Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Question About Symptoms

slowdown

Recommended Posts

slowdown Newbie
slowdown
Posted

Hi,

I have a question about symptoms of celiac disease.

I have not actually been diagnosed as of yet. I had a positive blood test a few months back, and a biopsy about two weeks ago, which I am still awaiting the results for. My mother also has it, so when I began to notice symptoms celiac was one of the first things it was thought to be.

I have been having symptoms characteristic of celiac for the past year, including fatigue and digestion problems. I have also been experiencing depression and anxiety problems though.

The cases of depression seem to be completely random, but occur mostly when my stomach problems and fatigue are particularly bad. Anxiety seems to occur in mostly social situations, and within the last while that I have changed from being fairly outgoing to retreating from the situations that causes these problems.

Are these symptoms which are associated with celiac? It has become a particular problem in the last while and I am hoping it will get better as I get the final say on whether I have it or not and on to recovery.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Murph Newbie
Murph
Posted

Yes all that can be caused by celiac.

Since you've done all the testing, are u 100% gluten-free?

It's pretty hard at first, with so many sneaky sources of it. One of the early mistakes I made was not changing toothpaste.

slowdown Newbie
slowdown
Posted
  • Author

As far as I know I am pretty much eating gluten-free now, though I am not 100% positive on that.

As you said, there can be some sneaky sources of gluten. Now I figure I just need to get the hang of identifying the ingredients which I would not associate with gluten.

I never did think of toothpaste as a possibility though, I should probably check on that.

newlyfree Rookie
newlyfree
Posted
I have also been experiencing depression and anxiety problems though.

The cases of depression seem to be completely random, but occur mostly when my stomach problems and fatigue are particularly bad. Anxiety seems to occur in mostly social situations, and within the last while that I have changed from being fairly outgoing to retreating from the situations that causes these problems.

Are these symptoms which are associated with celiac? It has become a particular problem in the last while and I am hoping it will get better as I get the final say on whether I have it or not and on to recovery.

Hi - welcome!

Depression and anxiety are indeed associated with Celiac Disease. I'm sure some of the people on this board will know more about this than me, but what I've read says over 90% of the serotonin in your body comes from the intestines. Serotonin levels are believed to be directly associated with mood disorders.

So if something is affecting your intestines, it's also affecting your ability to produce serotonin, and your moods can swing, depression and anxiety can ensue. Luckily, a lot of people (myself included) experience tremendous relief from these symptoms after going gluten-free, but it can take a while for the moods to even out.

CarlaB Enthusiast
CarlaB
Posted

With a positive blood test, I would go gluten-free regardless of the results of the biopsy. The biopsy can prove celiac, but cannot rule it out.

All of your symptoms can be caused by celiac. It's a systemic disesase that can affect many bodily systems. It's not "just" a GI disease.

I hope you've started the diet!

Guest j_mommy
Guest j_mommy
Posted

I was in your same position....blood test and then a month later biopsy. I held off doing the gluten-free diet until after the biopsy and then started. Since you biopsy is done I would go ahead with teh gluten-free diet!

Your symptoms definetly sound like celiac...plus you have the +blood tests!

I had made up my mind before I had the biopsy....after it I was going gluten-free reguardless what the biopsy said. Anything to feel better! My biopsy was +, I'm guessing your's will be too. Even if it's negative(and hopefully they took 5-10 samples as celiac can affect one area and not the next)...it wouldn't hurt to go gluten-free...to see if your symptoms improve!

Good Luck to you!

mftnchn Explorer
mftnchn
Posted

Hi, just an encouragement if you have started the diet, it just might take a lwhile to see the results. Hang in there!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


slowdown Newbie
slowdown
Posted
  • Author

I had already started the diet after the biopsy; I wasn't going to wait for the results.

I have been on it for about a week or so now, but the only changes I have noticed so far is that the feeling of fatigue occurs less frequently...still a much welcome improvement though.

I realize that the repairs cannot happen all at once, but I am only young and I don't believe I have been suffering with it for too long.

