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I'm Starting To See Improvement


ami27

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ami27 Apprentice

I am so excited to be able to actually say this. I'm feeling better. I have more energy. I have more good days than bad. My hair stopped falling out. My hair is actually growing back. When I got my hair cut yesterday after she blew it dry I noticed all these little hairs sticking up. That is new hair growth!!! When I was younger I always had thick, pretty hair, but for the last 8 years it has been falling out and it's really thin now.

I have been eating gluten free for 6 months now with a few accidental glutenings along the way. I also finally figured out that corn was causing me problems. Once I got the corn intolerance figured out I really started feeling better. The strange thing is that I didn't really notice the GI issues before, but if I get glutened now I really do have that problem. My biggest issue before was fatigue and irritability. I ordered Enterolab tests for myself and my sons. We're waiting for the results now. I've explained all of this to them and they are willing to forego all gluten if their tests indicate they should do so. I hope they remain that easy going about it, but I'm sure there will be some resistance if we do actually have to go that route.

I just had to share with you all my good news. I am shocked that this has been my issue for so long and not one doctor figured it out. I even had a clue that it was something I was eating. I just couldn't figure out exactly what it was. I went to many a doctor saying 'I feel like something I'm eating is making me sick'. They would send me away with anti-depressants or nothing. I wish our medical community was more knowledgeable about this condition.

Ami


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ArtGirl Enthusiast

This is exciting news, indeed. Isn't it great to feel good again?

I, too, am corn sensitive and didn't see real improvement until I eliminated all corn from my diet. I also went the Enterolab route rather than go to any doctor and fool with trying to educate them. I got my diagnosis thru the lab and I'm really glad I did.

Happy 6-month gluten/corn-free anniversary!

wowzer Community Regular

That is so great to hear. I have been gluten free since the beginning of the year and feel some other foods could be a problem also. My family doctor does agree that I still could be a celiac even though my bloodwork came back negative. I have sort of wondered if corn is a problem. Good luck with your son's testing. I feel that my problem should have been diagnosed long ago. I do have a little sister that was diagnosed at a year old. I am wondering if some of my other family members have this also. I do agree that doctors should pay more attention to symptoms.

WHinNOVA Rookie

So, for those of you that are corn sensitive, is it to just the heavy corn items (cornbread, corn tortillas, corn chips, etc.) or do you also have to eliminate the incidental sources of corn (items with corn syrup as an ingredient, etc.)?

WH

ami27 Apprentice

Initially, I just cut out corn tortillas and corn on the cob. This was where the biggest source of corn was coming from for me. Then one day I noticed I felt very fatigued after I ate a Lifesaver mint that one of my coworkers offered me. I looked up the ingredients and it had corn syrup in it. So now I stay away from corn syrup too.

Ami

confused Community Regular

im glad you are feeling better. I was until this last week. But im determined to feel better again.

paula

Nancym Enthusiast

I noticed any time I have chips, like corn chips, I get intestinal issues again. Other than occassionally falling off my paleo diet (no grains, no dairy) I don't usually eat corn.


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WHinNOVA Rookie
Initially, I just cut out corn tortillas and corn on the cob. This was where the biggest source of corn was coming from for me. Then one day I noticed I felt very fatigued after I ate a Lifesaver mint that one of my coworkers offered me. I looked up the ingredients and it had corn syrup in it. So now I stay away from corn syrup too.

Ami

Thanks for the info. Friday will be four weeks gluten free for me. Somedays, I think I might see a slight improvement and other days are about the same. I've been very careful with the diet eating only things made at home and carefully prepared to prevent CC. I've tried experimenting with some of the frequent problem items. I believe I'm sensitive to dairy and some fruit (apples, for example) at the moment and may have to lay off of them until my SI heals. I'm wondering if there are other things as well and hence my question about corn. I'm eating mostly salads (which was already my favorite food) so get very little corn. I do occasionally have a soft drink or something else with the corn syrup or some other corn byproduct. Sometimes, I have chicken breast fried in cornmeal on my salad as well. Maybe I need to be careful to avoid all corn sources for a few days and then get a big dose (like corn on the cob) and see what happens.

WH

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    • Mari
      Thanks for giving us this update, we appreciate hearing back. I th🥰ink you are on a good path forward and will learn some new things to improve your   health and keep healthy. 
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      thank you that is good to know that it is safe for celiac people
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      Current careteam is still up in the air about my celiac thanks to me googling "celiac specialist" what popped  up was once known as a good name hospital back in the days. I went in for answers for my declining health, it was the autoimmune part that did me in, being a former bus driver.I read that in my medical records so easily downplayed, i refused the gluten challenge! Why the hell would I eat Gluten when im Celiac coming to them for answers when my body is falling apart? Glutenfree since 1994. They did unnecessary colonoscopy KNOWING im glutenfree. A celiac specialist would know that would be pointless to do if not eating gluten and it was done!Im so angery with that hospital for not explaining celiac disease and withholding information, Downplaying my ailments , mental distress,  causing more health issues, ect. All this could have been avoided If medical records were sent, when asked, explained and done properly. Im so angery.I do have the celiac dietitian on here in June and linked her up to my current health care yesterday, fingers crossed hopefully with that, the understanding of celiac is explained it's not just a food allergy will be understood. 
    • Scott Adams
    • Scott Adams
      Thank you for sharing your experience, Florence. It’s important to clarify, though, that proteins like zein in corn, panicin in millet, and kafirin in sorghum are not considered gluten and have not been shown to trigger the same autoimmune intestinal damage seen in celiac disease. Some people with celiac disease do report symptoms with certain gluten-free grains, oats, or other foods, but that reflects individual intolerance or sensitivity—not a proven “gluten-mimic” effect that damages the small intestine. Certified gluten-free oats are considered safe for most people with celiac disease, though a small subset may react to avenin. If specific foods consistently cause symptoms for you, it makes sense to avoid them personally, but it’s helpful for readers to know that these foods are still medically classified as gluten-free and generally safe for the broader celiac community.
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