Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Starting To See Improvement


ami27

Recommended Posts

ami27 Apprentice

I am so excited to be able to actually say this. I'm feeling better. I have more energy. I have more good days than bad. My hair stopped falling out. My hair is actually growing back. When I got my hair cut yesterday after she blew it dry I noticed all these little hairs sticking up. That is new hair growth!!! When I was younger I always had thick, pretty hair, but for the last 8 years it has been falling out and it's really thin now.

I have been eating gluten free for 6 months now with a few accidental glutenings along the way. I also finally figured out that corn was causing me problems. Once I got the corn intolerance figured out I really started feeling better. The strange thing is that I didn't really notice the GI issues before, but if I get glutened now I really do have that problem. My biggest issue before was fatigue and irritability. I ordered Enterolab tests for myself and my sons. We're waiting for the results now. I've explained all of this to them and they are willing to forego all gluten if their tests indicate they should do so. I hope they remain that easy going about it, but I'm sure there will be some resistance if we do actually have to go that route.

I just had to share with you all my good news. I am shocked that this has been my issue for so long and not one doctor figured it out. I even had a clue that it was something I was eating. I just couldn't figure out exactly what it was. I went to many a doctor saying 'I feel like something I'm eating is making me sick'. They would send me away with anti-depressants or nothing. I wish our medical community was more knowledgeable about this condition.

Ami


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast

This is exciting news, indeed. Isn't it great to feel good again?

I, too, am corn sensitive and didn't see real improvement until I eliminated all corn from my diet. I also went the Enterolab route rather than go to any doctor and fool with trying to educate them. I got my diagnosis thru the lab and I'm really glad I did.

Happy 6-month gluten/corn-free anniversary!

wowzer Community Regular

That is so great to hear. I have been gluten free since the beginning of the year and feel some other foods could be a problem also. My family doctor does agree that I still could be a celiac even though my bloodwork came back negative. I have sort of wondered if corn is a problem. Good luck with your son's testing. I feel that my problem should have been diagnosed long ago. I do have a little sister that was diagnosed at a year old. I am wondering if some of my other family members have this also. I do agree that doctors should pay more attention to symptoms.

WHinNOVA Rookie

So, for those of you that are corn sensitive, is it to just the heavy corn items (cornbread, corn tortillas, corn chips, etc.) or do you also have to eliminate the incidental sources of corn (items with corn syrup as an ingredient, etc.)?

WH

ami27 Apprentice

Initially, I just cut out corn tortillas and corn on the cob. This was where the biggest source of corn was coming from for me. Then one day I noticed I felt very fatigued after I ate a Lifesaver mint that one of my coworkers offered me. I looked up the ingredients and it had corn syrup in it. So now I stay away from corn syrup too.

Ami

confused Community Regular

im glad you are feeling better. I was until this last week. But im determined to feel better again.

paula

Nancym Enthusiast

I noticed any time I have chips, like corn chips, I get intestinal issues again. Other than occassionally falling off my paleo diet (no grains, no dairy) I don't usually eat corn.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WHinNOVA Rookie
Initially, I just cut out corn tortillas and corn on the cob. This was where the biggest source of corn was coming from for me. Then one day I noticed I felt very fatigued after I ate a Lifesaver mint that one of my coworkers offered me. I looked up the ingredients and it had corn syrup in it. So now I stay away from corn syrup too.

Ami

Thanks for the info. Friday will be four weeks gluten free for me. Somedays, I think I might see a slight improvement and other days are about the same. I've been very careful with the diet eating only things made at home and carefully prepared to prevent CC. I've tried experimenting with some of the frequent problem items. I believe I'm sensitive to dairy and some fruit (apples, for example) at the moment and may have to lay off of them until my SI heals. I'm wondering if there are other things as well and hence my question about corn. I'm eating mostly salads (which was already my favorite food) so get very little corn. I do occasionally have a soft drink or something else with the corn syrup or some other corn byproduct. Sometimes, I have chicken breast fried in cornmeal on my salad as well. Maybe I need to be careful to avoid all corn sources for a few days and then get a big dose (like corn on the cob) and see what happens.

