Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Starting To See Improvement

ami27

Recommended Posts

ami27 Apprentice
ami27
Posted

I am so excited to be able to actually say this. I'm feeling better. I have more energy. I have more good days than bad. My hair stopped falling out. My hair is actually growing back. When I got my hair cut yesterday after she blew it dry I noticed all these little hairs sticking up. That is new hair growth!!! When I was younger I always had thick, pretty hair, but for the last 8 years it has been falling out and it's really thin now.

I have been eating gluten free for 6 months now with a few accidental glutenings along the way. I also finally figured out that corn was causing me problems. Once I got the corn intolerance figured out I really started feeling better. The strange thing is that I didn't really notice the GI issues before, but if I get glutened now I really do have that problem. My biggest issue before was fatigue and irritability. I ordered Enterolab tests for myself and my sons. We're waiting for the results now. I've explained all of this to them and they are willing to forego all gluten if their tests indicate they should do so. I hope they remain that easy going about it, but I'm sure there will be some resistance if we do actually have to go that route.

I just had to share with you all my good news. I am shocked that this has been my issue for so long and not one doctor figured it out. I even had a clue that it was something I was eating. I just couldn't figure out exactly what it was. I went to many a doctor saying 'I feel like something I'm eating is making me sick'. They would send me away with anti-depressants or nothing. I wish our medical community was more knowledgeable about this condition.

Ami

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ArtGirl Enthusiast
ArtGirl
Posted

This is exciting news, indeed. Isn't it great to feel good again?

I, too, am corn sensitive and didn't see real improvement until I eliminated all corn from my diet. I also went the Enterolab route rather than go to any doctor and fool with trying to educate them. I got my diagnosis thru the lab and I'm really glad I did.

Happy 6-month gluten/corn-free anniversary!

wowzer Community Regular
wowzer
Posted

That is so great to hear. I have been gluten free since the beginning of the year and feel some other foods could be a problem also. My family doctor does agree that I still could be a celiac even though my bloodwork came back negative. I have sort of wondered if corn is a problem. Good luck with your son's testing. I feel that my problem should have been diagnosed long ago. I do have a little sister that was diagnosed at a year old. I am wondering if some of my other family members have this also. I do agree that doctors should pay more attention to symptoms.

WHinNOVA Rookie
WHinNOVA
Posted

So, for those of you that are corn sensitive, is it to just the heavy corn items (cornbread, corn tortillas, corn chips, etc.) or do you also have to eliminate the incidental sources of corn (items with corn syrup as an ingredient, etc.)?

WH

ami27 Apprentice
ami27
Posted
  • Author

Initially, I just cut out corn tortillas and corn on the cob. This was where the biggest source of corn was coming from for me. Then one day I noticed I felt very fatigued after I ate a Lifesaver mint that one of my coworkers offered me. I looked up the ingredients and it had corn syrup in it. So now I stay away from corn syrup too.

Ami

confused Community Regular
confused
Posted

im glad you are feeling better. I was until this last week. But im determined to feel better again.

paula

Nancym Enthusiast
Nancym
Posted

I noticed any time I have chips, like corn chips, I get intestinal issues again. Other than occassionally falling off my paleo diet (no grains, no dairy) I don't usually eat corn.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WHinNOVA Rookie
WHinNOVA
Posted
Initially, I just cut out corn tortillas and corn on the cob. This was where the biggest source of corn was coming from for me. Then one day I noticed I felt very fatigued after I ate a Lifesaver mint that one of my coworkers offered me. I looked up the ingredients and it had corn syrup in it. So now I stay away from corn syrup too.

Ami

Thanks for the info. Friday will be four weeks gluten free for me. Somedays, I think I might see a slight improvement and other days are about the same. I've been very careful with the diet eating only things made at home and carefully prepared to prevent CC. I've tried experimenting with some of the frequent problem items. I believe I'm sensitive to dairy and some fruit (apples, for example) at the moment and may have to lay off of them until my SI heals. I'm wondering if there are other things as well and hence my question about corn. I'm eating mostly salads (which was already my favorite food) so get very little corn. I do occasionally have a soft drink or something else with the corn syrup or some other corn byproduct. Sometimes, I have chicken breast fried in cornmeal on my salad as well. Maybe I need to be careful to avoid all corn sources for a few days and then get a big dose (like corn on the cob) and see what happens.

WH

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Heatherisle
      - Heatherisle replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      17

      Pain in the right side of abdomen

      Hi again Sorry to be a pain but my daughter started on her Vitamin B medication a week ago, not sure what dosage as she hasn’t said. However she has been feeling much worse the last couple of days with back pain, bowel and tummy problems, blurry vision, tingling. Had GP appointment after work and has been sent to hospital for scan of head and bloods. ...
    2. Scott Adams
      0

      When Campus Dining Falls Short: What Georgetown's Food Struggles Reveal About Celiac Disease and Dietary Equity (+Video)

    3. MogwaiStripe
      - MogwaiStripe posted a topic in Dermatitis Herpetiformis
      0

      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this...
    4. Dr. Gunn
      - Dr. Gunn replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual.
    5. trents
      - trents replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Test interpretations

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,666
    • Most Online (within 30 mins)
      7,748
    S.Aulman
    Newest Member
    S.Aulman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Heatherisle
      Pain in the right side of abdomen

      By Heatherisle · Posted

      Hi again Sorry to be a pain but my daughter started on her Vitamin B medication a week ago, not sure what dosage as she hasn’t said. However she has been feeling much worse the last couple of days with back pain, bowel and tummy problems, blurry vision, tingling. Had GP appointment after work and has been sent to hospital for scan of head and bloods. She should have had other bloods done when she had her B12 and folate done but GP didn’t put them on the list, ie Vitamin D levels, ferritin, thyroid function tests, glucose. She phoned us this morning very upset and worried. Told her it was probably the body’s reaction to the medication and that it might get worse before it gets better. My husband and I live in the Western Isles and she’s in Glasgow so we can’t exactly jump on a bus and be there at the moment. Hoping you have some words of wisdom for me and sorry again for annoying you. Thanks
    • MogwaiStripe
      Dermatitis Herpetiformis Cleared up With EpiPen, etc.

      By MogwaiStripe · Posted

      I had to rush to the hospital last week due to anaphylactic shock from taking a dose of an antibiotic. Received EpiPen, steroids, antihistamines, zofran (all injected/IV). When I woke up the next day, ALL of the rashes I've had that started since going gluten free were cleared up. EVEN THE dermatitis herpetiformis was gone. Has anyone else experienced this or happen to know why that would happen? The meds they gave me were all meds that I've taken to try to resolve the rashes, but they never worked in pill form. I'm wondering if it the addition of the epi that helped, it if injected steroids and antihistamines were what did the job.
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Exactly! Negative genetics can rule out celiac disease with close to 100% certainty. It takes tTg antibody testing and biopsy confirm the diagnosis in a genetically susceptible individual. 
    • trents
      Test interpretations

      By trents · Posted

      What Dr. Gunn states is essentially true. It is a rule out measure. But be aware that to possess either of the two primary genes that have been identified with celiac disease (or both) doesn't necessarily mean that you have or will develop celiac disease. Almost 40% of the general population carries one or both but only about 1% of the general population will develop active celiac disease. It remains latent until triggered by some stress event which may or may not occur. So, there is a genetic component to celiac disease but there is also an epigenetic component. 
    • Dr. Gunn
      Test interpretations

      By Dr. Gunn · Posted

      Have you had celiac genetic risk testing? A celiac genetic test is accurate with or without gluten in your diet. If you don't carry the celiac risk genes you can effectively rule out celiac disease for life. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.