Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm Starting To See Improvement


ami27

Recommended Posts

ami27 Apprentice

I am so excited to be able to actually say this. I'm feeling better. I have more energy. I have more good days than bad. My hair stopped falling out. My hair is actually growing back. When I got my hair cut yesterday after she blew it dry I noticed all these little hairs sticking up. That is new hair growth!!! When I was younger I always had thick, pretty hair, but for the last 8 years it has been falling out and it's really thin now.

I have been eating gluten free for 6 months now with a few accidental glutenings along the way. I also finally figured out that corn was causing me problems. Once I got the corn intolerance figured out I really started feeling better. The strange thing is that I didn't really notice the GI issues before, but if I get glutened now I really do have that problem. My biggest issue before was fatigue and irritability. I ordered Enterolab tests for myself and my sons. We're waiting for the results now. I've explained all of this to them and they are willing to forego all gluten if their tests indicate they should do so. I hope they remain that easy going about it, but I'm sure there will be some resistance if we do actually have to go that route.

I just had to share with you all my good news. I am shocked that this has been my issue for so long and not one doctor figured it out. I even had a clue that it was something I was eating. I just couldn't figure out exactly what it was. I went to many a doctor saying 'I feel like something I'm eating is making me sick'. They would send me away with anti-depressants or nothing. I wish our medical community was more knowledgeable about this condition.

Ami


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ArtGirl Enthusiast

This is exciting news, indeed. Isn't it great to feel good again?

I, too, am corn sensitive and didn't see real improvement until I eliminated all corn from my diet. I also went the Enterolab route rather than go to any doctor and fool with trying to educate them. I got my diagnosis thru the lab and I'm really glad I did.

Happy 6-month gluten/corn-free anniversary!

wowzer Community Regular

That is so great to hear. I have been gluten free since the beginning of the year and feel some other foods could be a problem also. My family doctor does agree that I still could be a celiac even though my bloodwork came back negative. I have sort of wondered if corn is a problem. Good luck with your son's testing. I feel that my problem should have been diagnosed long ago. I do have a little sister that was diagnosed at a year old. I am wondering if some of my other family members have this also. I do agree that doctors should pay more attention to symptoms.

WHinNOVA Rookie

So, for those of you that are corn sensitive, is it to just the heavy corn items (cornbread, corn tortillas, corn chips, etc.) or do you also have to eliminate the incidental sources of corn (items with corn syrup as an ingredient, etc.)?

WH

ami27 Apprentice

Initially, I just cut out corn tortillas and corn on the cob. This was where the biggest source of corn was coming from for me. Then one day I noticed I felt very fatigued after I ate a Lifesaver mint that one of my coworkers offered me. I looked up the ingredients and it had corn syrup in it. So now I stay away from corn syrup too.

Ami

confused Community Regular

im glad you are feeling better. I was until this last week. But im determined to feel better again.

paula

Nancym Enthusiast

I noticed any time I have chips, like corn chips, I get intestinal issues again. Other than occassionally falling off my paleo diet (no grains, no dairy) I don't usually eat corn.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



WHinNOVA Rookie
Initially, I just cut out corn tortillas and corn on the cob. This was where the biggest source of corn was coming from for me. Then one day I noticed I felt very fatigued after I ate a Lifesaver mint that one of my coworkers offered me. I looked up the ingredients and it had corn syrup in it. So now I stay away from corn syrup too.

Ami

Thanks for the info. Friday will be four weeks gluten free for me. Somedays, I think I might see a slight improvement and other days are about the same. I've been very careful with the diet eating only things made at home and carefully prepared to prevent CC. I've tried experimenting with some of the frequent problem items. I believe I'm sensitive to dairy and some fruit (apples, for example) at the moment and may have to lay off of them until my SI heals. I'm wondering if there are other things as well and hence my question about corn. I'm eating mostly salads (which was already my favorite food) so get very little corn. I do occasionally have a soft drink or something else with the corn syrup or some other corn byproduct. Sometimes, I have chicken breast fried in cornmeal on my salad as well. Maybe I need to be careful to avoid all corn sources for a few days and then get a big dose (like corn on the cob) and see what happens.

WH

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,571
    • Most Online (within 30 mins)
      7,748

    Ygomez
    Newest Member
    Ygomez
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
    • petitojou
      Thank you so much for the information and kind message! Reading this transformed how I’ve been viewing my efforts and progress. Guess there’s still a lot to celebrate and also heal 😌  Yes, I’ve been taking it! Just recently started taking a multivitamin supplement and separated vitamin D! I also took chewable Iron polymaltose for ferritin deficiency 2 months ago but was unable to absorb any of it.  Thank you again! Hearing such gentle words from the community makes my body and heart more patient and excited for the future. 
    • ckeyser88
      I am looking for a roomie in Chicago, Denver or Nashville! 
    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.