Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

13 Yr Old New To Gf


yllehs91

Recommended Posts

yllehs91 Apprentice

Hi. I'm 13 yrs old and I was diagnosed w/ celiac disease 9/27/04. I'm going to see my doctor on Thurs, the 7th, and then to see the nutritionist. They think I've had this for probably about 8 years or so, bcuz of my symptoms i've had since i was 3. Any recipes, info., good websites or stores to buy gluten-free food, what NOT to eat, and anything else that will help me get started w/ my new lifestyle I'd really appreciate! I know it's going to be a big change for me, and I'm a very picky eater :-\ But i also know I'm going to have to live with it. So plz help me w/ this any way you can :) And if I can e-mail you about this if I ever need help w/ gluten-free things, plz leave ur e-mail on the post and I'll write u a.s.a.p.

--New Celiac Teen From Texas


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

I am not writing a lot right now but just wanted to say HELLLLO!!!!!!!!!

tarnalberry Community Regular

Easy things to make that I snack on or take for lunch (or for a scrounged up dinner...) (a lot of these aren't just carbs since I tend to be hypoglycemic)

rice cakes with peanut butter

apple with peanut butter

bean salads

hard boiled eggs

veggies with hummus or corn chips with guacamole

canned tuna with avocado

smoothies (soy milk and frozen fruit)

fruit!

For breakfast, I usually do either a smoothie or (recently) a combination of rice bran and quinoa flakes, which is tasty. For lunch, it's usually leftovers, tuna, or bean salads and much of what I listed above. For dinner, often baked meats with veggies and rice or potatoes, or stir fries, or sometimes gluten-free pasta with sauce, or soups or stews.

Have your parents decided how much of the family meals will be gluten-free, if any, or how all that will work? If your mom wants any cooking suggestions have her drop by. I don't know how much cooking/baking you get to do (I wasn't 13 that long ago, but just don't remember how much I was allowed to futz with in the kitchen... :-) ), but there are a lot of easy muffin recipes that I like to make use of if I'm not feeling too lazy.

celiac3270 Collaborator

--

celiac3270 Collaborator

Oh, I forgot to address your other questions.....

First off, the best place to start is probably the Open Original Shared Link. There's a lot of good information there including mainstream gluten-free products (i.e. certain Oscar Mayer products) and ingredient lists, which should be the first thing you print: Open Original Shared Link. I should probably let you know that Frito-Lays have a rather extensive list, which you can get here: Open Original Shared Link.

Finally, in determining if a food is gluten-free:

- Read the label and check for any bad ingredients

- Look for any flavors.....those could have gluten. If there are flavors, you need to call the company to find out unless the food has "Gluten-free" written on it. Additionally, Kraft will write all bad ingredients on their labels, so you never need to call about their products.

- I would suggest calling or e-mailing a lot of companies for their gluten-free lists. Just to save you some time, Kraft does not have one. Companies such as Haagen-Dazs will send you theirs in the mail. Atkins has a good gluten-free list, as well.

E-mail if you have any questions and good luck.....this must be slightly confusing, but I'll try to clarify anything that is difficult to understand.......

-celiac3270

P.S. There is nothing that will teach you faster than reading old posts on the board.....no book gives you more extensive information. Try to find old posts with other first-timers and see what replys they got. I learned so much, so fast, by reading all the old posts when I joined.

Guest gliX

I'm 15 and I was also diagnosed in September of 2004. At this point in time, I dont even think about it anymore. I know what to eat and what not to eat. I've actually found a LOT of foods that are really good. When I was first diagnosed I was eating foods that tasted like crap. But, the foods I eat now taste like the real stuff, and I can hardly tell the difference. So, if you have any questions about specific foods like pizza, waffles, etc, email me at glickman89@hotmail.com and I'll tell you what brand I get. I actually have about 5 stores that sell gluten-free food in my neighborhood. My cousins up in New York who also have celiac live in the same block as a gluten free only bakery its really good. : \

jsib Newbie

try www.clanthompson.com for a free demo of "regular"gluten free foods list. They have 6 gluten free kids. Lays chips phone #on bag. They sent coupons/ list. Most foods have phone numbers on the labels. Sorry not a teen will go back to my Mommy section


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



flagbabyds Collaborator

HI welcome, this is a great place!!! I'm 14 and was diagnosed when I was 20 months old so I have been living with this all my life, I'm in california, my e-mail adress is Open Original Shared Link my IM is missmolly3001 and e-mail me and i can help

  • 11 months later...
petlover Newbie

hello i am asia and i am pretty new to being gluten-free i notice it on july 31 2005 :( my little bothers bday at vally fair i hated it for a while then i became used to it.

bye

Asia

fisharefriendsnotfood Apprentice
HI welcome, this is a  great place!!! I'm 14 and was diagnosed when I was 20 months old so I have been living with this all my life, I'm in california, my e-mail adress is Open Original Shared Link my IM is missmolly3001 and e-mail me and i can help

<{POST_SNAPBACK}>

Hi! I'm Jackie and I'm also 14. I've been celiac all my life, since I was two years old. Want to talk sometime? I've only met one other celiac teen in my life before this, so I'd really appreciate it. Thanks!

  • 1 month later...
Holly04 Rookie

hello there :)

I'm thirteen years old and have had a gluten intolerance for a little over a year now. I can't really say its the funnest thing, but you learn to live with it. Most people think its going to be terrible and they're not going to be able to eat "normal" foods, but really there are so many amazing subsites from breads to pizzas. It really has changed my life, for the better. So I'm just sending some encouragment. The first month or so isn't the easiest, but trust me, you'll adapt. so just keep going and it will get a lot easier. trust me.

Good Luck,

Holly

gluten-free since May 7, 2004. ;)

PicturePerfect Explorer

Hey!

I am 13 years old. I haven't had Celiac for a long time (May 31, 2005) so I can't tell you much about it. :unsure: But, if you need ANY help at all.. just e-mail me and I'll try my best!!!!

Lisa

celiac3270 Collaborator

Wow--I am amazed. An increased population of celiacs around my age! :D (btw, that post is about a year old--I'm now 14, almost 15).

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,547
    • Most Online (within 30 mins)
      7,748

    gizmo1jazz2
    Newest Member
    gizmo1jazz2
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.