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familyfirst

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familyfirst Rookie

My son has not been offically dx for celiac disease. However, I'm not waiting around. I was wanting to know any suggestions that will help me save HOURS at the store when I go earlier next week. I know that it can be expensive. I don't want to spend my whole night at the store looking for gluten-free food. Is there a cheat sheet that I can look at to help my decisions? Also, I am a working mom of 3, so time cooking is limited. HELP me out please! I have enjoyed reading and learning about celiac disease in this forum. I look forward to learning a lot more for my family's sake.

Beth


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MySuicidalTurtle Enthusiast

Well, to start with you can always make things that are naturally gluten-free while you get used to the do's, don'ts, and the tastes-bads. Some stores have cheat-sheets but you still have to read the lable- that is essential! For bread the consensus is Kinnikinnick brand. For other things that everyone can eat and might like: I enjoy Lundberg brand Risotto (you can do them stove top or microwave, and they are delicious and microwaving them is easier); my Mother enjoys making lasagna with Organ lasagna noodles; she also likes making chicken noodle soup with rice instead of noodles since so that my father will eat it, too; pretty much anything Glutino brand my family has had (three of us are Celiacs) has been wonderfuly good- their pretzels, frozen meals, and such except for their breadsticks (yuck!); my family also enjoys pretty much anything from Kinnikinnick, too; and Whole Foods Bakery brand is good as well. Gluten-free is expensive but it does not have to be. A lot of things, like fruits, veggies, and meats, are naturally gluten-free. Good luck to you and your son, Beth. Oh, a tastes-bad from my family to yours is anything from Enjoy Life brand. If we see something from theirs that looks tempting we usually put it down because everything else we have tried has been nasty!

mcsteffi Rookie

Do you plan on going to a health food store or a regular grocery store? We go to both, from the health food store we get bread, snacks, cereal, cookies and the reg. store everything else. Like for spaghetti I get the noodles from Earthfare and everything else from Food Lion. Its very time consuming.

Ask your health food store if they have a gluten-free list and my store even has a person that will help you shop for gluten free. Some of the things my 3 year old has liked... gluten-free Amy's rice mac n cheese (frozen), Tinkyada rice pasta is very good, Mi-Del cookies, and any of the envirokidz brand food. Envirokidz has very good cereal and snack bars. Glutino pretzels and frozen cheese pizzas. You might need to try a little at a time to see what you child will eat. This stuff is good but it is NOT the same as regular food. Luckily my child is only 3 and doesnt know the difference.

Let me know if I can help with anything else.

Stephanie

ArtGirl Enthusiast

The home site of Celiac.com has a few lists that are helpful

Safe and Forbidden Foods

You have to click on the link at the end of each line.

The safest, and cheapest, way to go is to fix meals and snacks that are naturally gluten-free, and then expand your foods as your knowledge increases. Some of the gluten-free substitutes aren't worth the money for the poor taste and textures.

mandasmom Rookie
The home site of Celiac.com has a few lists that are helpful

Safe and Forbidden Foods

You have to click on the link at the end of each line.

The safest, and cheapest, way to go is to fix meals and snacks that are naturally gluten-free, and then expand your foods as your knowledge increases. Some of the gluten-free substitutes aren't worth the money for the poor taste and textures.

I would definetly start wiht foods that are naturally gluten-free and choose one or two specialty items to start with..the taste goods and yucks very from family to family so you will have to experiment a bit. Most kids like just a few things anyway..

mcsteffi Rookie

OH, and make a list as you go of what you like and what you dont like. It helps and then you dont have to rely on your memory! I saw on this board some where to put a list inside your pantry to write the likes and dislikes on. That helped us when we first started. My kid is a streak eater anyway, so while he was stuck on the same thing for a week I would search for something else.

Stephanie

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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
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      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
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