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Belinda Meeker

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Belinda Meeker Apprentice
Belinda Meeker
Posted

Hi, I'am not sure if my other lettter I typed went anywhere so here's another....

We have a 17 year old son who has the "C" disease and has had it all his life just found out 2 years ago why he was so sick as a little guy...when he was a baby he suffered severe hives and belly aches at first they told us it was food allergies then it was just someting that didn't agree with him.....well to make a long story short he was allergic to "LIFE" he has gotten a little better since he knows wht to eat and wht not to eat....but a year ago he tried to work at McDonalds and after not being to already eat their food didn't realize cooking it coould cause problems too, but he started having dizzy spells and passing out at work so he figured hey maybe it is getting in my skin (for those not knowing McD's uses gluten to cook with) so he quit and the passing out subsided unless he has a gluten attack from eating something he should have.....it is hard to be a teenager and not be able to eat pizza or a burger with the guys. So he now tries very hard to stick to his diet as close as he can...we also have 2 other son's one who constantly goes to the R room but he deals with it, the oldest has had several break outs which they said r chicken pox for the 3rd time (if i can i would like to show u wht he looked like when I figure out how to use site) but know we r going threw alot of testing cuz hubby and I both even tho we try very hard not to eat gluten there is HIDDEN gluten everywhere....SO everyone let me know wht u have to say and i will let know if i figure this out lol> One ? is does any one have the blisters on their feet? Thnx Bea

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kerrih Rookie
kerrih
Posted

Well, fortunately I have not had the DH rash that goes with the celiac, but I have had all of those other issues you listed. One thing I wanted to suggest is for him to have his thyroid checked out. I was almost passing out as well and my heart rate would soar and pound. Turns out this autoimmune disorder of Celiac can cause problems with other systems as well. Thyroid is a common organ to be attacked by celiac.

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      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
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      By trents · Posted

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      GI DX celiac despite neg serology and no biopsy

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      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
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      Help

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      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
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