Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Positve Bloodwork-biopsy Gastritis And Colitis No Celiac

kay777

Recommended Posts

kay777 Newbie
kay777
Posted

I have been reading the forum for a couple months trying to learn what is going on with my health. When I was 2 years old I was in the hospital for diverticulitis and I don' know about infancy, however, I have had digestion, fatigue and anemia issues ever since. Here's the deal. I had asked my doctor to test me for wheat allergies and it came back:

(tTG) IgA 4 weak positive 4-10

Abs IgG 21 Positive>9

Abs IgA 7 Positve > 4

Endoscopy - Gastritis

Colonoscopy - Colitis

My doctor does not seem to understand that I would be releived to know that the problem was gluten and could get better. He still is not convinced that I have Celiac. due to the negative biopsies. He has me taking Pepto Bismo for 6 weeks and then the swallow the camera capsule deal. These tests are expensive and I guess what I'm asking is ...is the bloodwork enough to go on and the fact that I feel better on the gluten free diet. My concern is the "d" as everyone puts it has not gotten better and makes me nervous that there is something else wrong and it is not related to the gluten. I so just want to get on with my life and take care of the "d" and have some energy for a change. Would love to hear your thoughts! Thanks in advance!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Ursa Major Collaborator
Ursa Major
Posted

Are you still consuming dairy? That is a possible reason why you still have diarrhea despite being gluten-free. Try eliminating all gluten and dairy (and I'd recommend soy as well) to see if it makes a difference.

TrillumHunter Enthusiast
TrillumHunter
Posted

Positive is positive! They have to draw a cut off number somewhere and you have reached it. There are researchers that would argue a positive biopsy is unnecessary.

I was diagnosed solely on positive blood work about eight weeks ago and I HAVEN'T FELT THIS GOOD IN 13 YEARS!!!! I cannot tell you what an enormous difference this has made in my life. Yes, it can be an adjustment but what a difference to wake up without pain, D and depression. I can't eat dairy yet either and really, if I never can, I don't care. I can ride my bike with my kids! I can go to the store without a list! I am alive now!!! I'm toying with the idea of getting my master's now! Unheard of for me!

Give up dairy. Get all sources of gluten out of your life. (there are lots!) Eat simple, low fat, gluten-free meals for a while and see what happens! You won't lose any thing and you might actually gain your life!! I know I did!

kay777 Newbie
kay777
Posted
  • Author
Are you still consuming dairy? That is a possible reason why you still have diarrhea despite being gluten-free. Try eliminating all gluten and dairy (and I'd recommend soy as well) to see if it makes a difference.

I am still trying to understand how to work the forum and gluten...now I am moving on to dairy and soy. I had just started to add soy and not completely taken out the dairy, but I had a feeling the dairy had to go...never thought about soy, but I have been reading about it and it sounds like it needs to go too. I'm getting ready to go back to work tomorrow after being off and working at home for awhile and dealing with my meals...figuring out lunch and breakfast for 5am feels like a full time job? Any ideas? P.S. Does itchy ears have anything to do with dairy...and how did you find out you were allergic to potatoes....I crave them! Thanks!

kay777 Newbie
kay777
Posted
  • Author
Positive is positive! They have to draw a cut off number somewhere and you have reached it. There are researchers that would argue a positive biopsy is unnecessary.

I was diagnosed solely on positive blood work about eight weeks ago and I HAVEN'T FELT THIS GOOD IN 13 YEARS!!!! I cannot tell you what an enormous difference this has made in my life. Yes, it can be an adjustment but what a difference to wake up without pain, D and depression. I can't eat dairy yet either and really, if I never can, I don't care. I can ride my bike with my kids! I can go to the store without a list! I am alive now!!! I'm toying with the idea of getting my master's now! Unheard of for me!

Give up dairy. Get all sources of gluten out of your life. (there are lots!) Eat simple, low fat, gluten-free meals for a while and see what happens! You won't lose any thing and you might actually gain your life!! I know I did!

Thank you for the support! I have been dealing with this for 48 years so I think I was a little impatient with the GI doctor's insensitivity. I don't think I will go back and will look for a more alternative doctor. I am working on taking the dairy and soy out today. My mood had been really up beat when I took the gluten out of my diet after finding out about my blood work from my primary doctor...except for a period of withdrawl....hmmm...wonder if it could have been from the gluten???? Do you have times when you question if you got some gluten in by mistake or did taking the dairy out pretty much clear things up? again thanks for the support.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Gluten Free Sugar or Starch known to increase gas?

      Even if you don't have Celiac Disease, you can still get SIBO. Glad to hear you're taking the vitamins and magnesium! Are you getting sufficient Omega Three oils like flaxseed, olive oil, or Sunflower seed oil? I didn't like coconut oil because it upset my digestive tract. How is your Vitamin D level?
    2. xxnonamexx
      - xxnonamexx replied to xxnonamexx's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      Gluten Free Sugar or Starch known to increase gas?

