Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Well I Did It...


sarahelizabeth

Recommended Posts

sarahelizabeth Contributor

I took the plunge and went to the Dr today and requested to be tested for celiac. :blink: I have to say the Dr was awesome!! He was referred to me by my inlaws who have VERY different opinions of medical professionals than I do. :rolleyes: I'd only seen him once before for eczema related issues and he'd left no major impression on me one way or another. Well I went in today and told him my symptoms and that both of my children were being tested and he immediately ordered the tests no questions asked.

He even said whatever Dr had labeled me with IBS years ago should have tested me then. :o He said that IBS is a crap diagnosis that just allows Drs to quit thinking!!! He referred to it as a "land mine" diagnosis saying that you can be fine for years and then BAM something serious pops up that had really been there all along and you ignored it under the disguise of "IBS" :o Totally shocked me to hear him say that!!

He drew about a pint of blood I swear (did full celiac panel as well as CBC, Chem 12, thyriod functions, and a few others just to be thorough) and referred me to a GI specialist. He said even if the blood work comes back negative he wants me to get a biopsy anyway.

I was totally amazed... I was expecting to walk in there and have him brush me off and be a real jerk like most Drs are... but he wasn't he was AWESOME!!

So now I just sit back and wait for the results... he said it could be 7-10 days before we hear back since those tests aren't run everyday. :blink: Man I hate waiting!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



wolfie Enthusiast

Sounds like a fantastic doctor! I hope you get some answers soon!

Nantzie Collaborator

He sounds wonderful!! What a dream. A knowledgeable doctor, WITH strong opinions in our favor.

There's a Doctors section here. If you could do a new post in that area and let us know his name and location, it could be helpful to others in the future. Sometimes that's the hardest part about the pre-diagnosis period. Doctors are getting better, but it's still such a crapshoot. There might be someone else in your area who is looking for a doctor.

Nancy

sarahelizabeth Contributor
He sounds wonderful!! What a dream. A knowledgeable doctor, WITH strong opinions in our favor.

There's a Doctors section here. If you could do a new post in that area and let us know his name and location, it could be helpful to others in the future. Sometimes that's the hardest part about the pre-diagnosis period. Doctors are getting better, but it's still such a crapshoot. There might be someone else in your area who is looking for a doctor.

Nancy

Honeslty I am not sure how much he knows about celiac per se... he had to look up the whole panel of blood work before he ordered it becuase he says its not something he does very often. I just think he was a good Dr in general... not willing to just sit back and make a "junk" diagnosis.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Second chance

    2. - trents replied to colinukcoeliac's topic in Gluten-Free Restaurants
      13

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

    3. - Scott Adams replied to JamieAnn's topic in Gluten-Free Restaurants
      2

      Jersey Mike’s option: Gluten-free bread

    4. - cristiana replied to colinukcoeliac's topic in Gluten-Free Restaurants
      13

      What should I expect from a UK restaurant advertising / offering "Gluten Free" food

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,521
    • Most Online (within 30 mins)
      7,748

    CA1
    Newest Member
    CA1
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, I'm I crazy, nieve, or atomistic? I reached out to my former pcp of 25 years on the medical app today.Reading on the National Library of Medicine 75.6  physicians don't know celiac disease.To be fair he is primary and with the lack of knowledge, I did reach out because he was my Dr for 25 years.I do prefer his app than the one I currently have that was ignite of the disability celiac circus name chaser thanks to the one that  I currently have Since May 31, 2025 to present.
    • trents
      @cristiana, I'm thinking the intensity of our response to the same amount of gluten can vary from time to time. Our bodies are a dynamic entity. 
    • Scott Adams
      I'm going to try Jersey Mike's soon--we have one nearby. Thanks for sharing!
    • cristiana
      Hi @trents Two things can happen:  1/ For a very small gluten hit, I will get a slightly sore stomach for a few days, maybe a day or two following the glutening, and (TMI warning) maybe slightly loose BMs with mucus  for a couple of days.  2/ For a substantial glutening, and thankfully it's only happened once in recent years,  I get bad chills, followed by vomiting, and my heartbeat is all over the place and I can hardly stand.  It's pretty extreme.  That happens within about 2 hours of eating the gluten.  I might feel slightly dizzy for a couple of days after the glutening episode. Interestingly I've just been out to a cafe which hitherto has made a big thing about how their french fries are cooked in a separate fryer.  I shared some with a friend and they were served with chilli sauce, jalapenos, cheddar cheese and fried onions.  Definitely not health food!  Anyway,  I'd eaten half when I realised I'd not checked the menu to ensure that this dish is still gluten-free - and it turns out it isn't!!!  They've changed the ingredients and the fried onions are now cooked with wheat.   I came home expecting to feel dreadful as I had no idea how much gluten I have consumed but so far if anything I feel just little queasy.  I think I'd have thrown up by now had there been a lot of gluten in the onions.  
    • trents
      It might be wise to start him on small amounts and work up to 10g. Monitor how he reacts. Some people simply cannot complete the gluten challenge because it makes them too ill. By the way, you can buy powdered gluten in health food stores, at least here in the states you can. With a food scale, it would be easy to measure the amount being consumed in a day. I'm not sure what the intensity of reaction to gluten tells you about what's actually going on with regard to celiac disease. I mean there are some celiacs like me who don't seem to react to minor exposure amounts but who get violently ill with larger exposures. Then there are celiacs who get some kind of reaction to even the tiniest amount of exposure but don't necessarily get violently ill. And how the reaction manifests itself is very different for different people. Some, like me, experience emesis and diarrhea. Others just get brain fog. Others get joint pain. It's all over the map.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.