Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Am I Going Nuts !


bigscott

Recommended Posts

bigscott Newbie

Hi folks, new on the forum but have been diagnosed with celiac disease, biopsy & blood tests. I have been gluten-free for about a week now and feel a very slight improvement although my consultant told me I have quite severe damage to stomach lining and surrounding areas...since going gluten free I have been experiencing some quite weird symptoms, forgetfulness, shaking right hand, cramp, sore neck & with helping my 10 yr old to do his school homework an inability to even do simple arithmetic....this was the worst feeling as I am very good at Maths.

Has anyone came across this before.

Thanks,

bigscott

Aye Yours.

XX


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I'm just guessing here but if you had severe damage to the villi in your small bowel, then your physical condition is possibly still deteriorating because one week is not enough time to heal significantly and start restoring all the nutrients your body is missing. I had the brain fog and muscle and joint aches and pains for week and weeks and weeks.

If these conditions continue to get worse, though, I'd see your doctor.

richard

bigscott Newbie

Thanks Richard.

bs

darlindeb25 Collaborator
:D hi big scott and welcome-----i too now realize i had symtoms such as yours--at the time i didnt relate it to celiacs--i read things in here and i think--wow, that was me---after going gluten-free, for months i had terrbile hip pain at night--it would even become a part of my dreams--whatever i was dreaming about, i would be in tears from the hip pain and i would wake up in tears hurting so bad--from what i read in here, it sounds normal for recovering celiacs to go through these little quirks---now whenever i forget something i tell my man its the celiacs fault ;) there has to be some pluses to having this disease ;) i promise, in time you will start feeling better :rolleyes:
bigscott Newbie

Thanks Deb,

I'm still trying to take all of this in...up until 2 years ago I was the fittest guy on the planet and a soccer coach, although I coach twice weekly it takes an awful lot out of me and at times trying to explain to others what it feels like also takes it out of me...It just got to the stage I kept it to myself for fear of sounding like a whinge who was always complaining.

I am glad now that I can focus and look forward to improve things and it has helped reading other peoples experiences.

Thanks a lot,

Aye Yours

BS ;)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,540
    • Most Online (within 30 mins)
      7,748

    Nina J
    Newest Member
    Nina J
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
    • lmemsm
      I've used magnesium taurinate and magnesium taurate vitamins.  Didn't notice much of a difference when I used them.
    • Scatterbrain
      Anyone experimented with Taurine supplementation either via electrolyte powders or otherwise? Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.