Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Only Symmetrical Rash?


mayray

Recommended Posts

mayray Newbie

I have had what I refer to as a travelling and symmetrical rash for over 20 years. In the past, I visited many dermotologists who could not diagnose and who have only treated my symptoms wih creams, etc.

My question is, is it possible to have celiac and only have the symmetrical rash symptom? Also, benedryl helps my rash. Is this typical of a celiac rash? Stress and warm weather also aggrevate my rash.

I live in a remote part of the US with no dermatologists nearby nor do I have medical insurance. But if it is possible that I have celiac, I would like to try the gluten-free diet to see if it helps at all. Any advice helpful...thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I had something similar, that I now assume was DH. It did respond to prednisone and Benadryl--but at the same time, I googled "thyroid rash photos" (since I have had autoimmune thyroid disease for 20 years, I assumed it had something to do with my thyroid), found photos that looked an awful lot like my amazingly symmetrical rash, and found the link with gluten, so I immediately stopped eating gluten.

By the time bloodwork was done,I had been gluten-free for a month, but my IgG was off the charts, so I'm assuming that that was a positive diagnosis and I have no wish to ever go back to gluten.

Hope that helps.

mayray Newbie

Thanks Fiddle-Faddle. What's DH?

Fiddle-Faddle Community Regular

I'm so sorry! I'm rushing so much, I'm short-handing too much.

DH is short for dermatitis herpetiformis, which is a symmetrical, blistering, terribly itchy-burny rash associated with celiac. Not all celiacs get DH, but ALL people with DH have celiac, even if they have no noticeable intestinal symptoms. Interestingly, many people with DH who do not notice intestinal symptoms DO have intestinal damage, as shown by boipsy.

The good news is, if you are gluten-free, the rash and ALL intestinal damage go away forever (or for as long as you are gluten-free, which ought to be forever). Also, you can order gluten-free flours (to make pancakes, cookies, cakes, biscuits, and yummy breads that taste way better than the prefab gluten-free breads)and pastas and everything you need off the Internet.

A lot of people here on this board have been diagnosed by sending poop samples (yeah, I know, ugh) to Enterolab, and just paying outright if their insurance doesn't cover it. I can't give you feedback on that one because the diet made such a difference for me, I just didn't bother with Enterolab, but a lot of people are interested in finding out whether they have the genes for celiac, or if they are showing definite signs of gluten intolerance or casein intolerance (casein is the protein in milk).

Anyway, google Dermatitis Herpetiformis photo, and see if you can find any pics that resemble your rash!

Lotsa Luck! And welcome, this board is a haven for all of us, no matter where we are!

Canadian Karen Community Regular
I have had what I refer to as a travelling and symmetrical rash for over 20 years. In the past, I visited many dermotologists who could not diagnose and who have only treated my symptoms wih creams, etc.

My question is, is it possible to have celiac and only have the symmetrical rash symptom? Also, benedryl helps my rash. Is this typical of a celiac rash? Stress and warm weather also aggrevate my rash.

I live in a remote part of the US with no dermatologists nearby nor do I have medical insurance. But if it is possible that I have celiac, I would like to try the gluten-free diet to see if it helps at all. Any advice helpful...thanks!

Does it look like a bullseye?

Karen

mayray Newbie
Does it look like a bullseye?

Karen

No. If you're thinking Lymes disease, there are very few deer ticks where I live. Also, I don't have any fatigue or intestinal symptoms. Just an annoying rash that seems to wax and wane.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Nateral remedies

    2. - Jmartes71 replied to Jmartes71's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      3

      Nateral remedies

    3. - Known1 replied to Known1's topic in Introduce Yourself / Share Stuff
      15

      Diagnosed Marsh stage 3C in January 2026

    4. - Wheatwacked replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

    5. - trents replied to dsfraley's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      6

      9 y/o Son Diagnosed with Celiac Disease; Persistent Symptoms: Does this Sound Familiar?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,555
    • Most Online (within 30 mins)
      7,748

    Sam25
    Newest Member
    Sam25
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Jmartes71
      OMG THANKYOU thats like written gold right there that you sent! 
    • Jmartes71
      Diffently going to ck out, my sibo is bloating me again.I can actually feel my organs on my left move.Im seeing my pcp this morning Ill bring it up.I do have appointment with reg dietitian but not til June which was found on here.Its frustrating because its like a life switch on celiac when menopause hits, tolerance level is zero. This is why im im concerned about precautions not just consumption. 
    • Known1
      Thank you @knitty kitty.  I was reading some of your other posts and decided to add your preferred B-complex to my mix of vitamins.  I started taking this on 2/17 and plan to continue with them until my next blood draw in roughly 5 months. Life Extension BioActive Complete B-Complex I hope you have a great day ahead.
    • Wheatwacked
      I can drink grass fed milk but commercial milk gives me heartburn from the cassein.  Brine fermented pickles can help establish lactobacillus in his gut.  They provide lactase to break down the lactose.  Vinegar pickled pickles do not.  inegar generally suppresses Lactobacillus by creating an acidic environment  that is inhospitable to the beneficial bacteria.  Organic pasture fed yogurt is good.  Some no fat brands of yogurt use various gums to replace the fat and these can cause a Celiac discomfort.   Vitamin D, Thiamine, Iodine, Choline are some of the vitamins that are deficient in the western diet. Because of malabsorption from the Marsh 3 damage Celiacs are more deficient. Try to choose vegetables low in omega 6. Yes there is hope.  It does take some time to heal the damage  My son was diagnosed when he was weaned as an infant.  He grew up to be a proffesional ocean lifeguard.
    • trents
      Lactose intolerance is not necessarily to problem in the celiac community. Intolerance to the dairy protein casein can be the culprit as it is similar enough to gluten to cause cross reactivity in a fairly significant element of the celiac population. Oats and dairy are common cross reactors in the celiac community. Eggs, corn and soy are also common cross reactors but oats and dairy are the two big ones.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.