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Positve Bloodwork-biopsy Gastritis And Colitis No Celiac

kay777

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kay777 Newbie
kay777
Posted

I have been reading the forum for a couple months trying to learn what is going on with my health. When I was 2 years old I was in the hospital for diverticulitis and I don' know about infancy, however, I have had digestion, fatigue and anemia issues ever since. Here's the deal. I had asked my doctor to test me for wheat allergies and it came back:

(tTG) IgA 4 weak positive 4-10

Abs IgG 21 Positive>9

Abs IgA 7 Positve > 4

Endoscopy - Gastritis

Colonoscopy - Colitis

My doctor does not seem to understand that I would be releived to know that the problem was gluten and could get better. He still is not convinced that I have Celiac. due to the negative biopsies. He has me taking Pepto Bismo for 6 weeks and then the swallow the camera capsule deal. These tests are expensive and I guess what I'm asking is ...is the bloodwork enough to go on and the fact that I feel better on the gluten free diet. My concern is the "d" as everyone puts it has not gotten better and makes me nervous that there is something else wrong and it is not related to the gluten. I so just want to get on with my life and take care of the "d" and have some energy for a change. Would love to hear your thoughts! Thanks in advance!

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Ursa Major Collaborator
Ursa Major
Posted

Are you still consuming dairy? That is a possible reason why you still have diarrhea despite being gluten-free. Try eliminating all gluten and dairy (and I'd recommend soy as well) to see if it makes a difference.

TrillumHunter Enthusiast
TrillumHunter
Posted

Positive is positive! They have to draw a cut off number somewhere and you have reached it. There are researchers that would argue a positive biopsy is unnecessary.

I was diagnosed solely on positive blood work about eight weeks ago and I HAVEN'T FELT THIS GOOD IN 13 YEARS!!!! I cannot tell you what an enormous difference this has made in my life. Yes, it can be an adjustment but what a difference to wake up without pain, D and depression. I can't eat dairy yet either and really, if I never can, I don't care. I can ride my bike with my kids! I can go to the store without a list! I am alive now!!! I'm toying with the idea of getting my master's now! Unheard of for me!

Give up dairy. Get all sources of gluten out of your life. (there are lots!) Eat simple, low fat, gluten-free meals for a while and see what happens! You won't lose any thing and you might actually gain your life!! I know I did!

kay777 Newbie
kay777
Posted
  • Author
Are you still consuming dairy? That is a possible reason why you still have diarrhea despite being gluten-free. Try eliminating all gluten and dairy (and I'd recommend soy as well) to see if it makes a difference.

I am still trying to understand how to work the forum and gluten...now I am moving on to dairy and soy. I had just started to add soy and not completely taken out the dairy, but I had a feeling the dairy had to go...never thought about soy, but I have been reading about it and it sounds like it needs to go too. I'm getting ready to go back to work tomorrow after being off and working at home for awhile and dealing with my meals...figuring out lunch and breakfast for 5am feels like a full time job? Any ideas? P.S. Does itchy ears have anything to do with dairy...and how did you find out you were allergic to potatoes....I crave them! Thanks!

kay777 Newbie
kay777
Posted
  • Author
Positive is positive! They have to draw a cut off number somewhere and you have reached it. There are researchers that would argue a positive biopsy is unnecessary.

I was diagnosed solely on positive blood work about eight weeks ago and I HAVEN'T FELT THIS GOOD IN 13 YEARS!!!! I cannot tell you what an enormous difference this has made in my life. Yes, it can be an adjustment but what a difference to wake up without pain, D and depression. I can't eat dairy yet either and really, if I never can, I don't care. I can ride my bike with my kids! I can go to the store without a list! I am alive now!!! I'm toying with the idea of getting my master's now! Unheard of for me!

Give up dairy. Get all sources of gluten out of your life. (there are lots!) Eat simple, low fat, gluten-free meals for a while and see what happens! You won't lose any thing and you might actually gain your life!! I know I did!

Thank you for the support! I have been dealing with this for 48 years so I think I was a little impatient with the GI doctor's insensitivity. I don't think I will go back and will look for a more alternative doctor. I am working on taking the dairy and soy out today. My mood had been really up beat when I took the gluten out of my diet after finding out about my blood work from my primary doctor...except for a period of withdrawl....hmmm...wonder if it could have been from the gluten???? Do you have times when you question if you got some gluten in by mistake or did taking the dairy out pretty much clear things up? again thanks for the support.

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      how much gluten do I need to eat before blood tests?

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