Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heads Up On Levaquin


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

I am recoving from a bout with diverticulitis and colitis. I was given a couple of antibiotics, one Flagyl we were unable to get in the strength the doc wanted unless we went generic so I have not started that one, and don't know if I will.

Be aware that the Levaquin although gluten-free for certain, is a really nasty antibiotic. I had side effects I never thought I would see off something of this nature. First off it destabelized my blood sugar, I shot up to over 300 within 3 hours of taking it and the next morning my MS was a fasting 178. It dropped to 85 within a half hour and then was back up to 137 an hour later.

That was enough to convince me not to take another dose...... And then I started to hallucinate. I have never been happier that I had the experiences I did in the late 60's early 70's, at least I knew what it was that was making my world all pretty colored mosaics and flashing lights. If I had never 'tripped' it would have scared me to death. I went to bed looking at the colors and hopeing they would be gone in the AM. They were.

My doctor gets back today and I expect him to give me a call. After reading the leaflet that came with the drug I found they do not reccommend it for folks with diabetes, epilepsy or tendon problems. I have diabetes, epilepsy (although no seizures since a couple months gluten-free) and am an Ehlers Danlos person who dislocates regularly in their sleep. I guess the drug reps info wasn't real complete and he hadn't read the literature before giving it to me.

I wanted to make sure that folks are aware of these bizzare side effects. I don't know if the same thing would happen to someone without the brain damage I have from the celiac but no one mentioned them to me before I took the stuff, if they had I would have asked for something different.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rsm Newbie

I took it once a couple of years ago and broke out in hives overnight, it was bad, very bad.

GlutenWrangler Contributor

I'm on Levaquin right now for a Pseudomonas infection. I had some rough side effects at first too, but nothing like you had. I'm currently on my 8th day, and I think my body is getting used to it. I was in a horrible mood and I felt almost dead for about 3-4 days, but it ended up going away. But keep in mind, I'm not a diabetic or an epileptic, so it is definitely much more dangerous for you. I'm sorry it was too rough for you. It's definitely a strong antibiotic. Hopefully you can find another that is both strong and tolerable.

-Brian

ArtGirl Enthusiast

It just reinforces the fact that we need to be fully aware, read the drug information, and make fully informed decisions... irregardless of whether or not we THINK the doctor knows what s/he is doing!

I never trust doctors to know the ins and outs of the drugs they prescribe. I ALWAYS check with the pharmacist and read the inserts.

ravenwoodglass Mentor
I never trust doctors to know the ins and outs of the drugs they prescribe. I ALWAYS check with the pharmacist and read the inserts.

I agree completely. I just read the info the drug store gave me before I took that one dose. I should have read the insert also. I sure will next time.

Anteau25 Apprentice

I was prescribed levaquin about 2 months ago, but my pharmacy called me before they filled it because it could affect blood sugars. I am a diabetic also. They contacted my dr, and I got a different antibiotic. After reading your post I am even more thankful that the pharmacy caught it before giving it to me!

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,330
    • Most Online (within 30 mins)
      7,748

    TamSta214
    Newest Member
    TamSta214
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • somethinglikeolivia
      Responding to both of your replies: thank you so much!! That makes a lot of sense and helps me feel better about it - I really appreciate the clarification and recommendations. You guys have been very helpful and this site is a gift. Thanks again! 
    • trents
      I think giving attention to the main sources of exposure such as direct consumption of gluten and gross cross contamination with reasonable attention to handwashing and thorough counter top cleaning and dishwashing should cover cross contamination issues. The biggest precautions would be eating in restaurants and at other's homes. Don't get paranoia over it and don't make trouble where there is none. As far a what you communicate with your physicians, just tell them what you know. Strongly positive antibody tests, negative biopsy, positive symptoms when consuming gluten with clearing of symptoms when gluten free.  
    • trents
      Occasionally we do see anomalies where celiac antibody tests are positive but biopsies are negative, and even visa versa. Sometimes, damage to the small bowel lining is patchy and unless numerous samples are taken from various areas, the damage can be missed. So, there's that issue as well. I think in your situation, the tell-tale indicator is the difference in symptoms between when you were off gluten and when you were consuming it.   
    • somethinglikeolivia
      Okay, that makes sense - so based off of the 90% odds that it is positive, it’s worth switching to fully gluten-free? How strict do I need to be with cross-contamination, handling, etc. Is it something that can go by feel, for instance if I feel okay making my family sandwiches and handling the bread as opposed to eating it, or is it something that is causing silent damage even if I feel fine? Also, do I make it clear to my rheumatologist and other medical providers that I am celiac? Or will they veto that due to negative endoscopy? Thanks again for the help!
    • Scott Adams
      If you look at the article that I shared you will notice that "The test is estimated to have a sensitivity of approximately 90%, which means that it correctly identifies 90% of people with celiac disease. It also has a high specificity of around 95%, which means that it correctly identifies 95% of people who do not have celiac disease," so your results indicate that you very likely have celiac disease, especially if you also have symptoms while eating gluten that go away when you stop eating it (although many celiacs don't have obvious symptoms).
×
×
  • Create New...