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I Love My Family, But...

atflyaway

By atflyaway
in Coping with Celiac Disease

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atflyaway Rookie
atflyaway
Posted

I'm afraid to go back home now whenever I have time off from school. Here at college, my room mate and I keep an immaculately clean kitchen and she knows that we should use separate cookware since I've gone gluten free. At my parent's house, I have a really hard time communicating the fact that this is necessary. My mom offers to cook gluten free meals for me, but I'm afraid to eat what she makes because their kitchen is just not clean enough. They do ALOT of baking and theres flour dust everywhere (which I never noticed before the gluten free diet, of course). I glutened myself after trying to bake there for the first time. I try to make them more aware of the situation, but I feel like a broken record. I think my sisters just think I'm melodramatic and paranoid. Any advice on how to communicate your needs? Are there any good books I can provide my family with?

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johnsoniu Apprentice
johnsoniu
Posted

Danna Korn has "Living Gluten Free for Dummies" and "Wheat Free, Worry Free".

Peter Green's "Celiac Disease: A Hidden Epidemic"

All are very good and very informative. Green's can get a bit technical , though, but I would still highly recommend them all.

NoGluGirl Contributor
NoGluGirl
Posted
I'm afraid to go back home now whenever I have time off from school. Here at college, my room mate and I keep an immaculately clean kitchen and she knows that we should use separate cookware since I've gone gluten free. At my parent's house, I have a really hard time communicating the fact that this is necessary. My mom offers to cook gluten free meals for me, but I'm afraid to eat what she makes because their kitchen is just not clean enough. They do ALOT of baking and theres flour dust everywhere (which I never noticed before the gluten free diet, of course). I glutened myself after trying to bake there for the first time. I try to make them more aware of the situation, but I feel like a broken record. I think my sisters just think I'm melodramatic and paranoid. Any advice on how to communicate your needs? Are there any good books I can provide my family with?

Dear atflyaway,

I understand where you are coming from. My parents are not gluten free, and I am stuck (against my will) living here. So, keeping things gluten-free is difficult. Dad and Mom are not careful at all, and eat crackers, cereal, and toast near my coffee and stuff. Unfortunately, they did not tell me, and I got sick. They do not take Celiac seriously. My parents think I am melodramatic, obsessive, and paranoid also. I am going to get an airtight storage container for my cookware and utensils and stuff. That way, I can have all of my stuff together and if dust does fly, it won't get on it. I also got some little brightly colored dot stickers to put on my condiments like ketchup and margerine. That way, they know not to eat from it. I also carve something in it with a fork, so I know if it has been disturbed wrongfully. That way, I know not to eat it, if someone is lying to me.

Sincerely,

NoGluGirl

kbtoyssni Contributor
kbtoyssni
Posted

I've been glutened several times at my parents' house which is frustrating since my mum's also gluten-free and the house is 99% gluten-free. Maybe you could cook up some food and put it in single serving sizes before you go. I'd try to minimize the amount of cooking you do there. Try eating things like hard boiled eggs and bananas since there's less chance of contamination.

atflyaway Rookie
atflyaway
Posted
  • Author

Good advice. Thank you all.

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    • rei.b
      High DGP-A with normal IGA

      By rei.b · Posted

      I was tested for celiac at the same time, so I wasn't taking naltrexone yet. I say that, because I don't. The endoscopy showed some mild inflammation but was inconclusive as to celiac disease. They took several biopsies and that's all that was shown. I was not given a Marsh score.
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      High DGP-A with normal IGA

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      Food and environmental allergies involve IgE antibodies.  IgE antibodies provoke histamine release from mast cells.   Celiac disease is not always visible to the naked eye during endoscopy.  Much of the damage is microscopic and patchy or out of reach of the scope.  Did they take any biopsies of your small intestine for a pathologist to examine?  Were you given a Marsh score? Why do you say you "don't have intestinal damage to correlate with lifelong undiagnosed celiac disease"?   Just curious.  
    • rei.b
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      By rei.b · Posted

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