Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lightheadedness & Weakness


New Mama

Recommended Posts

New Mama Rookie

I haven't been diagnosed as GI/CI, but my son was (through EnteroLab), and since he's still nursing I thought I'd better go gluten-free/CF along with him. I do suspect I am GI as well. Some of my "symptoms" were light-headness and weakness.

After going gluten-free a few months ago I immediately felt better, but now I'm feeling that way again. It's worse right when I get up, better after I eat something (or at least eating makes me feel better).

I think I am deficient in folic acid, which I know can lead to dizziness, so I just started taking my supplements regularly again the other night. But I'm wondering if there's something else going on. Hypoglycemia? Another sensitivity? Gluten still working its way out of my system?

My son also nurses at night still, so I haven't had a full night's sleep in years, but I'm pretty much used to that.

FWIW I think I'm being really careful about CC -- I use gluten-free soap, lotion. shampoo and conditioner. I bought a separate toaster and all new spoons (since I am not going to buy any gluten-y noodles anymore I figured I'd start over) and a new cutting board just for me and my son. The ONLY thing I'm still using until I can find a replacement I like is the colander, but it's metal and I cleaned it out pretty well.

Any thoughts? Anyone been through this? Help -- and thank you for reading!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



New Mama Rookie

Bumping...anyone?

Byte Me Apprentice

Hi!

It's possible the colander could still be causing a problem. I was very stubborn at first, not believing some things could hold onto gluten forever, and had occasional problems until I finally gave in and replaced everything as suggested.

Another possibility is you might have a virus. There is a super nasty one going around, all over the country it seems... my kids and I had it for almost a week. There were several days of lots of dizziness/light-headedness and weakness and I didn't even realize it was a virus, until all of us got the same symptoms and then the icky bathroom part of it kicked in. <_<

SunnyDyRain Enthusiast

I'm not well versed in Diabetes, but I think low blood sugar might be a option. If your body is being drained by BF at night, by the morning you might really need some sugar. That would explain why you feel better after you eat. Do you eat while/after BF?

I'd look into that and perahaps be tested for diabetes.

that's just my opinion, and i'm not real familiar with diabetes or BF.

Oh, and yeah..get a new colander.. even get a cheapy until you find one you like. I love the new collapsible ones they have now made out of silicone!

  • 2 weeks later...
Guest Doll
I haven't been diagnosed as GI/CI, but my son was (through EnteroLab), and since he's still nursing I thought I'd better go gluten-free/CF along with him. I do suspect I am GI as well. Some of my "symptoms" were light-headness and weakness.

After going gluten-free a few months ago I immediately felt better, but now I'm feeling that way again. It's worse right when I get up, better after I eat something (or at least eating makes me feel better).

I think I am deficient in folic acid, which I know can lead to dizziness, so I just started taking my supplements regularly again the other night. But I'm wondering if there's something else going on. Hypoglycemia? Another sensitivity? Gluten still working its way out of my system?

My son also nurses at night still, so I haven't had a full night's sleep in years, but I'm pretty much used to that.

FWIW I think I'm being really careful about CC -- I use gluten-free soap, lotion. shampoo and conditioner. I bought a separate toaster and all new spoons (since I am not going to buy any gluten-y noodles anymore I figured I'd start over) and a new cutting board just for me and my son. The ONLY thing I'm still using until I can find a replacement I like is the colander, but it's metal and I cleaned it out pretty well.

Any thoughts? Anyone been through this? Help -- and thank you for reading!

This sounds like hypoglycemia. Are you eating enough? You'd be amazed at the amount of calories needed for breastfeeding. :o

Try to eat small and frequent meals, avoid simple carbohydrates (which will spike your blood sugar and lead to a quick drop), add some fibre to your diet (brown rice, gluten free oats if you feel safe eating them), and make sure to work some protein in at every meal. Also eat as soon as you get up first thing in the morning.

Make sure you are not dehydrated. Have you ever been told your blood pressure was low?

If things do not improve or your symptoms get worse, please see your doctor. It is a mistake that a lot of people make in trying to self-diagnose Celiac/GI. I'm not saying you should go back on gluten (especially not in the breastfeeding case), but rather that if GI is *not* your problem, you are not treating what the real problem is and your symptoms will not go away. This is why people NEED to see their doctors before just starting a gluten-free diet, in case it's *not* Celiac.

I'm all for the gluten-free diet, but if you don't have Celiac/GI, it not going to resolve your problems.

jerseyangel Proficient

I would suggest fasting bloodwork to check for blood sugar, thyroid and anemia. I was anemic, and it caused me dizziness and weakness/fatigue.

