Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Thought I Was A Little More Prepared Than This...


jitters

Recommended Posts

jitters Apprentice

Okay. My mom has been gluten free for about 10 years now. So I'm not brand new to all this. In fact, I thought I would be a lot more prepared for this. Now I'm realizing I'm totally overwhelmed and scared. I have been gluten free (well, okay I admit I have been cheating more and more lately) for four years. My symptoms are almost non existant so its sometimes hard to stay away from gluten when it doesn't make me sick. I would almost rather it made me extremely ill so it would be easier to stay away from it.

So- I got the results back on my three year old daughter today:

Gluten Sensitivity Stool Test

Fecal Antigliadin IgA 30 (Normal Range <10 Units)

Cow's Milk Protein Sensitivity Stool Test

Fecal anti-casein (cow


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

For the dairy, I've found nut milks are tremendously delicious. I really like them, and the nice part is they are easy to make, so you don't have to buy them. There are other sorts of milk too, such as rice, soy, etc. Dairy free cheeses are available, so check your local health food stores. One brand I know is Open Original Shared Link, but do watch the ingredients, as some products contain casein, and/or hidden MSG.

abigail Apprentice

you may ask to the doctor if a LActose FRee milk will also work for your kid.

good luck, and be strong!!

Abi

Nancym Enthusiast
you may ask to the doctor if a LActose FRee milk will also work for your kid.

good luck, and be strong!!

Abi

That won't help for a casein sensitivity. You have to avoid all dairy.

Nantzie Collaborator

Although I've seen much higher numbers, she's got about the same numbers as my kids did as far as gluten goes. They both showed a dramatic improvement in digestive issues AND behavior/mood issues on the gluten-free diet.

Nancy

jitters Apprentice
Although I've seen much higher numbers, she's got about the same numbers as my kids did as far as gluten goes. They both showed a dramatic improvement in digestive issues AND behavior/mood issues on the gluten-free diet.

Nancy

Thanks, thats what I was looking for. We've definitely had some mood issues lately, I'm really hoping the gluten free diet will help. It sure helps my mood!

shayesmom Rookie
My second question- how in the heck am I going to go dairy free with her? Cheese and milk is a food staple for her. In the back of my mind I always new that she had issues with dairy and gluten, but now I KNOW she does and I am responsible for keeping her healthy until she is old enough to understand this disease and make the right decisions regarding food.

The more and more I think about this, the more overwhelmed I am. I truly thought I was more prepared than this...

Anyone out there with children who are dairy and gluten free? Any tips for me?

My dd is gluten, dairy, soy and egg-free. We also severely restrict food colorings as there is a random reaction associated with them....but we haven't pinpointed which one.

There are a lot of good milk substitutes out there. We don't rely on just one kind, but rather, rotate them. For milk we use any of the following: rice milk, hemp milk, almond milk, hazelnut milk or Vance's Dari-free (potato). For recipes, I often will use coconut milk in lieu of milk or cream.

Cheese is a bit harder to replace because the alternative cheeses invariably contain casein. A while back, someone here posted some cashew cheese recipes. The recipe looked and sounded odd....but we've tried it and it's a very good cheese substitute. It makes a sliceable cheese or just a cheese sauce (a bit like Monterey in flavor). Although it doesn't hold up to heat for long and the texture isn't the same, the flavor is very good. My dd loves it on her pizza, tacos, etc..

Besides that, Enjoy Life makes a good allergen-free chocolate chip. Living Without magazine had a really good dairy/gluten/soy-free pudding recipe if you want an occasional treat.

In all honesty, the best place to look for recipes free of gluten and dairy would be on a paleo diet site. You also may have some luck if you look for raw food recipes or even vegan recipes. I've found that by combining the different techniques/substitutions on these sites that I can acheive a great amount of versatility. Most people don't notice that they are eating allergy-free over here.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.