Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Going Nuts !


bigscott

Recommended Posts

bigscott Newbie

Hi folks, new on the forum but have been diagnosed with celiac disease, biopsy & blood tests. I have been gluten-free for about a week now and feel a very slight improvement although my consultant told me I have quite severe damage to stomach lining and surrounding areas...since going gluten free I have been experiencing some quite weird symptoms, forgetfulness, shaking right hand, cramp, sore neck & with helping my 10 yr old to do his school homework an inability to even do simple arithmetic....this was the worst feeling as I am very good at Maths.

Has anyone came across this before.

Thanks,

bigscott

Aye Yours.

XX


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I'm just guessing here but if you had severe damage to the villi in your small bowel, then your physical condition is possibly still deteriorating because one week is not enough time to heal significantly and start restoring all the nutrients your body is missing. I had the brain fog and muscle and joint aches and pains for week and weeks and weeks.

If these conditions continue to get worse, though, I'd see your doctor.

richard

bigscott Newbie

Thanks Richard.

bs

darlindeb25 Collaborator
:D hi big scott and welcome-----i too now realize i had symtoms such as yours--at the time i didnt relate it to celiacs--i read things in here and i think--wow, that was me---after going gluten-free, for months i had terrbile hip pain at night--it would even become a part of my dreams--whatever i was dreaming about, i would be in tears from the hip pain and i would wake up in tears hurting so bad--from what i read in here, it sounds normal for recovering celiacs to go through these little quirks---now whenever i forget something i tell my man its the celiacs fault ;) there has to be some pluses to having this disease ;) i promise, in time you will start feeling better :rolleyes:
bigscott Newbie

Thanks Deb,

I'm still trying to take all of this in...up until 2 years ago I was the fittest guy on the planet and a soccer coach, although I coach twice weekly it takes an awful lot out of me and at times trying to explain to others what it feels like also takes it out of me...It just got to the stage I kept it to myself for fear of sounding like a whinge who was always complaining.

I am glad now that I can focus and look forward to improve things and it has helped reading other peoples experiences.

Thanks a lot,

Aye Yours

BS ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,778
    • Most Online (within 30 mins)
      7,748

    Waterlili
    Newest Member
    Waterlili
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Resada
      Yeah, that one is always hard, especially since life seems to revolve around food. That happened to me 2 weeks ago with hibachi and with Hungarian hot dogs. I used to be more picky, but now I would love to try all the things if I could. On the bright side, my husband is absolutely wonderful with it, and his mom often brings a few certified gluten-free things to family get-togethers just for me (and tries to make sure main dishes are safe too). Having the people closest to you be supportive can make a huge difference. 
    • trents
      I hear you. My extended family is very good about factoring in my celiac disease safety needs when making family celebration meal plans but sometimes it breaks down in the spur of the moment decisions to "Oh, let's go out and get some teriyaki" or the like. Especially when my brother in law comes into town 'cause he's pretty particular about what he likes to eat. So, sometimes I just say, "You guys go ahead without me. I'll find some leftovers." But, still, I admit to feeling a little left out at such times and a little like a 5th wheel.
    • Resada
      Same, and I appreciate your comments. I just needed to get it off my chest. Sometimes, even when its a genuine mistake, it can feel all too hurtful and I didn't want to go back to work tomorrow still in my feelings. 
    • trents
      Yes, probably slipped his mind. Grace is in order here is my thought.
    • Resada
      I should have added that, while I dont have access during the meetings, I do as soon as I leave them (same for him) so I would have seen before I even left work. He has my number since we've needed to coordinate by cell a few times for work and other stuff. I usually have a protein bar or two in my desk for emergencies so I could have grabbed one of those and gone to meet them at the right restaurant.  Someone else decided on the change of restaurant and it must have slipped his mind that I wasn't coming back to my desk.
×
×
  • Create New...