Also, the collander is a problem--I'd replace it ;)

New Mama Rookie
I would suggest fasting bloodwork to check for blood sugar, thyroid and anemia. I was anemic, and it caused me dizziness and weakness/fatigue.

Also, the collander is a problem--I'd replace it ;)

I did replace the colander. :)

I recently had some bloodwork done to check for anemia and my thyroid, among other things. It wasn't a "fasting" test, though. Is that more accurate?

I'm actually currently working on the hypothesis that it's yeast overgrowth and am doing Bee's Candida Diet. If that doesn't seem to be working I'll go back to my doctor (actually, I'll see a new one, since I was not happy with my old one).


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rosewynde Rookie

With warmer weather and breastfeeding it might be dehydration or low on electrolytes. Have you checked that out?

New Mama Rookie
With warmer weather and breastfeeding it might be dehydration or low on electrolytes. Have you checked that out?

No, I haven't. But I have been feeling this way for a long time, in winter (in Wisconsin) too.

loraleena Contributor

Did you get your thyroid peroxidase anibodies checked. This would show autoimmune hypothyroidism. Most docs do not do it. The TSH test is extremely innacurate. The antibody test should be under 20. If your TSH was over 2 that is an indicator. The range is .3-3 Make sure your doc as the most recent range.

loraleena Contributor

Did you get your thyroid peroxidase anibodies checked. This would show autoimmune hypothyroidism. Most docs do not do it. The TSH test is extremely innacurate. The antibody test should be under 20. If your TSH was over 2 that is an indicator. The range is .3-3 Make sure your doc as the most recent range.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,763
    • Most Online (within 30 mins)
      7,748

    Donna Williamson
    Newest Member
    Donna Williamson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      For back pain, I take a combination of Cobalamine B12, Pyridoxine B 6, and Thiamine B 1 (in the form Benfotiamine), which have an analgesic effect.  These three B vitamins together work way better than those over the counter pain relievers.  Theses are water soluble B vitamins that are easily excreted via the kidneys if not needed.  Thiamine will also help the nausea. Interesting Reading... Mechanisms of action of vitamin B1 (thiamine), B6 (pyridoxine), and B12 (cobalamin) in pain: a narrative review https://pubmed.ncbi.nlm.nih.gov/35156556/#:~:text=Some of these processes include,Analgesics
    • knitty kitty
      @stephaniekl, welcome to the forum, Is your daughter taking any nutritional supplements?   Weight loss and failure to thrive are two symptoms of thiamine insufficiency.  Thiamine deficiency symptoms are not recognized as such by doctors.   I experienced similar symptoms when I became malnourished.  Thiamine deficiency symptoms can become worse quickly, and can affect one emotionally and mentally.  Although blood tests for thiamine aren't accurate, do have your daughter checked for nutritional deficiencies.  Thiamine B 1 works with the other B vitamins and magnesium.  Thiamine and Niacin B 3 help improve Gerd.  All the B vitamins are frequently low due to malabsorption.  Vitamin D will help calm the immune system.  Thiamine helps the immune system fight off viruses like those tick borne illnesses.   Thiamine Mononitrate, which is in many vitamin supplements, is not bioavailable.  I was taking a multivitamin containing thiamine mononitrate and still became deficient in thiamine. Thiamine in the form Benfotiamine has been shown to promote intestinal healing.  A form called TTFD (tetrahydrofurfuryl disulfide) is also excellent for correcting thiamine deficiency.  A combination of Thiamine, Cobalamine B12, and Pyridoxine B 6 has analgesic properties.  I take it for back pain.   Keep us posted on your progress! Interesting Reading... The importance of thiamine (vitamin B1) in humans https://pmc.ncbi.nlm.nih.gov/articles/PMC10568373/#:~:text=Thiamine absorption in the jejunum,system [51–53].
    • trents
      Has prednisone or some other systemic steroid been tried that might quiet her immune system down for a while? I have two acquaintances with Lyme's disease. It is a wicked condition that has long fingers.
    • stephaniekl
      We have.  She is so limited as to what she can eat.  She has a nutritionist, but they are even at a loss.  Right now, her pain is so significant that she can only eat 5-10 bites a meal.   We just got some labs back today and she is hypoglycemia, anemic and her immune system is shot.  She also is positive for 3 tickborne illnesses.  Thanks for your help! 
    • RMJ
      A much better suggestion than that of the new doctor!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.