Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free And Low Glycemic Index?


infiore

Recommended Posts

infiore Rookie

My daughter (5 yrs) has been gluten free (trying to control seizures) and her doctor just told us that a low glycemic index diet also is effective. Anyone have any receommendations? I have found going gluten-free to be challenging, am not sure how much its helping but am sticking with it, how difficult would it be start low GI as well?

Any advise appreciated. Also does anyone know any french fry brands (made at home, I've given up on the fast food chains being gluten-free) that are gluten free?

Thanks :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Nancym Enthusiast

Heck yes! I don't use the gluten free replacement foods because they're too carby/starchy. I do bake using coconut flour and rice bran (50/50) and sugar substitutes (usually a mix of splenda and erythritol). I haven't tried to make regular bread but I have made coffee cakes, and something I call a "bowl muffin". One of these days I'll get around to making crackers.

It takes a lot of experimentation because there aren't a lot of people doing that sort of thing. I find hanging out at a low carb message forum helps.

Oh yes, my diet is basically meat and veggies with some low glycemic fruits like berries. I use a lot of eggs, lemon curd (basically an egg custard with sugar substitute) and then "alternative" flours like coconut flour and rice bran, they're mostly fiber.

I remember meeting a woman on the low carb message forum who said her seizures were drastically reduced while following the Atkins diet. Of course, there's the Ketogenic diet that they're using on children with seizures too... has your doctor told you about that?

infiore Rookie
Heck yes! I don't use the gluten free replacement foods because they're too carby/starchy. I do bake using coconut flour and rice bran (50/50) and sugar substitutes (usually a mix of splenda and erythritol). I haven't tried to make regular bread but I have made coffee cakes, and something I call a "bowl muffin". One of these days I'll get around to making crackers.

It takes a lot of experimentation because there aren't a lot of people doing that sort of thing. I find hanging out at a low carb message forum helps.

Oh yes, my diet is basically meat and veggies with some low glycemic fruits like berries. I use a lot of eggs, lemon curd (basically an egg custard with sugar substitute) and then "alternative" flours like coconut flour and rice bran, they're mostly fiber.

I remember meeting a woman on the low carb message forum who said her seizures were drastically reduced while following the Atkins diet. Of course, there's the Ketogenic diet that they're using on children with seizures too... has your doctor told you about that?

Hi Nancy- thanks for the response. I do know about the ketogenic diet but it looks too unhealthy, with the high fat, so I think low GI is a better option. If I put my kiddo on this diet I will likely go on it too, as to me it looks quite healthy and might even keep weight down. I just shudder to think about gluten-free and low GI for a 5 yr old. Meat and veggies are not easy to get kids to eat in the first place. Plus she starts kindegarten in the fall and I'm worried about her being able to maintain the restrictive diet while in school and around other kids.

The lemon curd sounds yummy... I love lemon. Where do I find it? Where do I find the low carb message forum? I'd like to connect with the lady you mentioned.

Thanks again :)

Nancym Enthusiast
Hi Nancy- thanks for the response. I do know about the ketogenic diet but it looks too unhealthy, with the high fat, so I think low GI is a better option. If I put my kiddo on this diet I will likely go on it too, as to me it looks quite healthy and might even keep weight down. I just shudder to think about gluten-free and low GI for a 5 yr old. Meat and veggies are not easy to get kids to eat in the first place. Plus she starts kindegarten in the fall and I'm worried about her being able to maintain the restrictive diet while in school and around other kids.

The lemon curd sounds yummy... I love lemon. Where do I find it? Where do I find the low carb message forum? I'd like to connect with the lady you mentioned.

Thanks again :)

Open Original Shared Link

Great folks there, be sure to check out the recipe section. I've got my Open Original Shared Link there.

I'm doing a sort of "paleo diet" with modifications. Basically no grains (other than my rice bran), no legumes, meat, veggies, a little fruit. We've got a section for paleos on the message forum. I have adopted this diet for life for my health issues and weight control.

I haven't seen any postings by the epileptic lady in a long time. :(

missy'smom Collaborator

There was a book out maybe 10 years ago(yikes, has it been that long?) called The Glucose Revolution I think, about the glycemic index. It had medical info., lists of the glycemic index of foods and recipies. I read it in connection to blood sugar issues I was having. It might point you in the direction of other references too.

Ore Ida had a list of their products that are gluten-free on their website, I think that it hasn't been updated this year because I found some products by looking on labels that weren't on the list but appear to be gluten-free. My point is that it may not be complete but it'll be a starting point. Also many of the Alexia brand potato products are gluten-free. I haven't checked manufacturing practices with these brands. Whole Foods 365 tater tots are gluten-free.

infiore Rookie

Thanks Nancy and Missys... will check into. Have a wonderful evening.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,345
    • Most Online (within 30 mins)
      7,748

