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Well I Did It...

sarahelizabeth

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sarahelizabeth Contributor
sarahelizabeth
Posted

I took the plunge and went to the Dr today and requested to be tested for celiac. :blink: I have to say the Dr was awesome!! He was referred to me by my inlaws who have VERY different opinions of medical professionals than I do. :rolleyes: I'd only seen him once before for eczema related issues and he'd left no major impression on me one way or another. Well I went in today and told him my symptoms and that both of my children were being tested and he immediately ordered the tests no questions asked.

He even said whatever Dr had labeled me with IBS years ago should have tested me then. :o He said that IBS is a crap diagnosis that just allows Drs to quit thinking!!! He referred to it as a "land mine" diagnosis saying that you can be fine for years and then BAM something serious pops up that had really been there all along and you ignored it under the disguise of "IBS" :o Totally shocked me to hear him say that!!

He drew about a pint of blood I swear (did full celiac panel as well as CBC, Chem 12, thyriod functions, and a few others just to be thorough) and referred me to a GI specialist. He said even if the blood work comes back negative he wants me to get a biopsy anyway.

I was totally amazed... I was expecting to walk in there and have him brush me off and be a real jerk like most Drs are... but he wasn't he was AWESOME!!

So now I just sit back and wait for the results... he said it could be 7-10 days before we hear back since those tests aren't run everyday. :blink: Man I hate waiting!!

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wolfie Enthusiast
wolfie
Posted

Sounds like a fantastic doctor! I hope you get some answers soon!

Nantzie Collaborator
Nantzie
Posted

He sounds wonderful!! What a dream. A knowledgeable doctor, WITH strong opinions in our favor.

There's a Doctors section here. If you could do a new post in that area and let us know his name and location, it could be helpful to others in the future. Sometimes that's the hardest part about the pre-diagnosis period. Doctors are getting better, but it's still such a crapshoot. There might be someone else in your area who is looking for a doctor.

Nancy

sarahelizabeth Contributor
sarahelizabeth
Posted
  • Author
He sounds wonderful!! What a dream. A knowledgeable doctor, WITH strong opinions in our favor.

There's a Doctors section here. If you could do a new post in that area and let us know his name and location, it could be helpful to others in the future. Sometimes that's the hardest part about the pre-diagnosis period. Doctors are getting better, but it's still such a crapshoot. There might be someone else in your area who is looking for a doctor.

Nancy

Honeslty I am not sure how much he knows about celiac per se... he had to look up the whole panel of blood work before he ordered it becuase he says its not something he does very often. I just think he was a good Dr in general... not willing to just sit back and make a "junk" diagnosis.

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      By StuartJ · Posted

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      Unfortunately, the development of celiac disease usually is not an end in and of itself. It usually brings along friends, given time. It is at heart an immune system dysfunction which often embraces other immune system dysfunctions as time goes on.
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