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Dh And My Sanity!

SarahCC

By SarahCC
in Dermatitis Herpetiformis

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SarahCC Rookie
SarahCC
Posted

Hi, I guess a little background since this is my first post EVER on any thing like this. I was diagnosed with Celiac Disease in 2005 and never really stuck to the diet until about a few months ago. About a year ago I started getting these rashes on the creases of my elbows and on my thighs. I didn't think about it, but long story short, it turned out to be DH. I have been going to the dr. and at first he gave me tetracycline and I had an allergic reaction to that, my neck swelled up and was extremely itchy to the point of pain. Then the Dr. gave me Dapsone only 50mg a day and two days ago the left side of my neck swelled a little, not to the level that it did before but is stil itchy and painful. My legs are covered in DH spots and rashes. I can't take this stupid itching anymore, I have been staying on a strict gluten free diet for about two months and it has only gotten worse. I was also perscribed a lotion triamcinolone acetonide and its pretty much worthless.I have tried almost every anit itch creame on the market and nothing is helping. I am about to lose my mind!! HA! Someone please give some advice or something. Thank you so much. By the way I am so excited that I found this site, I knew I wasnt the only person with this but i don't know anyone else and this place makes me feel not so alone in dealing with this! Thanks again.

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wowzer Community Regular
wowzer
Posted

I feel for you. Have you checked all your cosmetics, soaps, detergents, lotions etc.? I was using this Oil of Olay body wash only to find out it contained gluten. It was making me worse. I wish you luck. Also check your medications to make sure they are gluten free.

zagadka Newbie
zagadka
Posted

aww, that sucks.

i would suggest switching to all natural cosmetics and toiletries, but be careful! i just realized last night that i've been using Aveda for years and have had a very itchy scalp/ neck/ face on and offf...looked at the ingredients- BOOM... "wheat amino acids"...i'm totally bummed. i love aveda.

i googled "gluten free shampoo" last night and there are a few companies out there that manufacture many toiletries. good luck!

SarahCC Rookie
SarahCC
Posted
  • Author

You know that never even occured to me. I thought all I had to worry about was ingesting gluten! Great....lol Thanks for letting me know. Me and my legs appreciate it! :)

  • 2 weeks later...
jesse Newbie
jesse
Posted

what are some shampoos that are gluten free?

also, what are some detergents that are gluten free?

curious,

jdog

zkat Apprentice
zkat
Posted

Aubry Organics makes gluten free shampoos and conditioners. The conditioner is very heavy and hard to rinse out of my hair, so I switched to Desert Essence-they have an entire line of gluten free products, including lotions, shampoo, conditioners and other styling products. They smell very yummy too.

For soaps, I just use oatmeal soap, I can't think of the brand, but it works well. I use it to wash my face every day and it works better than the expensive stuff I used to use.

I know there are some mainstream products that are gluten free, but I prefer the all natuarl products.

glutenfreenew Rookie
glutenfreenew
Posted

i have major dh problems as well. I find that all of toms of maine products are wonderful and also i find that neutragena works well as far as make up , face wash and shampoo and conditioner. you can also order a catalog from csa at 1-877-csa-4csa. its about 30 dollars and will give you an entire book that gives you gluten free items from health care to any type of food you can think up. totally worth it :lol: try to watch labels for anything with wheat in them and avoid. hope this was helpful . feel free to pm if you want any more help, i have been dealing with this for about a year and it is so frustrating :( as for detergents i am ok with arm and hammer baking soda detergent that is perfume free and bounce dye free and perfume free dryer sheets.

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casnco Enthusiast
casnco
Posted
Hi, I guess a little background since this is my first post EVER on any thing like this. I was diagnosed with Celiac Disease in 2005 and never really stuck to the diet until about a few months ago. About a year ago I started getting these rashes on the creases of my elbows and on my thighs. I didn't think about it, but long story short, it turned out to be DH. I have been going to the dr. and at first he gave me tetracycline and I had an allergic reaction to that, my neck swelled up and was extremely itchy to the point of pain. Then the Dr. gave me Dapsone only 50mg a day and two days ago the left side of my neck swelled a little, not to the level that it did before but is stil itchy and painful. My legs are covered in DH spots and rashes. I can't take this stupid itching anymore, I have been staying on a strict gluten free diet for about two months and it has only gotten worse. I was also perscribed a lotion triamcinolone acetonide and its pretty much worthless.I have tried almost every anit itch creame on the market and nothing is helping. I am about to lose my mind!! HA! Someone please give some advice or something. Thank you so much. By the way I am so excited that I found this site, I knew I wasnt the only person with this but i don't know anyone else and this place makes me feel not so alone in dealing with this! Thanks again.

Sorry you are so miserable. I can totally relate. I am seeing an herbalist today because my DH is out of control. I tried all of the meds you mentioned and have had allergic reactions. I use CALMOSEPTINE barrier cream for my DH. You can order it through your pharmasist.(sp) or go to www.calmoseptine.com Good luck. keep us posted on your successes with DH

  • 3 weeks later...
Drew Newbie
Drew
Posted

I have DH. I was mystified by continued sores even after going gluten-free. It turns out that also avoiding Corn, Soy, and Cow Dairy makes my skin go clear finally ! Also, no chocolate and no coffee. I think its worth a try because DH is a nightmare. Good Luck

  • 2 weeks later...
ariesmama Newbie
ariesmama
Posted
I feel for you. Have you checked all your cosmetics, soaps, detergents, lotions etc.? I was using this Oil of Olay body wash only to find out it contained gluten. It was making me worse. I wish you luck. Also check your medications to make sure they are gluten free.

I never knew that soaps could contain gluten in them...Myself, I swear by Olay moisturinse, it's a lotion that you spread on your skin, then rinse off, and it stopped the itching in my arms and legs the first time I used it...I don't know if it has any gluten in it, but it sure works for me, I won't be without it now...

wowzer Community Regular
wowzer
Posted

I would check the ingredients on your Oil of Olay. I was using their hypoallergenic body wash with aloe. Turns out it had gluten in it. It did feel comforting when I showered, but my rashes just kept getting worse. It took me awhile to figure out that it was causing me a lot of problems.

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      how much gluten do I need to eat before blood tests?

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