    Nana3
    Newest Member
    Nana3
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Ginger38
      Thank you for your kind words and encouragement. This has been the most difficult and confusing journey to date for me, and it has been going on since 2015/2016. The last dietitian I met with works with a lot of celiac patients, so I was excited, but she just thought I should be able to eat gluten free (whatever that may be) stay in a carb count and my diabetes would not be affected. WRONG. I have tried this several times since I crossed over to full blown diabetes, because I get so sick eating gluten that I end up getting frustrated and go back to gluten free to get some relief. I have a continuous glucose monitor so it is easy to see how my body and glucose are reacting to foods. Unfortunately my suspicions are correct. When I eat gluten-free foods -like Schar breads or rolls, or the crackers, including when I stay in my carb limit,  my sugar spikes and just sits there.. .it won;t even come back down for hours. So in the end it drives my overall glucose and A1C up. I can't really even eat oats or things like that. Cereal is very iffy. Gluten free pizzas, gluten free nuggets, and things like that majorly spike my sugar as well, again, even when staying in my carb limits. I already feel so limited on foods because of the diabetes so of course, when medical people and family and friends are like just go eat gluten, I have been like oh okay - maybe it is all in my head and hey its way cheaper to eat gluten and tastes wayyy better...and then I end up right back where I am today,. MISERABLE, just laying around in pain, spending all day in the bathroom, having accidents related to diarrhea, constant tremors, heart rate issues, chest pain etc. and I forgot about these terrible painful canker sores in my mouth right now, I can't even hardly eat or drink or swallow they hurt so bad.  Not being able to feel like I can eat gluten free is extremely frustrating. I had some great recipes and substitutes for things, and was at a decent place with all that, until the diabetes went crazy out of control, so gluten-free living seems to not be an option for me. However, eating gluten when I truly still believe I am celiac -just misdiagnosed- does NOT seem like a wise idea. I am honestly scared  I am going to get deathly ill from all this or something. I even asked my GI doctor, more like begged, if he would please just label me as celiac and tell me I was for sure (like he did before) so I could get the support I truly need. No such luck. He just keeps saying but your tests were okay 🙄 My family went to an arcade and pizza/pasta buffet yesterday - obviously I didn't want to miss out spending time with my family and my mom spent money paying for my meal/buffet - and I was hungry, so of course I ended up eating pizza and pasta that was not gluten-free, because they don't offer any gluten-free options, and then my brother and others want to ask can you eat that or are you supposed to, and I am like well no, and I will definitely pay for it. They think it is hilarious when I say things and then make comments, like how it is so fun to go out with me especially places like that because I am not supposed to eat but I just do it anyway and say I will pay for it 😥 just seems everywhere I turn it is pointless and I have no support 
    • Wheatwacked
      Just like you cannot be a little pregnant, you cannot be a little Celiac.  Here is an article I found that explains what the numbers mean. Are You Confused About Your Celiac Disease Lab Results? Here is another article about the non traditional symptoms of Celiac Disease. What Are the Symptoms of Celiac Disease? I've been taking 10,000 IU vitamin D3 since 2015.  My blood tests every 3 months for 25(OH)D have never gone above 93 ng/ml, even in the Florida summer.  70 - 100 is the body's natural homeostasis level. Surge of information on benefits of vitamin D "“When combined with supplemental magnesium, vitamin D repletion has dramatically changed my practice,” said McCarthy ... “There are now very few patients with infections, and asthmatics who are coming off medications are staying off of them. ... A lifeguard study that found vitamin D levels in the 70 ng/mL range up to 100 ng/mL (nature’s level) were associated with no adverse effects; ... Colon cancer data showing a reduction in the incidence of new cancer (linear) with postulated 0 point at 75 ng/mL;
    • somethinglikeolivia
      Interesting! Recent labs I had done did show that I was low in Vitamin D so I just began supplementing, it’s hard to tell so soon but it does seem to have a positive affect! Thanks for the input!
    • Scott Adams
      Your frustration and exhaustion are completely valid, and many in the celiac and gluten-sensitive community can relate to the overwhelming confusion you're experiencing. You’re being pulled in different directions by medical advice that seems contradictory, and it’s heartbreaking that your efforts to feel better are met with so many setbacks. Positive TTG IgA antibodies are not something to brush off, especially when combined with your long list of debilitating symptoms that clearly worsen with gluten exposure. A negative biopsy does not necessarily mean you don’t have celiac disease—it’s entirely possible that damage was missed, especially since biopsy results can vary depending on where the samples are taken and how many are collected. It’s also true that celiac disease exists on a spectrum, and many people have serious symptoms and immune responses without yet showing classic biopsy damage. Managing diabetes alongside suspected or confirmed celiac disease is incredibly tricky, especially when healthcare providers don’t work as a team to support your whole health. You shouldn’t be forced to choose between controlling your blood sugar or protecting your gut and immune system. A well-planned gluten-free diet can be both nourishing and diabetes-friendly, especially with guidance from a knowledgeable dietitian who understands both conditions. It’s also deeply concerning that your symptoms—neurological issues, severe fatigue, GI distress, rashes, and more—are being dismissed. You’re not just describing discomfort; you’re describing a level of illness that’s life-altering, and your instincts that something is seriously wrong are absolutely worth trusting. You know your body better than anyone. You deserve a team that listens, believes you, and helps you build a realistic, sustainable path to healing. Whether it’s celiac disease, non-celiac gluten sensitivity, or something else, you have every right to go gluten-free permanently if that’s what makes you feel functional. Many people never get a “perfect” diagnosis but reclaim their health by honoring their own experience and choosing a path of least harm. You are not crazy, you are not weak, and you are not alone. Keep advocating for yourself—you and your daughter both deserve a healthier, more stable life.
    • Wheatwacked
      While a definitive causal link remains unclear, vitamin D's known role in immune modulation and intestinal barrier integrity suggests that it plays a significant role in the development and progression of celiac disease.  Reduced 25(OH)D levels are associated with celiac disease.  In celiac disease, gluten can damage these tight junctions, and vitamin D may play a protective role in this context. 
×
×
  • Create New...