Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

No Relief From gluten-free Diet...


PianoMan99

Recommended Posts

PianoMan99 Newbie

Hi everyone,

I have been gluten free for 10 days and have experienced no change in my symptoms of consistent dull nausea in my upper stomach and eczema on my inner elbows. I have been struggling with this for almost a year and a half and am about out of options (having had almost every medical test imagineable with negative results). I did have about a 3 month repreieve where I found my symptoms dissapeared as long as I did not eat chicken. Although it make no difference anymore, I cannot help but think that chicken may be involved in some way... anyone have any ideas?

I typically feel better in the morning and the nausea begins around late morning/afternoon or right after lunch. Since I haven't noticed that it makes any difference what I eat, do you think it's possible that my stomach is just sensitive to all food? Due to the eczema especially, I have this strong hunch I am intolerant so some food, just have yet to figure out what it is.

I am really sick and tired of feeling sick and tired. Thanks so much for all your input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
Hi everyone,

I have been gluten free for 10 days and have experienced no change in my symptoms of consistent dull nausea in my upper stomach and eczema on my inner elbows. I have been struggling with this for almost a year and a half and am about out of options (having had almost every medical test imagineable with negative results). I did have about a 3 month repreieve where I found my symptoms dissapeared as long as I did not eat chicken. Although it make no difference anymore, I cannot help but think that chicken may be involved in some way... anyone have any ideas?

I typically feel better in the morning and the nausea begins around late morning/afternoon or right after lunch. Since I haven't noticed that it makes any difference what I eat, do you think it's possible that my stomach is just sensitive to all food? Due to the eczema especially, I have this strong hunch I am intolerant so some food, just have yet to figure out what it is.

I am really sick and tired of feeling sick and tired. Thanks so much for all your input.

I am sorry that you are not feeling better, but 10 days is a relatively short period of time. After I was diagnosed, it took about 2 months so feel significant improvements. Early into the diet, many people have a problem with dairy and it is suggested to limit or eliminate it from your diet for a while.

Double check everything you are doing. Keep a food journal. Check you lotions, mouthwash, shampoo, shave cream, medications, antacides, vitamines, etc.

Jestgar Rising Star

It might be time for a full-on, naturopath supervised elimination diet. Or if someone here has a designed diet that they're willing to share.

PianoMan99 Newbie

Thank you for your replies. Yes I have tried an elimination diet before without being able to find any culprits. However, it was not professionally supervised. My ND, however, did suggest a full course of probiotic suppliments, which also did not help.

Jestgar Rising Star

Hmmm, some chemical in your environment that you're allergic to? Mold? Your laundry soap? Bath soap?

ravenwoodglass Mentor
Thank you for your replies. Yes I have tried an elimination diet before without being able to find any culprits. However, it was not professionally supervised. My ND, however, did suggest a full course of probiotic suppliments, which also did not help.

First you need to make sure you are really eating gluten free, are you consuming processed foods? If you are then you need to stop for a couple months and choose whole foods that are naturally gluten free. Have you checked all your meds, including OTC meds? Generic scripts can be risky make sure your pharmacist checks everything. Are you drinking alcohol? If so you need to stop until you are healed.

If you have your doubts about needing the gluten-free diet you may want to find an allergist (MD) to guide you through a true elimination diet. You start out with about 5 foods, your allergist will skin test you and give you a questionairre to fill out to determine what those 5 foods will be, no spices, no beverages other than water. Once your symptoms have resolved he would then have you add in foods one at a time, in pure form. It is very time consuming but when done correctly, and most folks do eliminations backwards, an excellent way to find food intolerances.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,660
    • Most Online (within 30 mins)
      7,748

    MandyK
    Newest Member
    MandyK
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I don't see how cornstarch could alter the test results. Where did you read that?
    • knitty kitty
      For pain relief I take a combination of Thiamine (Benfotiamine), Pyridoxine B 6, and Cobalamine B12.  The combination of these three vitamins has analgesic effects.  I have back pain and this really works.  The B vitamins are water soluble and easily excreted.   Hope this helps!  Keep us posted on your results!
    • knitty kitty
      Welcome to the forum, @Xravith. I experienced similar symptoms before my diagnosis.  Mine were due to the loss of vitamins and minerals, essential nutrients we must get from our food.  With Celiac Disease, the intestinal lining, made up of thousands of villi, gets damaged and cannot absorb essential vitamins and minerals, especially the eight B vitamins.  The loss of Thiamine B 1 can cause muscle loss, inability to gain weight, edema (swelling), fatigue, migraines and palpitations.  Low thiamine can cause Gastrointestinal Beriberi with symptoms of nausea, abdominal pain and bloating.   Thiamine is only stored for a couple of weeks, so if you don't absorb enough from food daily, as the thiamine deficiency worsens physical symptoms gradually worsen.  If you're eating lots of carbs (like gluten containing foods usually do), you need more thiamine to process them (called high calorie malnutrition).  Thiamine works with all the other B vitamins, so if you're low in one, you're probably getting low in the others, too, and minerals like iron, magnesium, zinc, and calcium, as well as Vitamin D..  Talk to your doctor about checking for nutritional deficiencies.  Most doctors rarely recognize vitamin deficiency symptoms, especially in thiamine. Get a DNA test to see if you carry any Celiac genes.  If you do not have genetic markers for Celiac, it's probably IBS.  If you do have genetic markers for Celiac, it's probably Celiac.  I was misdiagnosed with IBS for years before my Celiac diagnosis.   Keep us posted on your progress. P. S. Deficiency in thiamine can cause false negatives on antibody tests, as can diabetes and anemia.  
    • Julie 911
      No she didn't because if I want to ask I have to pay 700$ for 1 hour appointment so I couldn't even ask. I read that fillers like cornstash can alter the result and tylenol contains it so that's why I tried to find someone who can answer. 
    • trents
      Did the GI doc give you any rational for stopping the Tylenol during the gluten challenge? I have never heard of this before and I can't imagine a good reason for it. Ibuprofen, maybe, because it is an anti inflammatory but acetaminophen?  I don't see that it would have any impact on the test results to take Tylenol.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.