Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question For Ladies Regarding Periods


cornflakegirl

Recommended Posts

cornflakegirl Newbie

Hi,

I'm new to this board. I'm posting about concerns for my 14 year old daughter's health. I don't know if she has celiac disease, but she does have many symptoms that concern me and make me think that she may have this.

I just want to start by breifly describing some symptoms that she has had over the years. When she was around 7 or 8 and still skinny, she had a fat belly. She developed psoriasis on her knees and elbows when she was 10. We have controlled this with diet off and on. A very heavy first period that lasted over 30 days. It stopped after birth control pills and now she has not had any period for several months ( she's off the pill now). Her doctor said this is normal and that she will eventually begin regular periods. She is slightly anemic and her face is very pale. She has a moustache that she has to bleach regularly. She also has a lot of stretch-marks. She complains a lot about belly aches. She sleeps a lot. I am concerned about all of this but mostly about her lack of menstruation.

I guess what I would like is for anyone here to share their experience with beginning menstruation. Has anyone here had a similar experience to my daughter's? I would appreciate any input.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

I had alot of teh same symptoms as your daughter when I was her age....I started my period at 12 and it was always heavy.

I have a friend who will go for months with no period and then have one for months. She is currently taking medication to get it to start and then it will stop on it's own she has had luck with it. She sees a gyno for her period probs...but being your daughter is young???? Does she do sports?????

cornflakegirl Newbie

Hi j_mommy,

She doesn't do any sports. She's kind of a computer geek. So can I ask if your periods eventually became more regular? I've always had such uneventful periods and feel so sorry for my daughter. She's afraid to start her period again and at the same time afraid she won't. It breaks my heart.

Thanks for replying.

Guest j_mommy

The older I got....probably by my senior year of high school things kinda leveled out.

Do you mind me asking what kind of birth control she's on???? I took ortho when I was younger but now I switch between depo(definetly wouldn't recommend for someone that young) and Yaz. I do 6 months on each. Yaz is a low dose and makes you have lighter periods! Maybe worth looking into for her!

lob6796 Contributor

Has her thyroid been tested at all? The tiredness and hairgrowth, messed up cycles could all be thyroid issues. I would ask him to check her iron, her B12, and her thyroid. Throwing in a fell serum panel for celiac would be a good idea too. IgA, IgG, tTG, EMA and total IgA will give you a good picture. I hope she starts feeling better soon.

cornflakegirl Newbie

j_mommy,

She's not on the pill right now. She said they gave her a stomach ache. She went off them with the doc's permission to see if she would have regular periods and so far she's had nothing. Kind of a mixed blessing. She was on Kariva.

Hi kilcan-

After she had that heavy period the doc did her bloodwork and said everything was normal except for slight anemia. I don't know if they tested her thyroid. I will print out your suggestions and talk to her doc about them. Thanks!

CarlaB Enthusiast

Where are her stretch marks?

The Pill doesn't really regulate periods, it's main mechanism is to prevent ovulation, so it just seems like they get regulated. I didn't have regular periods until I was 16. The heavy bleeding would be a concern, but the lack of periods isn't really at that age, especially if she's thin.

The hair sounds like a hormonal problem. Has she had her endocrine levels checked?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



cornflakegirl Newbie

Hi Carla,

She is actually a little overweight right now. That's something we are going to work on over the summer break.

Her stretch marks are all around her upper thighs and the backs of the kness and upper calves. Will they go away if she loses weight? She's too embarrased to wear shorts anymore. I'm hoping they will fade with time. I've never had her hormone levels checked.

CarlaB Enthusiast

Do the stretch marks look like this? There are several slides. Open Original Shared Link

I would have her hormone levels checked. I would also have her thyroid checked.

Is she taking anything for the anemia? I can tell you first hand that anemia makes you very fatigued.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,202
    • Most Online (within 30 mins)
      7,748

    PatBurnham
    Newest Member
    PatBurnham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.