Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Is This Just Wishful Thinking?


EVERYBODY'SAUNTIE

Recommended Posts

EVERYBODY'SAUNTIE Rookie

Hi , I just read an article in womans world magazine about gluten sensitivity and weight loss and it piqued my interest, so here I am. I am 34 years old. I developed alopecia (autoimmune disorder where your hair fall out in clumps) at age 13 and all my hair fell out by the time I was 20. Over the years my weight has gone steadily up. Lo carb worked for awhile but not anymore. I still try to eat that way tho because if I don't I feel pure wretched and have bad cravings. Also, I was diagnosed with fibromyalgia 6 years ago and continue to struggle with it in varying degrees of severity.

My question is: Have I maybe, finally found the missing piece? Is there anyone else out there with similar experiences who can attest to the validity of this way of eating? I have reached a point of desperation and am afraid to get my hopes up too high. Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jnclelland Contributor

Welcome! If you browse this web site for awhile, you'll learn lots about gluten intolerance/celiac disease.

The short answer is that yes, all the symptoms you mention can be signs of gluten intolerance/celiac disease, although they can certainly have other causes as well. You certainly would have nothing to lose by trying a gluten-free diet and seeing if it helps you feel better!

One word of caution, though: if you want any kind of official diagnosis, you have to be eating gluten - and lots of it - for the standard tests to turn up positive. So you might want to talk to your doctor about getting tested before you try the diet. That said, the tests have a high false negative rate, so regardless of the results of any testing, it's worth trying the diet to see if it helps.

I'm sure you'll get lots of advice here, but my top few tips about starting the diet would be:

1) There's a steep learning curve at first; gluten hides in all sorts of places that you'd never imagine. Hanging out here is probably the best way of learning the ropes!

2) You need to give the diet time - a few months, at least - before you can really judge whether or not it's helping. Some people see results right away, but many don't for awhile.

Good luck! :)

Jeanne

Fiddle-Faddle Community Regular

Welcome!

I just wanted to add that if you check the list of symptoms for fibro and the list of symptoms for celiac disease--they are practically identical. Many people on this board have seen their fibro symptoms completely disappear when they stay on a gluten-free diet.

And I remember seeing posts from at least 2 women whose hair did grow back when they stayed off gluten, but it took a long time, as I remember. I do hope it works for you!

Nantzie Collaborator

Welcome!

I had fibro-type pain symptoms for about three years before I figured out the gluten connection. Mine went away after I went gluten-free. Poof! Now the only time I have it is if I get "glutened".

Since you've already been eating low carb for a while I'd seriously doubt any tests would come back positive. They say you have to eat the equivalent of 3-4 slices of bread a day for 3-4 months. So at this point, you might want to just try the diet and see how it goes.

I also got really bad cravings, and one of the things I was able to look back on as an A-ha! was a diet I had been on that had cut out wheat.

Nancy

kbtoyssni Contributor

I'm another one who was diagnosed with fibromyalgia whose symptoms have disappeared after going gluten-free. If you do have celiac, gluten is like an addictive drug to your system so going low carb can cause you to crave gluten and feel really awful withdrawal symptoms. They will go away if you stick with the diet for a bit. Autoimmune diseases also come in pairs (or triples, or quads...) so I'd say you're a perfect candidate for celaic. I think you should get tested, but remember there are a lot of false negatives. If you do get a negative from conventional testing, you might want to try the diet just in case.

EVERYBODY'SAUNTIE Rookie

Thanks everyone, for your input. I dare say I feel just a little bit of hope for the first time in a long time. here goes nothin'..... :P:P:P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,203
    • Most Online (within 30 mins)
      7,748

    Sarahmegan
    Newest Member
    Sarahmegan
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.