Apraxia And Celiac

[Guhlia]

Is there a link between apraxia and Celiac? Any info would be greatly appreciated.

[ravenwoodglass]

In our family there may have been a link. My DD lost all her speech at about a year and a half. She went from forming short sentences to screaming. It was a gradual process. She did recover speech with the aid of a speech therapist although at 8 she still sounded very 'babyish' by her early teen years her speech was normal.

Before diagnosis I had great difficulty myself with speech. Finding the right words for stuff often took so long that I was not an easy person to talk to. This has eased a lot. If I want a fork I can now say bring me a fork faster than I could get it myself.

[flowergirl]

I had the same problem as Ravenwoodglass. I had trouble expressing myself and forget what I wanted to say mid sentense. Social events were a nightmare and making decent conversation hard. People often perceived me as rude, cold or dumb. In my heart I know I am intelligent and I have heaps of inteligible things to say, but getting whats in my head into words and expressing them is difficult for me. I am ill at ease around people especially when they expect me to talk or push me for a response. I become anxious and frustrated at being unable to express myself properly. Since going gluten-free I am more relaxed, in control of my body and able to cope around people but I still prefer to keep quiet and say the minimum. My self image and confidence was greatly affected by this.

Flowergirl

[Guhlia]

Thanks for your responses. There's a little girl that I care about very much who was just diagnosed with apraxia. She is tiny in size (I think she's still wearing 18month clothing at 2-1/2), constipated all the time, eats like a horse with no gain in height or weight, and only has a few words at 2-1/2 years old. I absolutely adore this little girl, but I don't know her parents or anything to suggest Celiac as a possible problem. I've suggested it to the only family of hers that I know, but I don't know if it'll make it's way back to this girl's parents. The father also has stomach issues, I don't know of what nature, but he tested negative for Celiac. I don't know if he's been tested recently with the newer tests. Anyway, I was just trying to put together a stronger link between apraxia and Celiac for them to approach their doctor with. I would be devastated if anything happened to this little girl and we all know how dangerous Celiac can be, especially with little ones.

[flowergirl]

I sincerely hope that you can find a way to bring the message accross to the parents and I hope they will investigate this further. Nobody needs to suffer like that.