Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lightheadedness & Weakness


New Mama

Recommended Posts

New Mama Rookie

I haven't been diagnosed as GI/CI, but my son was (through EnteroLab), and since he's still nursing I thought I'd better go gluten-free/CF along with him. I do suspect I am GI as well. Some of my "symptoms" were light-headness and weakness.

After going gluten-free a few months ago I immediately felt better, but now I'm feeling that way again. It's worse right when I get up, better after I eat something (or at least eating makes me feel better).

I think I am deficient in folic acid, which I know can lead to dizziness, so I just started taking my supplements regularly again the other night. But I'm wondering if there's something else going on. Hypoglycemia? Another sensitivity? Gluten still working its way out of my system?

My son also nurses at night still, so I haven't had a full night's sleep in years, but I'm pretty much used to that.

FWIW I think I'm being really careful about CC -- I use gluten-free soap, lotion. shampoo and conditioner. I bought a separate toaster and all new spoons (since I am not going to buy any gluten-y noodles anymore I figured I'd start over) and a new cutting board just for me and my son. The ONLY thing I'm still using until I can find a replacement I like is the colander, but it's metal and I cleaned it out pretty well.

Any thoughts? Anyone been through this? Help -- and thank you for reading!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



New Mama Rookie

Bumping...anyone?

Byte Me Apprentice

Hi!

It's possible the colander could still be causing a problem. I was very stubborn at first, not believing some things could hold onto gluten forever, and had occasional problems until I finally gave in and replaced everything as suggested.

Another possibility is you might have a virus. There is a super nasty one going around, all over the country it seems... my kids and I had it for almost a week. There were several days of lots of dizziness/light-headedness and weakness and I didn't even realize it was a virus, until all of us got the same symptoms and then the icky bathroom part of it kicked in. <_<

SunnyDyRain Enthusiast

I'm not well versed in Diabetes, but I think low blood sugar might be a option. If your body is being drained by BF at night, by the morning you might really need some sugar. That would explain why you feel better after you eat. Do you eat while/after BF?

I'd look into that and perahaps be tested for diabetes.

that's just my opinion, and i'm not real familiar with diabetes or BF.

Oh, and yeah..get a new colander.. even get a cheapy until you find one you like. I love the new collapsible ones they have now made out of silicone!

  • 2 weeks later...
Guest Doll
I haven't been diagnosed as GI/CI, but my son was (through EnteroLab), and since he's still nursing I thought I'd better go gluten-free/CF along with him. I do suspect I am GI as well. Some of my "symptoms" were light-headness and weakness.

After going gluten-free a few months ago I immediately felt better, but now I'm feeling that way again. It's worse right when I get up, better after I eat something (or at least eating makes me feel better).

I think I am deficient in folic acid, which I know can lead to dizziness, so I just started taking my supplements regularly again the other night. But I'm wondering if there's something else going on. Hypoglycemia? Another sensitivity? Gluten still working its way out of my system?

My son also nurses at night still, so I haven't had a full night's sleep in years, but I'm pretty much used to that.

FWIW I think I'm being really careful about CC -- I use gluten-free soap, lotion. shampoo and conditioner. I bought a separate toaster and all new spoons (since I am not going to buy any gluten-y noodles anymore I figured I'd start over) and a new cutting board just for me and my son. The ONLY thing I'm still using until I can find a replacement I like is the colander, but it's metal and I cleaned it out pretty well.

Any thoughts? Anyone been through this? Help -- and thank you for reading!

This sounds like hypoglycemia. Are you eating enough? You'd be amazed at the amount of calories needed for breastfeeding. :o

Try to eat small and frequent meals, avoid simple carbohydrates (which will spike your blood sugar and lead to a quick drop), add some fibre to your diet (brown rice, gluten free oats if you feel safe eating them), and make sure to work some protein in at every meal. Also eat as soon as you get up first thing in the morning.

Make sure you are not dehydrated. Have you ever been told your blood pressure was low?

If things do not improve or your symptoms get worse, please see your doctor. It is a mistake that a lot of people make in trying to self-diagnose Celiac/GI. I'm not saying you should go back on gluten (especially not in the breastfeeding case), but rather that if GI is *not* your problem, you are not treating what the real problem is and your symptoms will not go away. This is why people NEED to see their doctors before just starting a gluten-free diet, in case it's *not* Celiac.

I'm all for the gluten-free diet, but if you don't have Celiac/GI, it not going to resolve your problems.

jerseyangel Proficient

I would suggest fasting bloodwork to check for blood sugar, thyroid and anemia. I was anemic, and it caused me dizziness and weakness/fatigue.

Also, the collander is a problem--I'd replace it ;)

New Mama Rookie
I would suggest fasting bloodwork to check for blood sugar, thyroid and anemia. I was anemic, and it caused me dizziness and weakness/fatigue.

Also, the collander is a problem--I'd replace it ;)

I did replace the colander. :)

I recently had some bloodwork done to check for anemia and my thyroid, among other things. It wasn't a "fasting" test, though. Is that more accurate?

I'm actually currently working on the hypothesis that it's yeast overgrowth and am doing Bee's Candida Diet. If that doesn't seem to be working I'll go back to my doctor (actually, I'll see a new one, since I was not happy with my old one).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rosewynde Rookie

With warmer weather and breastfeeding it might be dehydration or low on electrolytes. Have you checked that out?

New Mama Rookie
With warmer weather and breastfeeding it might be dehydration or low on electrolytes. Have you checked that out?

No, I haven't. But I have been feeling this way for a long time, in winter (in Wisconsin) too.

loraleena Contributor

Did you get your thyroid peroxidase anibodies checked. This would show autoimmune hypothyroidism. Most docs do not do it. The TSH test is extremely innacurate. The antibody test should be under 20. If your TSH was over 2 that is an indicator. The range is .3-3 Make sure your doc as the most recent range.

loraleena Contributor

Did you get your thyroid peroxidase anibodies checked. This would show autoimmune hypothyroidism. Most docs do not do it. The TSH test is extremely innacurate. The antibody test should be under 20. If your TSH was over 2 that is an indicator. The range is .3-3 Make sure your doc as the most recent range.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,408
    • Most Online (within 30 mins)
      7,748

    Angela VT
    Newest Member
    Angela VT
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.