Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Only Symmetrical Rash?


mayray

Recommended Posts

mayray Newbie

I have had what I refer to as a travelling and symmetrical rash for over 20 years. In the past, I visited many dermotologists who could not diagnose and who have only treated my symptoms wih creams, etc.

My question is, is it possible to have celiac and only have the symmetrical rash symptom? Also, benedryl helps my rash. Is this typical of a celiac rash? Stress and warm weather also aggrevate my rash.

I live in a remote part of the US with no dermatologists nearby nor do I have medical insurance. But if it is possible that I have celiac, I would like to try the gluten-free diet to see if it helps at all. Any advice helpful...thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I had something similar, that I now assume was DH. It did respond to prednisone and Benadryl--but at the same time, I googled "thyroid rash photos" (since I have had autoimmune thyroid disease for 20 years, I assumed it had something to do with my thyroid), found photos that looked an awful lot like my amazingly symmetrical rash, and found the link with gluten, so I immediately stopped eating gluten.

By the time bloodwork was done,I had been gluten-free for a month, but my IgG was off the charts, so I'm assuming that that was a positive diagnosis and I have no wish to ever go back to gluten.

Hope that helps.

mayray Newbie

Thanks Fiddle-Faddle. What's DH?

Fiddle-Faddle Community Regular

I'm so sorry! I'm rushing so much, I'm short-handing too much.

DH is short for dermatitis herpetiformis, which is a symmetrical, blistering, terribly itchy-burny rash associated with celiac. Not all celiacs get DH, but ALL people with DH have celiac, even if they have no noticeable intestinal symptoms. Interestingly, many people with DH who do not notice intestinal symptoms DO have intestinal damage, as shown by boipsy.

The good news is, if you are gluten-free, the rash and ALL intestinal damage go away forever (or for as long as you are gluten-free, which ought to be forever). Also, you can order gluten-free flours (to make pancakes, cookies, cakes, biscuits, and yummy breads that taste way better than the prefab gluten-free breads)and pastas and everything you need off the Internet.

A lot of people here on this board have been diagnosed by sending poop samples (yeah, I know, ugh) to Enterolab, and just paying outright if their insurance doesn't cover it. I can't give you feedback on that one because the diet made such a difference for me, I just didn't bother with Enterolab, but a lot of people are interested in finding out whether they have the genes for celiac, or if they are showing definite signs of gluten intolerance or casein intolerance (casein is the protein in milk).

Anyway, google Dermatitis Herpetiformis photo, and see if you can find any pics that resemble your rash!

Lotsa Luck! And welcome, this board is a haven for all of us, no matter where we are!

Canadian Karen Community Regular
I have had what I refer to as a travelling and symmetrical rash for over 20 years. In the past, I visited many dermotologists who could not diagnose and who have only treated my symptoms wih creams, etc.

My question is, is it possible to have celiac and only have the symmetrical rash symptom? Also, benedryl helps my rash. Is this typical of a celiac rash? Stress and warm weather also aggrevate my rash.

I live in a remote part of the US with no dermatologists nearby nor do I have medical insurance. But if it is possible that I have celiac, I would like to try the gluten-free diet to see if it helps at all. Any advice helpful...thanks!

Does it look like a bullseye?

Karen

mayray Newbie
Does it look like a bullseye?

Karen

No. If you're thinking Lymes disease, there are very few deer ticks where I live. Also, I don't have any fatigue or intestinal symptoms. Just an annoying rash that seems to wax and wane.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      My Journey Continues some notes

    2. - Cecile replied to Cecile's topic in Related Issues & Disorders
      3

      Symptoms

    3. - Jmartes71 posted a topic in Introduce Yourself / Share Stuff
      0

      Not validated

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      4

      New issue

    5. - Jmartes71 replied to chrish42's topic in Doctors
      3

      Doctors and Celiac.com

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,191
    • Most Online (within 30 mins)
      7,748

    LynnF98
    Newest Member
    LynnF98
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      I have increased my vitamin intake Vitamin B Complex plus 2 Thiamax, NeuroMag, Benfotiamine with breakfast. I continue reading and watching gluten free items that I eat. Breakfast is Bobs Redmill gluten-free oatmeal with Chobani zero sugar yogurt a banana and blueberries. Lunch since im at a deli gluten-free is hard to come by so I stick with turkey with gluten-free Promise bread. Dinner varies like gluten-free pasta, tacos, chicken, sausage, meat etc. rice or take out from gluten-free places. I have decided to stay away from gluten-free pizza as I feel I felt weird with it unless its store bought frozen. I am going to try to make my own gluten-free bread, Bagels. I have been good with baking gluten-free treats like cookies, muffins. Snacks if its not fruit, veggies I grab a protein bar or chocolate guilty pleasure reeses, hersheys, York PP. I am going to start to use my fitness pal app to track what I eat and note when I feel off to see if I can pinpoint if a trend of a certain gluten-free food is a culprit. I noticed once in a while I feel a little bloated, gassy that I think is from the pizza so I am going to avoid it and continue narrowing it down. I have been doing very well and I have learned even if you think you are doing everything 100% gluten-free eating it can sneak in without you knowing. This year is more traveling which im afraid of but have already looked into gluten-free places in Nashville which they have and back to Aruba I went last year and have the gluten-free places already selected. Most restaurants I have been to have been very helpful with what to stay away from to avoid CC. If a place states they don't have any gluten-free the I stick with a salad or when I took my kids to breakfast as much as I miss the breakfast this place serves I played it safe with yogurt and a fruit bowl so at least my kids were happy to go there again. Local farmers market has great gluten-free items that I treat myself to like different types of breads, baked goods. My journey continues...
    • Cecile
      Thank you Scott for your wonderful info. I will pry my Doctor for more extensive blood testing. I appreciate your time. 
    • Jmartes71
      After waisted time of new care team, yet again EXHAUSTED saw new gi today in Modesto, though all my ailments im not getting any kind of concern of me being celiac and sentive to just about everything since menopause. Dr daid why don't I go see you guys because my blood shows zero for celiac. I told him im glutenfree since 1994 by colonoscopy with biopsy positive celiac sprue by GI.Its RIDICULOUS when im bringing in material from this site of knowledge as well as the autoimmune institute,and  there's zero interest on their part.Medical IS causing me depression.Im view as a disability chaser, IM STILL RECOVERING from being a bus driver that im still healing and having more issues, now I may have multiple sclerosis or meningioma. Ive reached out, wrote letters, NOT feeling well. This is inhumane. 
    • Jmartes71
      I was taking medicine for sibo but it was not agreeing with my stomach at all.Was on gabapentin but it amps me up.I was taking in morning because it wasn't allowing me to sleep.This has always been an issue with medicine and me.Even going to dentist, the good shot that numbs you once, I can't take because it makes my heart beat fast and I  get the shakes.I have to take the crappy stuff and get injected always more than 4 times always.Its infuriating 
    • Jmartes71
      I showed one doctor I went to once because completely clueless of celiac disease and yes that one was connected to a well known hospital and she said oh thats just a bunch of people that think they are celiac coming together. I said um no they have doctors and knowledge behind what is being written. So bay area is Downplaying this site! SADLY 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.