I look forward to when the damage has been repaired and I get back to feeling 100%....I don't even remember what that feels like anymore :P

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their...
    2. Trish G
      - Trish G posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Fiber Supplement

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease? Thanks!!!
    3. kpf
      - kpf replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      ttg iga high (646 mg/dl) other results are normal

      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease: fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches n...
    4. knitty kitty
      0

      Gastrointestinal Beriberi

    5. knitty kitty
      - knitty kitty replied to Rejoicephd's topic in Related Issues & Disorders
      4

      Basic metabolic panel results - more flags

      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency. Your symptoms seem really familiar. Malabsorption is a real thing that happens with Celiac. A multivitamin is not going to prevent nor correct nutritional deficiencies. Doctors do not recognize nutritional deficiency symptoms. Gastrointestinal Beriberi is not recognized...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,333
    • Most Online (within 30 mins)
      7,748
    jlcvt
    Newest Member
    jlcvt
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Fiber Supplement

      By trents · Posted

      Welcome to the forum, @Trish G! "Gluten free" does not necessarily equate to "no gluten". According to FDA standards it actually means that a food product contains no more than 20ppm of gluten. This is safe for most celiacs but would not be for those who are on the more sensitive end of the spectrum. So, it would depend on the individual celiac and their level of sensitivity to minor amounts of gluten. That's the long and nuanced answer. The short answer is that it is a product derived from wheat and so you can be certain it will contain some residual amounts of gluten. No gluten removal process is 100% effective. So, to be absolutely certain, stay away from it. Have you tried chia seeds? Very high in fiber and quickly turns into a gel when added to water. Make sure you get seeds that are gluten free if you decide to try it.
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      I was taking Benefiber for my IBS-C before my celiac diagnosis. It does say Gluten Free but lists Wheat Dextrin on the label. I really dont like psyllium fiber, so is there anything else I can take or is the Benefiber really ok for someone with Celiac disease?  Thanks!!!
    • kpf
      ttg iga high (646 mg/dl) other results are normal

      By kpf · Posted

      Abdominal pain and an itchy stomach were the symptoms I asked to see a GI about. Now I’ve learned these other symptoms—that I have but attributed to other issues—could also be related to celiac disease:  fatigue joint pain canker sores numbness or tingling in hands or feet difficulty with coordination anemia headaches neutropenia I never dreamed in a million years she would consider celiac disease. It was a shock to me. It’s definitely not what I went to her for. 
    • knitty kitty
      Basic metabolic panel results - more flags

      By knitty kitty · Posted

      @Rejoicephd, I'm not a doctor, but I experienced severe thiamine deficiency.  Your symptoms seem really familiar.  Malabsorption is a real thing that happens with Celiac.  A multivitamin is not going to prevent nor correct nutritional deficiencies.    Doctors do not recognize nutritional deficiency symptoms.  Gastrointestinal Beriberi is not recognized often.  Caused by thiamine deficiency, high dose thiamine supplements or IV administration with other vitamins, minerals and glucose under doctor's care is needed.   Thiamine deficiency is found in anemia.  Thiamine deficiency in the kidneys can result in electrolyte imbalances and cloudy urine.  Thiamine deficiency can cause high blood sugar which can cause cloudy urine.  Dehydration can cause cloudy urine.   I'm linking some PubMed articles.  You see if your symptoms match.  Discuss the possibility of Gastrointestinal Beriberi with one of your specialists soon!  Just to rule it out.  I'm very concerned.   I'm linking some PubMed articles.  You see if your symptoms match.   Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/#ref3 From Section 3: "In conclusion, TD limited to the gastrointestinal system may be an overlooked and underdiagnosed cause of the increasingly common gastrointestinal disorders encountered in modern medical settings. Left unattended, it may progress to wet or dry beriberi, most often observed as Wernicke encephalopathy.". . And... Refeeding Syndrome https://www.ncbi.nlm.nih.gov/books/NBK564513/
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      What are your symptoms? What has brought you to the point where you sought celiac disease testing?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.