      I was looking at SIBO but I don't think I fall into that category. Yes I eat meat. I don't think I'm celiac I think I am just gluten intolerant but I take multivitamin, Super B Complex, Benfo with Thiam, Thiamax, Neuromag that you suggested.
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Lotte18's topic in Publications & Publicity
      17

      Prospective CRISPR research

      @Lotte18, thank you for providing this page from the research proposal. Some comments, if I may (apologies for what you already know): They start by saying that previous research has shown that it's possible to modify the HLA-DQA1 gene and have that new version expressed "in humans" (not sure if they mean intact humans or just cells in culture). This...
    4. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      21

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you for that info too!! will keep this in mind if he ends up in the ER again!
    5. knitty kitty
      - knitty kitty replied to lehum's topic in Super Sensitive People
      14

      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      @Heavenly Flower and @lehum, How are you doing? My favorite book is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself. This book explains the AutoImmune Protocol Diet (AIP diet) which is the diet I follow. Yes, it is very strict, just meat, veggies and some fruit. But it really works. You cut back to just meat and veggies...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,769
    • Most Online (within 30 mins)
      7,748
    Butterfly26
    Newest Member
    Butterfly26
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Gluten Free Sugar or Starch known to increase gas?

      By knitty kitty · Posted

      Even if you don't have Celiac Disease, you can still get SIBO.   Glad to hear you're taking the vitamins and magnesium!   Are you getting sufficient Omega Three oils like flaxseed, olive oil, or Sunflower seed oil?   I didn't like coconut oil because it upset my digestive tract.   How is your Vitamin D level?
    • xxnonamexx
      Gluten Free Sugar or Starch known to increase gas?

      By xxnonamexx · Posted

      I was looking at SIBO but I don't think I fall into that category. Yes I eat meat. I don't think I'm celiac I think I am just gluten intolerant but I take multivitamin, Super B Complex, Benfo with Thiam, Thiamax, Neuromag that you suggested.
    • Aretaeus Cappadocia
      Prospective CRISPR research

      By Aretaeus Cappadocia · Posted

      @Lotte18, thank you for providing this page from the research proposal. Some comments, if I may (apologies for what you already know): They start by saying that previous research has shown that it's possible to modify the HLA-DQA1 gene and have that new version expressed "in humans" (not sure if they mean intact humans or just cells in culture). This is a standard form of scientific communication where you explain what is already known as it relates to what you want to do next. The HLA-DQA1 gene encodes 1/2 of a series of "locks" from my earlier metaphor. Two of the types of locks that can be made by variants of this gene are called DQ2.5 and DQ8 (either of which will confer susceptibility to celiac). DQ2.5, DQ8, and other DQ's are referred to as "heterodimers" - "dimer" means made up of exactly 2 pieces and "hetero" means that the pieces are not identical to one another (identical parts would be homodimer). HLA-DQA1 genes each make a protein that becomes one of the two parts of a series of heterodimers. Different forms of HLA-DQA1 are called "variants" or "alleles".  Next they say that they propose to use the same technology in attempt to minimize/cure celiac. The idea is reasonable science and before considering all of the caveats it certainly has merit as something to consider. As a side note, I would challenge some of their language. DQ2.5 and not-2.5 are both "variants" or "alleles" - one is not "wildtype" nor the other "mutant". Their proposal is to "modify", not "correct" the gene. This might sound picky but I have a background in genetics and this is jarring to me. The last paragraph outlines more of the roadmap for their proposal using relatively mundane steps (apheresis) and relatively advanced steps (CAR-T). There is a logic to their approach but there are severe caveats. CAR-T is kind of a nuclear option. It has shown many miracle cures in certain kinds of cancer and it is being studied for some kinds of life-threatening autoimmune disease. It also has devastating side effects. If tomorrow someone offered me a fully validated CAR-T procedure for celiac along the lines of this proposal, based on my understanding of the risks I would turn them down. Separately, I would also have concerns about the "off target" risk of the CRISPR part of the procedure. In addition to funding issues, there may be significant ethical issues that would challenge their proposal. Human clinical trial proposals go through extensive review before they are approved and one of the significant considerations is whether the risks to the patient are warranted (relative to the benefit). If a procedure has really horrible side effects but it is the only available option for a dying patient, the review board is likely to approve. However, if there is a much less harmful treatment option that delivers enough of a benefit, then there is a higher chance that the trial would not be approved. For celiacs, the availability and relative effectiveness of gluten-free diet will raise the bar for trying risky therapies in the clinic. Science and medicine constantly progress, so it's entirely possible that someday there will be a safe and effective genetic "cure" for celiac. However not anytime soon and I believe it would only come after these CAR-T procedures have become routine in the treatment of a long list of other diseases. In a world of unlimited funding for scientific research I would definitely fund this proposal. In the world of tight competition for research funding that we live in I would need to know a lot more about their proposal and the greater context of how it fits in with other research before I would give them money at this time (not that anyone is asking me).
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you for that info too!! will keep this in mind if he ends up in the ER again! 
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      @Heavenly Flower and @lehum, How are you doing?   My favorite book is The Paleo Approach by Dr. Sarah Ballantyne, a Celiac herself.   This book explains the AutoImmune Protocol Diet (AIP diet) which is the diet I follow.  Yes, it is very strict, just meat, veggies and some fruit.  But it really works.  You cut back to just meat and veggies to let your digestive system calms and starts healing.  Then you add back foods slowly looking for intolerance symptoms.  Supplementing with B Complex vitamins, Vitamin D and minerals like Magnesium ensures you're receiving sufficient nutrients needed to heal.  Correcting any vitamin deficits is important in Celiac disease.   Hope you're doing well!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.