Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heart Palpitations And Anxiety

Gentleheart

Recommended Posts

Gentleheart Enthusiast
Gentleheart
Posted

I have palpitations and dizziness and feel jittery and anxious. According to my doctors, it is not heart related and I have no other diagnosed illnesses. We've really tested for a lot of things. Bloodwork is always good.

Everyone's first thought is that it is from stress. I do have stress. But so does everyone else. There is nothing I am struggling with that should push my body into such a state. It is as though I cannot tolerate the slightest stressful thing. I could see that being the case if I was still being poisoned by an offending food or environmental substance. But I sure can't find it if I am.

Does anyone have experience with this? Is it likely that I have either failed to identify an allergen or are inadvertantly still getting glutened? I am supposedly not allergic to chocolate. It's the only thing I eat (small amounts and always legal homemade recipes) that even remotely contains caffeine. My symptoms don't seem to follow its consumption, but it's the only thing I can think of that could be giving me such symptoms. I never use refined sugar, stimulants or alcohol. I'm stumped.

Any ideas?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


super-sally888 Contributor
super-sally888
Posted

Hi,

Have you be thoroughly evaluated to rule out thyroid problems? Not just TSH, but full thyroid pannel. The first thing that came to mind would be hyperthyroid.

Any pattern to this? Ie after eating? After doing certain activities? In certain circumstances?

Maybe someone else will also have some ideas.

Sally

Jestgar Rising Star
Jestgar
Posted

I had this kind of reaction from eating beef. Maybe it's something completely unexpected like that.

Felidae Enthusiast
Felidae
Posted

I get heart palpitations from MSG, so I haven't eaten it in years.

Gentleheart Enthusiast
Gentleheart
Posted
  • Author

Thanks.

I've had many full thyroid panels done. It never shows up as anything. I'm experimenting with eliminating chocolate starting today. It will certainly be ironic if it ends up being that easy. With so many allergies, I was excited to still have chocolate. But if it will stop these palpitations, I'll give it up in a 'heartbeat'. (pun intended)

whitball Explorer
whitball
Posted

Are you having skipped beats or a racing heart? If this has been going on all day, you probably should consider having it checked out at the ER so that it can be monitored during the episode. I have experienced this for several years and have had it checked out many different times. A few years ago the holter monitor finally captured enough information to give a diagnosis. I have pvc's or preventricular contractions. At this point nothing can be done. What I have learned though is that fatigue is a huge factor for me. If I become over-tired and eat poorly, I have more pvc's. Stress can be a factor, but the being exhausted and hungry is not a good combination for me.

CarlaB Enthusiast
CarlaB
Posted

I have heart palpitations, skipped beats, and very bad dizziness from my Lyme Disease. I'm like you, I was stumped when I didn't get completely better on the gluten-free diet. I kept looking till I found out what else was wrong.

You can look over other Lyme symptoms on Open Original Shared Link. I always had perfect bloodwork, too. If you do get tested, be sure it's by Open Original Shared Link ... it's the ONLY lab Lyme specialists use because they are by far the most accurate/sensitive.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Gentleheart Enthusiast
Gentleheart
Posted
  • Author
I have heart palpitations, skipped beats, and very bad dizziness from my Lyme Disease. I'm like you, I was stumped when I didn't get completely better on the gluten-free diet. I kept looking till I found out what else was wrong.

You can look over other Lyme symptoms on Open Original Shared Link. I always had perfect bloodwork, too. If you do get tested, be sure it's by Open Original Shared Link ... it's the ONLY lab Lyme specialists use because they are by far the most accurate/sensitive.

Are these blood and urine tests primarily? Are these prescribed tests by a doctor or do you order them yourself? I didn't like the sound of the spinal tap suggestion. What is the treatment if a person DOES have lyme disease?

Thanks...

