't seen!

I myself don't have an obvious reaction to being glutened, which means I don't know when I'm getting poisoned until my system can't take it anymore. Then I get DH and very minor loose stools/constipation/bloating, but nothing like what most others here experience.

dally099 Contributor
dally099
Posted
  • Author
I'm so glad you have a good doc--that's something most of us haven't seen!

I myself don't have an obvious reaction to being glutened, which means I don't know when I'm getting poisoned until my system can't take it anymore. Then I get DH and very minor loose stools/constipation/bloating, but nothing like what most others here experience.

im simaler to that it takes me a couple of days, allthough i was up at 4am with a very sore tummy, and very neusaous (pardon the spelling did i mention the brain fog?) i had terrible brain fog yesterday and headaches. ugh i dont think i could keep this up long enough if the GI tells me i need to for a biopsy, i can live happily begin gluten-free without a diagnosis if i know that i wont feel this way. oh did i mention the hot flashes im sure the D isnt far behind!

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Did you feel better off gluten, or do you think there is still something else causing problems?

dally099 Contributor
dally099
Posted
  • Author
Did you feel better off gluten, or do you think there is still something else causing problems?

oh i feel much better off gluten, i woke up this morning nausus w/ a sore tummy and i have gas so i know the D is coming its just that i have an obvoius allergy to soy and soy is in everthing including lots of breads and crackers and such so we thought that could be the culprit, but my symptoms of that are different in that i swell and get hives. so my doc believes in the diet being the best sign of things so after 2 months of being gluten-free he wanted me to go back to eating it for a couple of weeks and see what happens, but its tough to find things that dont have soy in them, even most cerieals have it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.