Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New And Not Sure

Brown213

Recommended Posts

Brown213 Newbie
Brown213
Posted

Hi,

I'm not sure if I have full blown Celiac or just gluten intol or just crazy. I've been sick for 9 months now and it's pretty clear that food is some of the cause of my feeling badly.

I wanted to know if anyone else has noticed that their problems bubble up at certain times during their cycle?

I am nauseated at least half the month - kind of like morning sickness. I also throw up or come close a few times a month. It's all related to my cycle and I have heard of something called PME - premenstral exacerbation which means your hormones exacerbate an underlying problem.

I've lost 12 pounds which is not so good for me since I was already on the thin side.

Even more curious - I never had these symptoms this badly until I took Paxil for 4 doses. Had a very severe reaction including loss of appetite, nausea and vomitting. Those symptoms never left.

Any info you all have would be great. I have found message boards to be more enlightening than most doctors. No offense, but if they haven't seen it they tend not to believe it.

Thanks,

Lisa

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted
Hi,

I'm not sure if I have full blown Celiac or just gluten intol or just crazy. I've been sick for 9 months now and it's pretty clear that food is some of the cause of my feeling badly.

I wanted to know if anyone else has noticed that their problems bubble up at certain times during their cycle?

I am nauseated at least half the month - kind of like morning sickness. I also throw up or come close a few times a month. It's all related to my cycle and I have heard of something called PME - premenstral exacerbation which means your hormones exacerbate an underlying problem.

I've lost 12 pounds which is not so good for me since I was already on the thin side.

Even more curious - I never had these symptoms this badly until I took Paxil for 4 doses. Had a very severe reaction including loss of appetite, nausea and vomitting. Those symptoms never left.

Any info you all have would be great. I have found message boards to be more enlightening than most doctors. No offense, but if they haven't seen it they tend not to believe it.

Thanks,

Lisa

For both me and my DD they did. We also had severe PMS symptoms and for years I thought everyone had tummy trouble when 'that time' came. Eventually for me the tummy trouble became constant but for many years it did seem to be linked to my period. I also had unexplainable trouble concieving, it took almost 10 years before I had my first live baby.

Mom to Many Newbie
Mom to Many
Posted

It makes total sense to me that your symptoms are more severe around your cycle. Do you have cramping with your cycle? If you are it makes total sense that the smooth muscles of your bowels would be affected since things are kicked up anyway. As for the paxil... Could it have further irritated your digestive tract and made the syptoms surface?

Dr.s are people and they are very capable of making mistakes. Just because a Dr. does not seem to understand your symtoms does not mean they are not there.

Unrelated case in point... I have celiac symptoms when I am pregnant. I tested negative. The Dr. looked at me like I was nuts. Okay... I am secure enough to cope with that.

Antoerh case in point... I walked into the Dr. office on Friday and told him soemthing was not right. His attitude was, oh, your alright. 2 days later my water broke and I gave birth to a 3 pound baby. (Who by the way has celiac disease now at age 4.)

There is a lot that doctors understand, but there is also a whole lot that they do not.

I know it is hard, but if you can gather strength elsewhere and carry on you can cope with this. My mother is a nurse and there seems to be a medical mindset of, if we don't know about it it does not exist. (Shhh, don't tell my mom I said that. I know that is a blanket statement and there are some who do not feel that way. But, I see it a lot in the world today.)

One more thing, my daughter and I both have a lot of non food related IBS symptoms also. IF I get stressed, or if Kimiko is late going someplace it can set her off to struggle the whole day.

The darling will not take immodium. She would rather be sick than take it. SHRUG...

Hang in there.

Marianne

I am nauseated at least half the month -
JodiC Apprentice
JodiC
Posted

Hi,

I too had a terrible time around that time of the month. I was not yet diagnosed with Celiac but did get diagnosed with Endometriosis. This will give you terrible cramps, D, pain etc during your period. They are starting to find a link between celiac and endo. (surprise surprise) I have since then had a complete hystorectomy (age 27, Im now 31). I was diagnosed Celiac at 28. I am not able to take HRT due to the fact that endo thrives on estrogen. I wish I had been diagnosed earlier as it would have saved all the premature labor and preventitive measures I went through with my pregnancies. fortunately for me I have a primary dr that is wonderful and values the research I have done. That is the kind of dr you need to find as there are great ones out there. Celiac almost never surfaces by itself...there are normally other autoimmune diseases with it. Remember it is your health and your body. Please don't let anyone tell you it is all in your head. Get the test needed so you can have peace of mind.

Good luck and God bless

Jodi

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jay Heying
      - Jay Heying replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    2. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      6

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    3. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    4. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    5. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,885
    • Most Online (within 30 mins)
      7,748
    KateFC
    Newest Member
    KateFC
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jay Heying
      Celiac friendly probiotics

      By Jay Heying · Posted

      Thank you so much for the advice!! I will try to make a batch this weekend. Have a great weekend,
    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.