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katieanne

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katieanne Newbie

Hi everyone. I was diagnosed two weeks ago with Celiacs. Although my blood tests were normal, my biopsy revealed the disease. Since going gluten free, I feel great. Prior to my diagnosis, I was sick to my stomach daily and had horrible stomach pains. In just two weeks I notice such a difference.

Despite my progress, I feel like I am getting increasingly tired. I used to be a very active person. I can hardly get out of bed now. My body is also sore all over. In addition, I notice that I have bruises all over my body and minor paper cuts are turning into scars. Is this a result of some kind of vitamin deficiency? Two years ago I learned that I have a low B12 and have been taking vitamins daily. Maybe I need more?

If anyone can help. I am so close to feeling normal again!


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Lisa Mentor

You could be going through some gluten withdrawal, that is not uncommon. You might also check to see of your supplements are gluten free. I take sub lingual B-12 (it disolved under your tongue and goes right into your bloodstream)

It took me almost 6 months to feel better. If you are strict with you diet you will feel better soon.

ravenwoodglass Mentor
Hi everyone. I was diagnosed two weeks ago with Celiacs. Although my blood tests were normal, my biopsy revealed the disease. Since going gluten free, I feel great. Prior to my diagnosis, I was sick to my stomach daily and had horrible stomach pains. In just two weeks I notice such a difference.

Despite my progress, I feel like I am getting increasingly tired. I used to be a very active person. I can hardly get out of bed now. My body is also sore all over. In addition, I notice that I have bruises all over my body and minor paper cuts are turning into scars. Is this a result of some kind of vitamin deficiency? Two years ago I learned that I have a low B12 and have been taking vitamins daily. Maybe I need more?

If anyone can help. I am so close to feeling normal again!

It is going to take a while to heal. I agree completely that you should add the sublingual B12 to your vitamin regime. Also make sure you have eliminated any sources of CC including in personal care products and craft type stuff. It will also help the healing process if you try to consume only whole unprocessed foods as much as you can.

I am glad you are seeing some progress, try not to forget that it took years for you to become ill and getting well will take a while also.

alamaz Collaborator

I've been gluten-free for a few weeks myself. After the first week I felt great and then something happened and I have good days and bad days. I think part of that is your body adjusting to new foods and lack of old foods (lots of sugar for me for instance). Are you eating enough protein? I try to make sure I have protein with every meal and snack so if I eat a piece of fruit- I put almond butter on it or have a handful of almonds. For meals I make sure I have chicken or fish or even red meat a few times a week. Also make sure you are eating plenty of dark green leafy veggies and staying hydrated.

I know that a vitamin K definciency can lead to easy bruising but you need to have a physician run blood tests to know what you are decficient in. It also might be helpful to see a dietician who can help put you on supplements in the areas you are deficient until your body heals.

Amy

wowzer Community Regular

I've been gluten free since the first of the year. I felt great after a couple of weeks also. I did go through a tired streak for a few weeks. I keep finding things that I've been eating that have gluten. So many things to watch for. I've had a few setbacks and am still seeing other improvements. I guess we all have to live and learn. Don't forget to check cosmetics, shampoo, lotion too. I was using a lip gloss that I found had gluten. Good Luck Wendy

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    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
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