WH

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Florence Lillian replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    2. - trents replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    3. - knitty kitty replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

    4. - Scott Adams replied to Florence Lillian's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      Gluten-Mimicking Proteins that can affect some Celiac individuals.

    5. - Scott Adams replied to HectorConvector's topic in Related Issues & Disorders
      326

      Terrible Neurological Symptoms

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,626
    • Most Online (within 30 mins)
      7,748

    marianmanu
    Newest Member
    marianmanu
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Florence Lillian
      Hi Scott: A wonderful, thoughtful explanation. Controlled human studies would be very interesting and quite informative. I have been eliminating certain foods and have narrowed it down considerably. Having other autoimmune diseases along with Celiac has become rather challenging. I appreciate your input, thank you. All the best, Florence
    • trents
      Hector, have you had a follow-up biopsy to check the progress of small bowel villous lining recovery after going gluten free?
    • knitty kitty
      @HectorConvector, Please try adding Niacin to your supplements.  Low Niacin has a connection with suicidal ideation.  Been here, done that.  Niacin made me feel better mentally and physically.  Omega Three fats will help, too. For pain, Thiamine, B12 and, Pyridoxine B6 have been shown to have analgesic effects when taken together.  I know this works because I've cracked some vertebrae and this combination relieves the pain.  I was prescribed opioids, but couldn't function or poop, so... I can highly recommend these vitamins for pain relief.   I adopted a paleo diet, the Autoimmune Protocol Diet which has been shown to improve intestinal health.  Improving intestinal health improves mental health because of the gut brain-axis.  Important neurotransmitter Serotonin is made in the digestive system.   Please Read... Association between dietary niacin intake and suicidal ideation: mediating role of C-reactive protein https://pubmed.ncbi.nlm.nih.gov/40859220/ Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/
    • Scott Adams
      Hi Florence, thank you for clarifying — and no worries at all about late-night writing. I appreciate you explaining that you’re specifically asking about gluten cross-reactivity, particularly the proposed immune cross-reaction between alpha-gliadin and certain non-gluten foods on a gluten-free diet. It’s an interesting and often confusing topic. The Vojdani & Tarash paper you mentioned did report antibody cross-reactivity in laboratory settings, which has led to a lot of discussion in the gluten-free community. However, it’s important to note that in-vitro antibody reactions (in a lab dish) don’t always translate into clinically meaningful reactions inside the human body. At this point, major celiac research centers generally conclude that true immune cross-reactivity to non-gluten foods in people with celiac disease hasn’t been clearly demonstrated in well-controlled human studies. That said, many individuals do report symptoms with foods like corn, dairy, oats, or others, and those reactions can absolutely be real — they just may involve different mechanisms, such as food intolerance, FODMAP sensitivity, separate immune responses, or individual gut permeability differences rather than molecular mimicry of gliadin specifically. If certain foods consistently trigger symptoms for you, keeping a structured food and symptom log and discussing it with a knowledgeable gastroenterologist or dietitian may help clarify patterns. It’s a nuanced area, and your question is thoughtful — we just have to separate what’s biologically plausible in theory from what’s been conclusively demonstrated in patients.
    • Scott Adams
      I’m really sorry you’re dealing with such intense burning pain right now. When symptoms get that overwhelming, it can feel unbearable and even trigger really dark thoughts, and that’s a sign of just how much you’ve been carrying — not a sign of weakness. It makes sense that you’d want to go back to a lower-carb, meat-and-vegetable approach if that’s helped reduce symptoms before; sometimes dialing things back to simple, whole foods can calm inflammation or gut irritation. At the same time, your safety and mental health matter just as much as the physical symptoms. If the suicidal thoughts are feeling strong or hard to control, please consider reaching out for immediate support — in the U.S., you can call or text 988 for the Suicide & Crisis Lifeline, or go to the nearest emergency room if you feel at risk. You don’t have to handle this alone. It may also be worth checking in with your doctor soon to review what’s changed and see if there are adjustments or treatments that could ease the burning pain more effectively. You deserve relief, and you deserve support while you figure this out.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.