Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Weight Gain After Diagnosis

MJS

By MJS
in Related Issues & Disorders

Recommended Posts

MJS Rookie
MJS
Posted

I was diagnosed last summer, and after starting the diet I immediately began gaining weight. It was strange because for the last two years before I was diagnosed, I had been losing weight steadily.

All of a sudden, over a course of two months, I gained almost 20 pounds. It has been a year since the diagnosis, and I have only been able to lose 10 of the pounds.

Did this happen to anyone else? What did you do?

I have been eating healthy food and maintained a good excercise regimen. I wish my body would just go back to normal.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cmom Contributor
cmom
Posted

I have been fighting the same problem for the past 2 years. I go to a personal trainer once a week, exercise, am positively gluten-free, and honestly feel like I do not eat excessively. At this time, I weigh the most I ever have in my life. I must be absorbing everything I look at! I still have the bloating and spent 30 minutes a couple weeks ago trying on clothes before I could find something that fit. I was in tears by that time. I am miserable!

bsb6 Newbie
bsb6
Posted

I too was diagnosed last summer and now weigh 20 lbs more than I had. I lost 40 lbs

after hip surgery, that is when the Celiac kicked in, then gained back the 40 + another 20.

You say you want to go back to "normal", but it wasn't normal. That was why you

were losing weight. I too feel like my body grabs every single calorie it take in and

long for the "good old days". I eat better & excersize more than ever, walking about

4 miles 5-6 days a week, which got me out of my osteoperosis.

It is a lot to handle, but your not alone. The support group out here in the western suburbs

of Chicago has a number of people fighting the same battles. There aren't any easy answers.

I'm still so thankful that I didn't have to start this 5-10 years ago, when it had to have been

much more difficult.

Good Luck

maryhult Newbie
maryhult
Posted

[

maryhult Newbie
maryhult
Posted

I understandi your frustration. I was diagnosed about a year and a half ago, and since then I've gained about 40 lbs. I'm miserable and am looking for a diet that will help me to shed these extra pounds. I've been trying to use Weight Watchers, but I feel hungry all the time, and have been very unsuccessful. If anyone has any suggestions, please post them. I've got to find a way to get this extra weight off.

Carolyn17 Newbie
Carolyn17
Posted

Me too ... I have never had a weight problem like I am having now. It is absolutely depressing! It's nice to know that I'm not the only one having this problem.

I was diagnosed about 4 months ago, and almost immediately after starting the diet I started gaining weight. I have gained about 30 lbs so far. It doesn't seem to matter what I eat or how much I work out ... I just keep gaining weight. It is very frustrating.

I started taking Alli when it came out a few weeks ago -- but haven't noticed any results yet. :( At this point I would do almost anything to get the extra weight off.

celiac-mommy Collaborator
celiac-mommy
Posted
Me too ... I have never had a weight problem like I am having now. It is absolutely depressing! It's nice to know that I'm not the only one having this problem.

I was diagnosed about 4 months ago, and almost immediately after starting the diet I started gaining weight. I have gained about 30 lbs so far. It doesn't seem to matter what I eat or how much I work out ... I just keep gaining weight. It is very frustrating.

I started taking Alli when it came out a few weeks ago -- but haven't noticed any results yet. :( At this point I would do almost anything to get the extra weight off.

What are you all doing to try to lose the weight? If I knew, I could try to help. I'm not a certified nutritionist-so keep that in mind, but I manage my daughter's gluten-free diet and I have set up diet and exercise plans for quite a few people-friends and co-workers. I have a friend and her sister who I have worked with steadily in the past 2 months and they're both doing great and losing weight steadily. Here's my history:

-"normal" physique through childhood and early adulthood

-got married, gained a LOT of weight

-got motivated, lost 20#

-got pregnant, gained 35#

-over the next 2 years, lost 100#!!! kept it off for 1 year

-got pregnant, gained 45#

-lost 50#

-maintained for the last year and am smaller than I was in high school!

If there's anything I can do, I'd be happy to help.

-Rachelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hornbeck0920 Apprentice
hornbeck0920
Posted
What are you all doing to try to lose the weight? If I knew, I could try to help. I'm not a certified nutritionist-so keep that in mind, but I manage my daughter's gluten-free diet and I have set up diet and exercise plans for quite a few people-friends and co-workers. I have a friend and her sister who I have worked with steadily in the past 2 months and they're both doing great and losing weight steadily. Here's my history:

-"normal" physique through childhood and early adulthood

-got married, gained a LOT of weight

-got motivated, lost 20#

-got pregnant, gained 35#

-over the next 2 years, lost 100#!!! kept it off for 1 year

-got pregnant, gained 45#

-lost 50#

-maintained for the last year and am smaller than I was in high school!

If there's anything I can do, I'd be happy to help.

-Rachelle

Could you help me? I've been gluten-free for a month and I don't know how much weight I've gained (or even if I'm a celiac - I'm gluten-free for my baby's sake) but my pants don't fit anymore. I can tell by looking in the mirror from the side that I'm bigger. My belly fat is firmer so maybe it's water weight, but why?

celiac-mommy Collaborator
celiac-mommy
Posted
Could you help me? I've been gluten-free for a month and I don't know how much weight I've gained (or even if I'm a celiac - I'm gluten-free for my baby's sake) but my pants don't fit anymore. I can tell by looking in the mirror from the side that I'm bigger. My belly fat is firmer so maybe it's water weight, but why?

I would be so happy to help! You let me know the easiest way to keep in touch with you and I'm there for you! There are a few things that I will need to know to get started- Current height and weight, activity level, amount of exercise and what type, and a basic weekly schedule-wake, sleep, work, etc... just to give me an idea on where/how to start you. Also are you just gluten-free or are there other restricitons? You can personal message me if you feel more comfortable.

-Rachelle

  • 2 weeks later...
cindy lou Newbie
cindy lou
Posted

Eating gluten free is certainly necessary for us all, but make sure you are also not missing any other allergies. I highly recommend metabolic typing- it has worked wonders for me and I realized I spent my entire life not only poisoning myself (favorite foods of mac and cheese, pasta, Vienna sausages, etc) but also eating completely wrong for my body. A short little free test is at:

Open Original Shared Link

Try it out and see what you are. I am an extremely strong protein type but my fiancee is a complete carb type! We have double/separate meals most of the time, but soups and flax bread-based pizza work great- you can add whatever suits your body more- veggies and grains or meats/proteins.

PosNrg Newbie
PosNrg
Posted

Hi

I also rapidly gained weight after going gluten-free. My Dr.'s response "Well, you have to learn to eat less!" At first I was mad, I thought he was being smart with me, but he went on to explain that for years (even though I was thin) I was actually over eating because my body was demanding it. (The need for nutrients not being properly absorbed) Of course I never felt I was an overeater but this had logic to it. I tried to reduce my portion quantities and snacking (all habits for years). I had always been a person to exercise but I also increased that. I can report that progress is slow but weight is coming off. Hope this helps

PosNrg

  • 2 weeks later...
NWLAX36Mom Rookie
NWLAX36Mom
Posted

I too have been fighting this problem. I am an athlete and have always been lean and muscular. I became gluten freen in February and can hardly fit into clothes that I have worn for years. I miss seeing any definition in my muscles. It is so frustrating!

Lately I have been trying to eat very few refined/processed foods. I'm trying to rely on fresh fruits, vegetables and lean proteins. Hopefully, that will make a difference because I definitely do get enough exercise.

7-cody Apprentice
7-cody
Posted

I'm 6' and only weight 170...

I'd love to gain 30 lbs. Hopefully that'll happen now that I'm starting my gluten-free diet.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get cal...
    2. knitty kitty
      - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms. The tTg IgA antibodies are made in the intestines. While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten...
    3. Trish G
      - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

      Thanks, that's a great addition that I hadn't thought of.
    4. trents
      - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    5. trents
      - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748
    tealangel09
    Newest Member
    tealangel09
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • NanceK
      My only proof

      By NanceK · Posted

      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.