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Good Cholesterol Is High, Bad Is Low?

3boysprmom

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3boysprmom Newbie
3boysprmom
Posted

Hi-I'm new here and am trying to see if I really do have celiac. I actually started seeing a diet doctor who has patiently run tests and listened to me and my symptoms. He suggested trying a gluten free diet. I did not believe I had celiac at first despite having all of the symptoms on many of the lists I've read. I ate sushi and had wasabi and soy sauce and ended up sick to my stomach and in bed with a migraine that was awful. I decided it was worth a shot and started a new diet plan. Not realizing that "rice crispies" were not on the gluten free list, I had them a few days later and same problem...terrible migraine. I've done pretty good over the past two weeks but fell off the wagon over the holiday weekend. My symptoms have returned, terrible stomach pains, nausea, migraines,etc. I will probably have blood work done shortly to confirm that celiac is the diagnosis.

However....the route of my blog here is that I was wondering if any of you out there had high cholesterol. The high number was for the good cholesterol though, not the bad. My bad is actually low. Just another wierd thing in my blood work that I haven't been able to find an answer to.

Thanks for reading.

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tarnalberry Community Regular
tarnalberry
Posted

I have never seen anything specific to suggest that odd cholesterol (in the good way) is related to celiac, but if you're not absorbing fat properly... maybe...?

One thing though, if you're going to have blood tests, you MUST BE EATING GLUTEN for them to be valid.

CMCM Rising Star
CMCM
Posted

Well, for what it's worth, my mom was diagnosed with celiac disease 40+ years ago, and although she stopped eating gluten then, and she is a tiny person, not overweight, her cholesterol has always been high (but the good HDL was always high). For myself, although only about 20 lbs over my ideal, I have fairly high cholesterol too (257 at last test), but my HDL is also fairly high. I have always eaten a healthy diet, but I was a bit of a carb junkie, and thru a lot of carbs your insulin levels get/stay boosted, and it is now known that this process contributes more to high cholesterol than does eating fat. I've been on a low carb diet lately, also fairly low fat, so I look forward to getting a cholesterol test to see if things have improved.

I don't know that I recall reading anything about a high cholesterol link with celiac disease, though. Maybe it's just individual, and my doctor seems to think there's a genetic component, although good diet and frequent exercise supposedly helps.

Nancym Enthusiast
Nancym
Posted

There's a genetic link to having high HDL that is associated with a longevity gene I think. Do you have long lived ancestors?

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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Blood tests for thiamine are unreliable.  The nutrients from your food get absorbed into the bloodstream and travel around the body.  So, a steak dinner can falsely raise thiamine blood levels in the following days.  Besides, thiamine is utilized inside cells where stores of thiamine are impossible to measure. A better test to ask for is the Erythrocyte Transketolace Activity test.  But even that test has been questioned as to accuracy.  It is expensive and takes time to do.   Because of the discrepancies with thiamine tests and urgency with correcting thiamine deficiency, the World Health Organization recommends giving thiamine for several weeks and looking for health improvement.  Thiamine is water soluble, safe and nontoxic even in high doses.   Many doctors are not given sufficient education in nutrition and deficiency symptoms, and may not be familiar with how often they occur in Celiac disease.  B12 and Vitamin D can be stored for as long as a year in the liver, so not having deficiencies in these two vitamins is not a good indicator of the status of the other seven water soluble B vitamins.  It is possible to have deficiency symptoms BEFORE there's changes in the blood levels.   Ask your doctor about Benfotiamine, a form of thiamine that is better absorbed than Thiamine Mononitrate.  Thiamine Mononitrate is used in many vitamins because it is shelf-stable, a form of thiamine that won't break down sitting around on a store shelf.  This form is difficult for the body to turn into a usable form.  Only thirty percent is absorbed in the intestine, and less is actually used.   Thiamine interacts with all of the other B vitamins, so they should all be supplemented together.  Magnesium is needed to make life sustaining enzymes with thiamine, so a magnesium supplement should be added if magnesium levels are low.   Thiamine is water soluble, safe and nontoxic even in high doses.  There's no harm in trying.
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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      Anti-endomysial Antibody (EMA) Testing

      By Scott Adams · Posted

      That is interesting, and it's the first time I heard about the umbilical cord beings used for that test. Thanks for sharing!
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