Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Only Symmetrical Rash?


mayray

Recommended Posts

mayray Newbie

I have had what I refer to as a travelling and symmetrical rash for over 20 years. In the past, I visited many dermotologists who could not diagnose and who have only treated my symptoms wih creams, etc.

My question is, is it possible to have celiac and only have the symmetrical rash symptom? Also, benedryl helps my rash. Is this typical of a celiac rash? Stress and warm weather also aggrevate my rash.

I live in a remote part of the US with no dermatologists nearby nor do I have medical insurance. But if it is possible that I have celiac, I would like to try the gluten-free diet to see if it helps at all. Any advice helpful...thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

I had something similar, that I now assume was DH. It did respond to prednisone and Benadryl--but at the same time, I googled "thyroid rash photos" (since I have had autoimmune thyroid disease for 20 years, I assumed it had something to do with my thyroid), found photos that looked an awful lot like my amazingly symmetrical rash, and found the link with gluten, so I immediately stopped eating gluten.

By the time bloodwork was done,I had been gluten-free for a month, but my IgG was off the charts, so I'm assuming that that was a positive diagnosis and I have no wish to ever go back to gluten.

Hope that helps.

mayray Newbie

Thanks Fiddle-Faddle. What's DH?

Fiddle-Faddle Community Regular

I'm so sorry! I'm rushing so much, I'm short-handing too much.

DH is short for dermatitis herpetiformis, which is a symmetrical, blistering, terribly itchy-burny rash associated with celiac. Not all celiacs get DH, but ALL people with DH have celiac, even if they have no noticeable intestinal symptoms. Interestingly, many people with DH who do not notice intestinal symptoms DO have intestinal damage, as shown by boipsy.

The good news is, if you are gluten-free, the rash and ALL intestinal damage go away forever (or for as long as you are gluten-free, which ought to be forever). Also, you can order gluten-free flours (to make pancakes, cookies, cakes, biscuits, and yummy breads that taste way better than the prefab gluten-free breads)and pastas and everything you need off the Internet.

A lot of people here on this board have been diagnosed by sending poop samples (yeah, I know, ugh) to Enterolab, and just paying outright if their insurance doesn't cover it. I can't give you feedback on that one because the diet made such a difference for me, I just didn't bother with Enterolab, but a lot of people are interested in finding out whether they have the genes for celiac, or if they are showing definite signs of gluten intolerance or casein intolerance (casein is the protein in milk).

Anyway, google Dermatitis Herpetiformis photo, and see if you can find any pics that resemble your rash!

Lotsa Luck! And welcome, this board is a haven for all of us, no matter where we are!

Canadian Karen Community Regular
I have had what I refer to as a travelling and symmetrical rash for over 20 years. In the past, I visited many dermotologists who could not diagnose and who have only treated my symptoms wih creams, etc.

My question is, is it possible to have celiac and only have the symmetrical rash symptom? Also, benedryl helps my rash. Is this typical of a celiac rash? Stress and warm weather also aggrevate my rash.

I live in a remote part of the US with no dermatologists nearby nor do I have medical insurance. But if it is possible that I have celiac, I would like to try the gluten-free diet to see if it helps at all. Any advice helpful...thanks!

Does it look like a bullseye?

Karen

mayray Newbie
Does it look like a bullseye?

Karen

No. If you're thinking Lymes disease, there are very few deer ticks where I live. Also, I don't have any fatigue or intestinal symptoms. Just an annoying rash that seems to wax and wane.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Anne G posted a topic in Related Issues & Disorders
      0

      celiac disease and braces

    2. - trents replied to HAUS's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    3. - HAUS posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

    4. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

    5. - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,434
    • Most Online (within 30 mins)
      7,748

    Malia Ana
    Newest Member
    Malia Ana
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Anne G
      Hello, My 17 yr old daughter was diagnosed with celiac disease 2 yrs ago. She does not have gum disease and no history of cavities. Her dentist is recommending braces for her lower teeth but I read it may worsen gum recession or possibly increase cavity risk which I know are already issues for patients with celiac. Has anyone here had braces and did it cause any problems or issues with gum recession?  Her dentist seemed oblivious that celiac patients are at higher risk of gum disease /cavities. Her bottom teeth are crooked but are pretty hidden even when she smiles. Thank you!!
    • trents
      This is a common experience across the board with various brands of gluten-free bread products. Prices go up, size goes down. Removal of the egg component may be for the purpose of cost-cutting related to bird flu supply shortages or it may be catering to those with egg allergy/sensitivity, fairly common in the celiac community.
    • HAUS
      Living with Coeliac Disease since birth, Bread has always been an issue, never too nice, small slices and always overpriced, But Sainsbury's Free From White Sliced Bread seemed to me to be an exception with it's large uniform 12 x 12cm slices that had the bounce, texture and taste of white bread even after toasting with no issue that it was also Milk Free. Unfortunately Sainsbury's have changed the recipe and have made it 'Egg Free' too and it has lost everything that made the original loaf so unique. Now the loaf is unevenly risen with 8 x 8cm slices at best, having lost it's bounce with the texture dense and cake like after toasting resembling nothing like White Bread anymore. Unsure as to why they have had to make it 'Egg Free' as the price is the same at £1.90 a loaf. Anyone else experiencing the same issue with it? - also any recommendations for White Bread that isn't prescription? / Tesco's / Asda's are ok but Sainsbury's was superior.
    • Mari
      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.