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
Are you having skipped beats or a racing heart? If this has been going on all day, you probably should consider having it checked out at the ER so that it can be monitored during the episode. I have experienced this for several years and have had it checked out many different times. A few years ago the holter monitor finally captured enough information to give a diagnosis. I have pvc's or preventricular contractions. At this point nothing can be done. What I have learned though is that fatigue is a huge factor for me. If I become over-tired and eat poorly, I have more pvc's. Stress can be a factor, but the being exhausted and hungry is not a good combination for me.

Mine are primarily skipped beats. I have only rarely had an accelerated heart rate. I've worn the holter meter a couple of times and they never found anything they were concerned about. I know that pvc's are mostly harmless. They just FEEL so bad. I'm still testing the chocolate. Even if it's not the main reason, it maybe is enough stimulant to tip the scales. Stress is probably more involved than I want to admit.

CarlaB Enthusiast
CarlaB
Posted

The test for Lyme Disease is a blood test (Open Original Shared Link). You can have the test kit mailed to you, but a doctor has to send it back in to the lab for them to process it. You can't do it without a doc.

I'm going to refer you to a couple more websites, but if you want more information or to discuss it more, I'll be happy to, so just PM me so we don't change the focus of this thread. :)

Open Original Shared Link has the information about testing, treating, etc.

Open Original Shared Link is a US website, whereas the one I gave you before is Canadian. I like the Canadian's list of symptoms, so I gave it first.

burdee Enthusiast
burdee
Posted

Heart palpitations, rapid heart beat, anxious physical sensations even when I don't think anxious thoughts and slight nausea are ALL my reactions to eating cane sugar. I never realized I had an IgG mediated cane sugar allergy until I took the ELISA test on which I strongly reacted to cane sugar, but not beet sugar or honey. I can eat other sweetners like maple syrup, agave, honey, even beet sugar, with no problems, but I react to even tiny amounts of cane sugar with those symptoms. I previously thought I just had 'reactive hypoglycemia'. However after I abstained from cane sugar I never got those symptoms again except once when I took some tylenol with cane sugar coating on the capsules.

Have you taken an ELISA test for other food allergies? Many celiacs have additional allergies or intolerances. You could try just abstaining from all sources of cane sugar, like evaporated cane juice, molasses, even Splenda, which is made from cane sugar. Then see if you still have those symptoms.

BURDEE

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
Heart palpitations, rapid heart beat, anxious physical sensations even when I don't think anxious thoughts and slight nausea are ALL my reactions to eating cane sugar. I never realized I had an IgG mediated cane sugar allergy until I took the ELISA test on which I strongly reacted to cane sugar, but not beet sugar or honey. I can eat other sweetners like maple syrup, agave, honey, even beet sugar, with no problems, but I react to even tiny amounts of cane sugar with those symptoms. I previously thought I just had 'reactive hypoglycemia'. However after I abstained from cane sugar I never got those symptoms again except once when I took some tylenol with cane sugar coating on the capsules.

Have you taken an ELISA test for other food allergies? Many celiacs have additional allergies or intolerances. You could try just abstaining from all sources of cane sugar, like evaporated cane juice, molasses, even Splenda, which is made from cane sugar. Then see if you still have those symptoms.

BURDEE

Yes, I took an ELISA test a year ago and strictly avoid everything I reacted to. Interestingly, I also was sensitive to cane sugar, but I don't eat any. I wouldn't be at all surprised if it is one food I am not aware of that's still 'poisoning' me. That's just how it feels.

Thanks for the ideas.

Gentleheart Enthusiast
Gentleheart
Posted
  • Author
The test for Lyme Disease is a blood test (Open Original Shared Link). You can have the test kit mailed to you, but a doctor has to send it back in to the lab for them to process it. You can't do it without a doc.

I'm going to refer you to a couple more websites, but if you want more information or to discuss it more, I'll be happy to, so just PM me so we don't change the focus of this thread. :)

Open Original Shared Link has the information about testing, treating, etc.

Open Original Shared Link is a US website, whereas the one I gave you before is Canadian. I like the Canadian's list of symptoms, so I gave it first.

Thanks!

whitball Explorer
whitball
Posted

Who does this test? Does the Celiac doc order this?, Allergist?

