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Results - Finally On Dd

2kids4me

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2kids4me Contributor
2kids4me
Posted

Ok, for those that don't know me, Kathryn has had rough year with being sick off and on, finding bilirubin and urobilinogen in her urine. Blood work, referrals and waiting for the referrals and then "pending lab results". Pediatrician going away in midst (on leave) of this..

We FINALLY got results from her ENA profile and that was NEGATIVE :) so she does not have any other autoimmune illness happening ( other than the hypothyroidism and celiac!), plus her liver is just fine. GI says she has Gilberts syndrome - a benign condition in which her body gets rid of bilirubin in the urine when she is sick for whatever reason, some quirk she was born with and it does not cause any problems...just worries mom is all :rolleyes:

Because of her ongoing problem of rashes, felling crappy and headaches, he suggested we see a rheumatologist - it seems to him to be an inflammatory condition of some kind since it responds to advil . He suggested in the mean time, to give her low dose aspirin, and see if that prevents symptoms altogether.

Just to make life interesting - my doggie was having a play date with her big labrador friend and they crashed into me while running with each other and I tore my medial knee ligament, now hobbling around witha knee brace for 6 weeks. :o

So, happy to report that no new autoimmune stuff- YIPEE

Sandy

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jerseyangel Proficient
jerseyangel
Posted

Sandy,

That's such good news about Kathryn! Wow--you can finally breathe a sigh of refief :)

Now, you take care of that knee....

Suzie-GFfamily Apprentice
Suzie-GFfamily
Posted

My husband, the non-celiac in our family, has Gilberts.

I tried to find a link between celiac and Gilberts last year when we discovered that at least 2/3 of our children are celiac. There is celiac disease on my side of the family for sure, but I suspect it could be on my husband's side also. So far, he and his mom have tested negative.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

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    • NanceK
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    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
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      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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