Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Symptoms


slowdown

Recommended Posts

slowdown Newbie

Hi,

I have a question about symptoms of celiac disease.

I have not actually been diagnosed as of yet. I had a positive blood test a few months back, and a biopsy about two weeks ago, which I am still awaiting the results for. My mother also has it, so when I began to notice symptoms celiac was one of the first things it was thought to be.

I have been having symptoms characteristic of celiac for the past year, including fatigue and digestion problems. I have also been experiencing depression and anxiety problems though.

The cases of depression seem to be completely random, but occur mostly when my stomach problems and fatigue are particularly bad. Anxiety seems to occur in mostly social situations, and within the last while that I have changed from being fairly outgoing to retreating from the situations that causes these problems.

Are these symptoms which are associated with celiac? It has become a particular problem in the last while and I am hoping it will get better as I get the final say on whether I have it or not and on to recovery.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Murph Newbie

Yes all that can be caused by celiac.

Since you've done all the testing, are u 100% gluten-free?

It's pretty hard at first, with so many sneaky sources of it. One of the early mistakes I made was not changing toothpaste.

slowdown Newbie

As far as I know I am pretty much eating gluten-free now, though I am not 100% positive on that.

As you said, there can be some sneaky sources of gluten. Now I figure I just need to get the hang of identifying the ingredients which I would not associate with gluten.

I never did think of toothpaste as a possibility though, I should probably check on that.

newlyfree Rookie
I have also been experiencing depression and anxiety problems though.

The cases of depression seem to be completely random, but occur mostly when my stomach problems and fatigue are particularly bad. Anxiety seems to occur in mostly social situations, and within the last while that I have changed from being fairly outgoing to retreating from the situations that causes these problems.

Are these symptoms which are associated with celiac? It has become a particular problem in the last while and I am hoping it will get better as I get the final say on whether I have it or not and on to recovery.

Hi - welcome!

Depression and anxiety are indeed associated with Celiac Disease. I'm sure some of the people on this board will know more about this than me, but what I've read says over 90% of the serotonin in your body comes from the intestines. Serotonin levels are believed to be directly associated with mood disorders.

So if something is affecting your intestines, it's also affecting your ability to produce serotonin, and your moods can swing, depression and anxiety can ensue. Luckily, a lot of people (myself included) experience tremendous relief from these symptoms after going gluten-free, but it can take a while for the moods to even out.

CarlaB Enthusiast

With a positive blood test, I would go gluten-free regardless of the results of the biopsy. The biopsy can prove celiac, but cannot rule it out.

All of your symptoms can be caused by celiac. It's a systemic disesase that can affect many bodily systems. It's not "just" a GI disease.

I hope you've started the diet!

Guest j_mommy

I was in your same position....blood test and then a month later biopsy. I held off doing the gluten-free diet until after the biopsy and then started. Since you biopsy is done I would go ahead with teh gluten-free diet!

Your symptoms definetly sound like celiac...plus you have the +blood tests!

I had made up my mind before I had the biopsy....after it I was going gluten-free reguardless what the biopsy said. Anything to feel better! My biopsy was +, I'm guessing your's will be too. Even if it's negative(and hopefully they took 5-10 samples as celiac can affect one area and not the next)...it wouldn't hurt to go gluten-free...to see if your symptoms improve!

Good Luck to you!

mftnchn Explorer

Hi, just an encouragement if you have started the diet, it just might take a lwhile to see the results. Hang in there!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



slowdown Newbie

I had already started the diet after the biopsy; I wasn't going to wait for the results.

I have been on it for about a week or so now, but the only changes I have noticed so far is that the feeling of fatigue occurs less frequently...still a much welcome improvement though.

I realize that the repairs cannot happen all at once, but I am only young and I don't believe I have been suffering with it for too long.

I look forward to when the damage has been repaired and I get back to feeling 100%....I don't even remember what that feels like anymore :P

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,645
    • Most Online (within 30 mins)
      7,748

    MaryLou N
    Newest Member
    MaryLou N
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      I agree, there can be contamination at many points--milling is another possible source of contamination for any flours.
    • trents
      Keep in mind that with manufactured food products, "gluten free" doesn't equate to no gluten. Things that are naturally gluten free can be cross-contaminated with gluten in the field, in shipping and in processing. In the U.S. companies can use the gluten free label as long as the product doesn't exceed 20ppm of gluten. That amount still may cause a reaction in some people.
    • deanna1ynne
      Dd10 was tested for celiac four years ago bc two siblings were dx’d (positive labs and biopsies). Her results at the time were positive ema  and ttg (7x the UL), but a negative biopsy. We checked again three months later and her ttg was still positive (4x the UL), but ema and biopsy were negative. Doc said it was “potential celiac” and to keep eating gluten, but we were concerned about harming her growth and development while young and had her go gluten-free because we felt the labs and ema in particular were very suggestive of early celiac, despite the negative biopsies. She also had stomach aches and lethargy when eating it. We just felt it’d be better to be safe than sorry. Now, four years later, she doesn’t want to be gluten-free if she doesn’t “have to be,” so underwent a 12 week gluten challenge. She had labs done before starting and all looked great (celiac panel all negative, as expected.) Surprisingly, she experienced no noticeable symptoms when she began eating gluten again, which we felt was a positive sign. However, 12 weeks in, her labs are positive again (ttg 4x the UL and ema positive again as well). Doc says that since she feels fine and her previous two biopsies showed nothing, she can just keep eating gluten and we could maybe biopsy again in two years. I was looking up the ema test and the probability of having not just one but two false positives, and it seems ridiculously low.  Any advice? Would you biopsy again? She’s old enough at this point that I really feel I need her buy-in to keep her gluten-free, and she feels that if the doc says it’s fine, then that’s the final word — which makes me inclined to biopsy again and hope that it actually shows damage this time (not because I want her to have celiac like her sisters, but because I kind of think she already does have it, and seeing the damage now would save her more severe damage in the long run that would come from just continuing to eat gluten for a few more years before testing again.)  Our doc is great - we really like him. But we are very confused and want to protect her. One of her older sibs stopped growing and has lots of teeth problems and all that jazz from not catching the celiac disease sooner, and we don’t want to get to that point with the younger sis. fwiw- she doesn’t mind the biopsy at all. It’s at a children’s hospital and she thinks it’s kind of fun. So it’s not like that would stress her out or anything.
    • Inkie
      Thanks for the replies. I already use a gluten-free brand of buckwheat flakes I occasionally get itchy bumps. I'm still reviewing all my food products. I occasionally eat prepackaged gluten-free crackers and cookies, so I'll stop using those. I use buckwheat flakes and Doves Farm flour as a base for baking. Would you recommend eliminating those as well? It's a constant search.
    • Wheatwacked
      Gluten free food is not fortified with vitamins and minerals as regular food is.  Vitamin deficiencies are common especially in recently diagnosed persons,  Get a 25(OH)Vitamin D blood test. And work on raising it.  The safe upper blood level is around 200 nmol/L.    "Low serum levels of 25(OH)D have been associated with increased risk of autoimmune disease onset and/or high disease activity. The role of vitamin D in autoimmune diseases   🏋️‍♂️Good job!   I find the commercial milk will give me mild stomach burn at night, while pasture/grassfed only milk does not bother me at all.  While you are healing, listen to your body.  If it hurts to eat something, eat something else.  You may be able to eat it later, or maybe it is just not good for you.  Lower your Omega 6 to 3 ratio of what you eat.  Most omega 6 fatty acids are inflammation causing.    The standard american diet omega 6:3 ratio is estimated at upward of 14:1.  Thats why fish oil works
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.