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Upper Gi And Wheat Diet


Jenwags

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Jenwags Newbie

Hello --

This is my first post. After 36 years of weird and random health concerns happening to me -- gallbladder disease, anemia, thyroid disease -- I heard the word celiac for the first time last week.

I've done all kinds of research of course and am convinced I have it, and suspect my son does as well. Plus I learned for the first time that my grandmother "couldn't eat wheat."

I've had the bloodwork done (waiting results) but am still two weeks out from the upper GI. Here's the problem: I can't seem to force myself to eat gluten. I am trying but I just look at it like it's poison and can't make myself do it.

Does anyone know if 3 weeks without gluten would ruin the results of an upper GI on someone who has probably had celiac for 36 years? I assume there's no way the damage wouldn't be there after only three weeks but sure don't want to ruin a chance for diagnosis.

Also, I think I have candida as a result of the celiac. I felt great for a few days after going gluten-free -- amazing actually, but not feel horrible and suspect it's a die-off from the candida, since a gluten-free diet will certainly kill off candida. Anybody have any experience with that?

Thanks so much. This is all so overwhelming and I really appreciate your wisdom.

Jen


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JodiC Apprentice

Hi and welcome,

You absolutely have to eat gluten before the biopsy in order to get accurate results.

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    • trents
      Let me hasten to add that if you will be undergoing an endoscopy/biopsy, it is critical that you do not begin efforts to reduce gluten beforehand. Doing so will render the results invalid as it will allow the small bowel lining to heal and, therefore, obscure the damage done by celiac disease which is what the biopsy is looking for.
    • Scott Adams
      This article, and the comments below it, may be helpful:    
    • Scott Adams
      That’s a really tough situation. A few key points: as mentioned, a gluten challenge does require daily gluten for several weeks to make blood tests meaningful, but negative tests after limited exposure aren’t reliable. Dermatitis herpetiformis can also be tricky to diagnose unless the biopsy is taken from normal-looking skin next to a lesion. Some people with celiac or DH don’t react every time they’re exposed, so lack of symptoms doesn’t rule it out. Given your history and family cancer risk, this is something I’d strongly discuss with a celiac-experienced gastroenterologist or dermatologist before attempting a challenge on your own, so risks and benefits are clearly weighed.
    • Greymo
      https://celiac.org/glutenexposuremarkers/    yes, two hours after accidents ingesting gluten I am vomiting and then diarrhea- then exhaustion and a headache. see the article above- There is research that shows our reactions.
    • trents
      Concerning the EMA positive result, the EMA was the original blood test developed to detect celiac disease and has largely been replaced by the tTG-IGA which has a similar reliability confidence but is much less expensive to run. Yes, a positive EMA is very strong evidence of celiac disease but not foolproof. In the UK, a tTG-IGA score that is 10x normal or greater will often result in foregoing the endoscopy/biopsy. Weaker positives on the tTG-IGA still trigger the endoscopy/biopsy. That protocol is being considered in the US but is not yet in place.
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