Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Well I Did It...

sarahelizabeth

Recommended Posts

sarahelizabeth Contributor
sarahelizabeth
Posted

I took the plunge and went to the Dr today and requested to be tested for celiac. :blink: I have to say the Dr was awesome!! He was referred to me by my inlaws who have VERY different opinions of medical professionals than I do. :rolleyes: I'd only seen him once before for eczema related issues and he'd left no major impression on me one way or another. Well I went in today and told him my symptoms and that both of my children were being tested and he immediately ordered the tests no questions asked.

He even said whatever Dr had labeled me with IBS years ago should have tested me then. :o He said that IBS is a crap diagnosis that just allows Drs to quit thinking!!! He referred to it as a "land mine" diagnosis saying that you can be fine for years and then BAM something serious pops up that had really been there all along and you ignored it under the disguise of "IBS" :o Totally shocked me to hear him say that!!

He drew about a pint of blood I swear (did full celiac panel as well as CBC, Chem 12, thyriod functions, and a few others just to be thorough) and referred me to a GI specialist. He said even if the blood work comes back negative he wants me to get a biopsy anyway.

I was totally amazed... I was expecting to walk in there and have him brush me off and be a real jerk like most Drs are... but he wasn't he was AWESOME!!

So now I just sit back and wait for the results... he said it could be 7-10 days before we hear back since those tests aren't run everyday. :blink: Man I hate waiting!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


wolfie Enthusiast
wolfie
Posted

Sounds like a fantastic doctor! I hope you get some answers soon!

Nantzie Collaborator
Nantzie
Posted

He sounds wonderful!! What a dream. A knowledgeable doctor, WITH strong opinions in our favor.

There's a Doctors section here. If you could do a new post in that area and let us know his name and location, it could be helpful to others in the future. Sometimes that's the hardest part about the pre-diagnosis period. Doctors are getting better, but it's still such a crapshoot. There might be someone else in your area who is looking for a doctor.

Nancy

sarahelizabeth Contributor
sarahelizabeth
Posted
  • Author
He sounds wonderful!! What a dream. A knowledgeable doctor, WITH strong opinions in our favor.

There's a Doctors section here. If you could do a new post in that area and let us know his name and location, it could be helpful to others in the future. Sometimes that's the hardest part about the pre-diagnosis period. Doctors are getting better, but it's still such a crapshoot. There might be someone else in your area who is looking for a doctor.

Nancy

Honeslty I am not sure how much he knows about celiac per se... he had to look up the whole panel of blood work before he ordered it becuase he says its not something he does very often. I just think he was a good Dr in general... not willing to just sit back and make a "junk" diagnosis.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,590
    • Most Online (within 30 mins)
      7,748
    Sandra G
    Newest Member
    Sandra G
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • amantelchi
      Stomach hurts with movement

      By amantelchi · Posted

      I'd like to clarify: Is the pain you describe in the area just below your chest constant, or does it only appear when you start moving?
    • Jmartes71
      Shingles - Could It Be Related to Gluten/ Celiac

      By Jmartes71 · Posted

      Shingles is dormant and related to chicken pox when one has had in the past.Shingles comes out when stress is heightened.I had my 3rd Shingles in 2023.
    • knitty kitty
      Shingles - Could It Be Related to Gluten/ Celiac

      By knitty kitty · Posted

      Here's one more that shows Lysine also helps alleviate pain! Exploring the Analgesic Potential of L-Lysine: Molecular Mechanisms, Preclinical Evidence, and Implications for Pharmaceutical Pain Therapy https://pmc.ncbi.nlm.nih.gov/articles/PMC12114920/
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      Thank you for the links to the articles.  Interesting reading. I'll be telling my brother in law because he has a lot of pain
    • Scott Adams
      gluten-free Oatmeal

      By Scott Adams · Posted

      Oats naturally contain a protein called avenin, which is similar to the gluten proteins found in wheat, barley, and rye. While avenin is generally considered safe for most people with celiac disease, some individuals, around 5-10% of celiacs, may also have sensitivity to avenin, leading to symptoms similar to gluten exposure. You may fall into this category, and eliminating them is the best way to figure this out. Some people substitute gluten-free quinoa flakes for oats if they want a hot cereal substitute. If you are interested in summaries of scientific publications on the topic of oats and celiac disease, we have an entire category dedicated to it which is here: https://www.celiac.com/celiac-disease/oats-and-celiac-disease-are-they-gluten-free/   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.