Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Heads Up On Levaquin


ravenwoodglass

Recommended Posts

ravenwoodglass Mentor

I am recoving from a bout with diverticulitis and colitis. I was given a couple of antibiotics, one Flagyl we were unable to get in the strength the doc wanted unless we went generic so I have not started that one, and don't know if I will.

Be aware that the Levaquin although gluten-free for certain, is a really nasty antibiotic. I had side effects I never thought I would see off something of this nature. First off it destabelized my blood sugar, I shot up to over 300 within 3 hours of taking it and the next morning my MS was a fasting 178. It dropped to 85 within a half hour and then was back up to 137 an hour later.

That was enough to convince me not to take another dose...... And then I started to hallucinate. I have never been happier that I had the experiences I did in the late 60's early 70's, at least I knew what it was that was making my world all pretty colored mosaics and flashing lights. If I had never 'tripped' it would have scared me to death. I went to bed looking at the colors and hopeing they would be gone in the AM. They were.

My doctor gets back today and I expect him to give me a call. After reading the leaflet that came with the drug I found they do not reccommend it for folks with diabetes, epilepsy or tendon problems. I have diabetes, epilepsy (although no seizures since a couple months gluten-free) and am an Ehlers Danlos person who dislocates regularly in their sleep. I guess the drug reps info wasn't real complete and he hadn't read the literature before giving it to me.

I wanted to make sure that folks are aware of these bizzare side effects. I don't know if the same thing would happen to someone without the brain damage I have from the celiac but no one mentioned them to me before I took the stuff, if they had I would have asked for something different.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



rsm Newbie

I took it once a couple of years ago and broke out in hives overnight, it was bad, very bad.

GlutenWrangler Contributor

I'm on Levaquin right now for a Pseudomonas infection. I had some rough side effects at first too, but nothing like you had. I'm currently on my 8th day, and I think my body is getting used to it. I was in a horrible mood and I felt almost dead for about 3-4 days, but it ended up going away. But keep in mind, I'm not a diabetic or an epileptic, so it is definitely much more dangerous for you. I'm sorry it was too rough for you. It's definitely a strong antibiotic. Hopefully you can find another that is both strong and tolerable.

-Brian

ArtGirl Enthusiast

It just reinforces the fact that we need to be fully aware, read the drug information, and make fully informed decisions... irregardless of whether or not we THINK the doctor knows what s/he is doing!

I never trust doctors to know the ins and outs of the drugs they prescribe. I ALWAYS check with the pharmacist and read the inserts.

ravenwoodglass Mentor
I never trust doctors to know the ins and outs of the drugs they prescribe. I ALWAYS check with the pharmacist and read the inserts.

I agree completely. I just read the info the drug store gave me before I took that one dose. I should have read the insert also. I sure will next time.

Anteau25 Apprentice

I was prescribed levaquin about 2 months ago, but my pharmacy called me before they filled it because it could affect blood sugars. I am a diabetic also. They contacted my dr, and I got a different antibiotic. After reading your post I am even more thankful that the pharmacy caught it before giving it to me!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    2. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

    4. - GlorietaKaro replied to GlorietaKaro's topic in Super Sensitive People
      5

      Am I nuts?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,810
    • Most Online (within 30 mins)
      7,748

    rdwells
    Newest Member
    rdwells
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
    • GlorietaKaro
      One doctor suggested it, but then seemed irritated when I asked follow-up questions. Oh well—
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.