Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ny Timies Health Page


phakephur

Recommended Posts

phakephur Apprentice

There is an Open Original Shared Link about gluten free diet. No new information.

The link may not work if you don't have an account.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



eleep Enthusiast

Oh, I kind of just want to smack them for not mentioning more specifics about why it's so hard to diagnose and what the specifics of the controversy are.

mandasmom Rookie
Oh, I kind of just want to smack them for not mentioning more specifics about why it's so hard to diagnose and what the specifics of the controversy are.

I actually think it was a really good article.

spunky Contributor

Well it's interesting, and probably informative...but, I feel somewhat irritated at the tone of the article in general. Being undiagnosed, mostly because I have no faith in doctors and am accustomed to dealing with problems on my own, I am quite sure by this time that I do have celiac disease, but have no "doctor proof" on paper. It's kind of embarrassing to me to think that people who know I avoid gluten may get the idea that this is some hypochondriacal, "alternative" trend or something, and not take me seriously, either for all the suffering I've been through or all the care I now KNOW I need to take in choosing my foods.

There seems to be this double-edged message: Yes, on the one hand, celiac is much more common than previously believed, and more and more people seem to be gettting it--and on the other hand, hypochondriacs who read a lot are having some sort of psychotic episode, IMAGINING that they have this trendy disorder.

eleep Enthusiast
Oh, I kind of just want to smack them for not mentioning more specifics about why it's so hard to diagnose and what the specifics of the controversy are.

Yes, it was a really good article in a lot of ways. I may just idealize the Times a bit too much and have gotten my hopes up about the extent to which they might be able to call attention to the whole thing in all its complexity. It's just really good that this made the Times! Celiac has gotten so much amazing publicity in a very short amount of time.

They mention latent forms of the illness and they mention depression, which are both very important aspects of the issue.

kbtoyssni Contributor

I thought it was a good article. I liked that they addressed the fact that some people are using it to lose weight when they don't have the disease, that testing isn't accurate if you've gone gluten-free, the last quote about it not being so bad to go gluten-free. Yes, there are some things they could have added and I wasn't too excited about gluten-free being a "fad", but I don't expect one article to contain everything - it would be twenty pages long! They packed a lot of info into this relatively short article.

ENF Enthusiast

I'm really happy about this article - many more people will hear about Celiac because of it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mookie03 Contributor
I thought it was a good article. I liked that they addressed the fact that some people are using it to lose weight when they don't have the disease, that testing isn't accurate if you've gone gluten-free, the last quote about it not being so bad to go gluten-free. Yes, there are some things they could have added and I wasn't too excited about gluten-free being a "fad", but I don't expect one article to contain everything - it would be twenty pages long! They packed a lot of info into this relatively short article.

Funny, i laughed when they talked about using the diet to lose weight because you cant eat twinkies - i for one ate healthy before the diet and now i eat much more sugar, carbs, etc. b/c the gluten-free substitutes are simply not as healthy as their gluten-filled counterparts. I didn't love the tone of the article - i was thinking that if i didnt know anything about gluten i would have thought it was some weird fad or something. The writer seemed to think that people are blaming gluten for everything, when really i think a bigger problem is the lack of knowledge about gluten.

But, publicity is publicity. Great to see gluten in the times!

ekdumas19 Apprentice

I was totally put off by this article. It barely touched on the symptoms or the struggles of people with celiac disease. Eating even small traces of gluten entirely interupts my life, its not just a nuisance. And by saying that gluten free products are practically on every shelf, it makes it seem like its not big deal. Well its a big deal to me! I mean yeah there are so many gluten free products out there, but a majority of them still taste terrible, are highly caloric, fall apart if I breathe on it, and are terribly expensive. I dont know anyone else who pays almost 5 dollars for a loaf of bread! Take out and delievry pizza is a pipe dream, nevermind eating out in restaurants still makes me nervous. Don't even get me started on people using a gluten free diet as a way to lose weight, I could literally smack them upside the head. Don't get me wrong, we have come a long way in terms of education, awareness, and the amount of gluten free products available, but I think the NY Times hardly did celiac disease, or even gluten intolerance justice.

ENF Enthusiast

Well, this may come as a shock to some, but take out and delivery gluten free pizza is not a "pipe dream" in NYC, and you can have many other foods from the gluten free menus in a number of restaurants here as well. It's only a matter of time until other areas have these options, and gluten free accomodations and services are still in their infancy in NYC.

glutenfreenew Rookie

Picazzo's is a restraunt chain in AZ that serves gluten free pizza. a little expensive but good.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    2. - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

    3. - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    4. - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

    5. - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748

    Susan Upchurch
    Newest Member
    Susan Upchurch
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Mari
      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.