Heart palpitations, rapid heart beat, anxious physical sensations even when I don't think anxious thoughts and slight nausea are ALL my reactions to eating cane sugar. I never realized I had an IgG mediated cane sugar allergy until I took the ELISA test on which I strongly reacted to cane sugar, but not beet sugar or honey. I can eat other sweetners like maple syrup, agave, honey, even beet sugar, with no problems, but I react to even tiny amounts of cane sugar with those symptoms. I previously thought I just had 'reactive hypoglycemia'. However after I abstained from cane sugar I never got those symptoms again except once when I took some tylenol with cane sugar coating on the capsules.

Have you taken an ELISA test for other food allergies? Many celiacs have additional allergies or intolerances. You could try just abstaining from all sources of cane sugar, like evaporated cane juice, molasses, even Splenda, which is made from cane sugar. Then see if you still have those symptoms.

BURDEE

burdee Enthusiast
burdee
Posted

I didn't have a 'celiac' doc. My own HMO primary care docs misdiagnosed me for 12 years. So I tested for celiac disease through Enterolab. However after 2 years of ongoing symptoms after I eliminated gluten, dairy and soy, I read a book "The IBS Solution" by a local celiac (he has celiac disease) naturopath, Stephen Wangen, ND. Most of his book is on his website at Open Original Shared Link He gave me the ELISA blood test for sensitivity to 100 different foods and the comprehensive stool test for bacteria, yeast and parasites. Those diagnosed 2 more food allergies, a Klebsiella (bad) bacteria and no bifidobacteria (a good bacteria which we're supposed to have).

BURDEE

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. SusanJ
      - SusanJ replied to Jillian83's topic in Coping with Celiac Disease
      5

      Celiac and dermatitis herpetiformis has taken Me from Me

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was...
    2. knitty kitty
      - knitty kitty replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body. See my blog. Click on my name to go to my page...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      13

      New Celiac Mama in My 30s

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that...
    4. RMJ
      - RMJ replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and g...
    5. knitty kitty
      - knitty kitty replied to Riley.'s topic in Introduce Yourself / Share Stuff
      4

      Outgrow celiac?

      @Riley., Welcome to the forum, but don't do it! Don't continue to eat gluten! The health problems that will come if you continue to eat gluten are not worth it. Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually. There's many of us oldsters on the forum who wish they'd been diagnosed...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748
    Cathal Brugha
    Newest Member
    Cathal Brugha
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
    • RMJ
      Outgrow celiac?

      By RMJ · Posted

      I think your initial idea, eat gluten and be tested, was excellent. Now you have fear of that testing, but isn’t there also a fear each time you eat gluten that you’re injuring your body? Possibly affecting future fertility, bone health and more? Wouldn’t it be better to know for sure one way or the other? If you test negative, then you celebrate and get tested occasionally to make sure the tests don’t turn positive again. If you test positive, of course the recommendation from me and others is to stop gluten entirely.  But if you’re unable to convince yourself to do that, could a positive test at least convince you to minimize your gluten consumption?  Immune reactions are generally what is called dose response, the bigger the dose, the bigger the response (in this case, damage to your intestines and body). So while I am NOT saying you should eat any gluten with a positive test, the less the better.  
    • knitty kitty
      Outgrow celiac?

      By knitty kitty · Posted

      @Riley., Welcome to the forum, but don't do it!  Don't continue to eat gluten!  The health problems that will come if you continue to eat gluten are not worth it.  Problems may not show up for years, but the constant inflammation and nutritional losses will manifest eventually.  There's many of us oldsters on the forum who wish they'd been diagnosed as early.    Fertility problems, gallbladder removal, diabetes, osteoporosis and mental health challenges are future health issues you are toying with.   To dispel fear, learn more about what you are afraid of.  Be proactive.  Start or join a Celiac group in your area.  Learn about vitamins and nutrition.   Has your mother been checked for Celiac?  It's inherited.  She may be influencing you to eat gluten as a denial of her own symptoms.  Don't let friends and family sway you away from the gluten-free diet.  You know your path.  Stick to it.  Be brave. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.