Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test


Niteyx13

Recommended Posts

Niteyx13 Explorer

Hi all! It has been at least a month since I have posted in here. I have been back on the gluten diet for almost 2 months, and I am utterly misearable! I had my blood test today, and I should have my results by friday. If they are positive ::praying they are because I am sick and tired, and I just want to know what is wrong with me once and for all:: I am going to assume I am a celiac - without the endoscope. My son is having tummy troubles, and his dad has said he will accept a blood test diagnosis from me, and has agreed that we can get our son tested if that is the case. Yay!

Wanna know something scary? I read an article on Ovarian cancer, and the symptoms are almost exact to celiac disease (and of course all the other diseases that celiacs are mis-diagnosed with). It was very scary, but I realize that I have had these problems far too long; I would be dead by now if it were cancer. But, I really hope awareness is raised on celiac disease AND ovarian cancer - since there are so many ongoing problems from celiac disease, and since Ovarian cancer is very hard to find in the early stages.

Anyway, hope all is going well with everyone! God Bless! :P

Deanna


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarolynM Newbie

Deanna

Praying for your physical and mental health - hope you get some answers. Have you returned to a Gluten-Free diet - maybe some relief?

Niteyx13 Explorer

I am going gluten-free again after the weekend. My husband is taking me out to my favorite italian restaurant, and I am entertaining some friends tonight. I am actually excited to get back gluten-free again, and even if my blood test is negative I will stay gluten-free. Thanks!

Deanna

:)

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,204
    • Most Online (within 30 mins)
      7,748

    JaymeC
    Newest Member
    JaymeC
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease is the most likely cause, but here are articles about the other possible causes:    
    • xxnonamexx
      Please read: https://www.fda.gov/news-events/press-announcements/fda-takes-steps-improve-gluten-ingredient-disclosure-foods?fbclid=IwY2xjawPeXhJleHRuA2FlbQIxMABicmlkETFzaDc3NWRaYzlJOFJ4R0Fic3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHrwuSsw8Be7VNGOrKKWFVbrjmf59SGht05nIALwnjQ0DoGkDDK1doRBDzeeX_aem_GZcRcbhisMTyFUp3YMUU9Q
    • cristiana
      Hi @Atl222 As @trents points out, there could be many reasons for this biopsy result.  I am interested to know, is your gastroenterologist concerned?  Also, are your blood tests showing steady improvement over the years? I remember when I had my last biopsy, several years after diagnosis, mine came back with with raised lymphocytes but no villous damage, too! In my own case, my consultant wasn't remotely concerned - in fact, he said I might still get this result even if all I ever did was eat nothing but rice and water.   My coeliac blood tests were still steadily improving, albeit slowly, which was reassuring.
    • trents
      Welcome to the celiac.com community, @Atl222! Yes, your increased lymphocytes could be in response to oats or it could possibly be cross contamination from gluten that is getting into your diet from some unexpected source but not enough to damage the villi. And I'm certain that increased lymphocytes can be caused by other things besides celiac disease or gluten/oats exposure. See attachment. But you might try eliminating oats to start with and possibly dairy for a few months and then seek another endoscopy/biopsy to see if there was a reduction in lymphocyte counts. 
    • Scott Adams
      This is a solid, well-reasoned approach. You’re right that “koji” by itself doesn’t indicate gluten status, and the risk really does come down to which grain is used to culture it. The fact that you directly contacted Eden Foods and received a clear statement that their koji is made from rice only, with no wheat or barley, is meaningful due diligence—especially since Eden has a long-standing reputation for transparency. While the lack of gluten labeling can understandably give pause, manufacturer confirmation like this is often what people rely on for traditionally fermented products. As always, trusting your body after trying it is reasonable, but based on the information you gathered, your conclusion makes sense.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.