Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Malaria Medications


OceanGirl78

Recommended Posts

OceanGirl78 Newbie

I need help with malaria meds!! I am traveling to Sudan, Africa in a few weeks and need to take malaria meds. There are four options from what I have discovered.

One I cannot take because the malaria strains are resistant to it.

One I cannot take because I have a history of depression.

Doxycycline makes you extremely sensitive to the sun (I am blonde and very fair - already have problems with the sun AND I am traveling directly from there to the Seychelle ISLANDS to get married and relax on the beach for 10 days). They said I would need to wear a widebrim hat and keep completely covered while in the sun...not going to be possible!!! :o

The last one that they want to give me is malarone and I am currently battling with Glaxo Smith Kline about the fact that they do not know where their starch comes from...at present I am waiting for a return call from someone there. There is not a generic. :angry:

Does anyone have experience with this sort of situation, or with malarone? I spoke to my pharmacist and he told me to speak with a supervisor and mention a law suit because he said there is no way that they do not know what is in the medication....He said I just need to squeeze it out of them basically.... :(

Laurie


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



happygirl Collaborator

CarlaB should know...she is either on it now, or about to be on it. If she doesn't see this, PM her.

CarlaB Enthusiast

Currently I'm on Mepron, which is anti-protozoal (malaria). It's a horrid tasting liquid and is stronger than Malarone. Malarone contains the active ingredient of Mepron in it.

I haven't checked on the Malarone for it's gluten status because I wasn't ready to switch to something weaker yet ... the infection is still too strong.

What about quinine? Or Artemisia Annua?

Don't take the doxy ... I got sunburned with #35 sunscreen on THROUGH the car window!!!

BTW, I'm on Mepron in conjunction with Biaxin and Artemisia. The combination prevents resistance. I'm taking it for Babesia, which is malaria-like.

OceanGirl78 Newbie

Thanks Carla for the info!!!! I REALLY appreciate it! :rolleyes::P

I hope your infection starts to decrease soon! I'll let you know if/when I hear from GSK about the malarone. :o

Laurie

dlp252 Apprentice

This is probably the same info you already have because it looks like what might be included with the meds, but I found this on their website:

The inactive ingredients in both tablets are low-substituted hydroxypropyl cellulose, magnesium stearate, microcrystalline cellulose, poloxamer 188, povidone K30, and sodium starch glycolate. The tablet coating contains hypromellose, polyethylene glycol 400, polyethylene glycol 8000, red iron oxide, and titanium dioxide.

Open Original Shared Link

CarlaB Enthusiast

I'll look forward to hearing about the Malarone. When I previously researched sodium starch glycolate, I discovered that it's usually not from wheat ... so I took the chance. This was for a different medication than Malarone though. I usually react to small amounts, so I thought that would be the tell-tale sign. I'm on meds long term though ... I don't know that I'd do that right before a trip. ;)

Thanks for the well-wishes. The Babesia infection has gone down significantly and I only have symptoms for a few days a month. I have to have no symptoms for two months to get off the anti-malarials. It will take longer to get rid of the Lyme Disease though.

Have a wonderful trip!

Did you know tonic water was made to help prevent malaria? There is a small amount of quinine in it, so small I don't know how effective it is on its own, but it was areas that had malaria where gin and tonics were consumed.

Felidae Enthusiast

I took malarone in the past, but I didn't realize I was gluten intolerant at the time. Everyone I was with took the other options and they had some issues, not celiac related. I loved malarone, so if you can get the starch information from the manufacturer hopefully, you'll get some insight. That's pretty bad that they don't know their starch source.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 1 year later...
GeoGigi Newbie

I just faced the same decision about taking Malarone. I spoke to a representative from Glaxo Smith Kline. Some of the starch ingredients listed are questionable but they told me the sources were all from wood, cotton or potato. One of the starch ingredients was from an unspecified "fibrous starch" which they said usually means wood or cotton but they could not know for sure. That was good enough for me to decide to take it. Of course, they have the disclaimer that there may be minute traces of gluten before the ingredients reach them. I am going to take it and hope it will be fine.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Jmartes71's topic in Dermatitis Herpetiformis
      1

      Natural remedies

    2. - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Gluten and short-term memory.

    3. - Scott Adams replied to Suze046's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Reintroduction of Gluten

    4. - Scott Adams replied to Rejoicephd's topic in Coping with Celiac Disease
      2

      Draft gluten-free ciders… can they be trusted ?

    5. - Scott Adams replied to Mykidzz3's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      High Cost of Gluten-Free Foods


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,367
    • Most Online (within 30 mins)
      7,748

    nursengul
    Newest Member
    nursengul
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      While it's always important to approach internal use of essential oils with caution and ideally under the guidance of a qualified professional, your experience highlights the potential of complementary approaches when traditional medicine falls short. Many in the community are also interested in the intersection of natural wellness and gluten-free living, particularly for managing systemic inflammation and its various symptoms, so sharing your story is valuable. Your observation that it may also be helping with bloating is fascinating, as that could point to an overall reduction in inflammation. Thank you for sharing what is working for you!
    • Scott Adams
      It's interesting how a single, clear moment—like struggling during a game—can suddenly connect all the dots and reveal the hidden impact of gluten exposure. Your experience with short-term memory fog is a very real and documented symptom for many individuals with gluten sensitivity, often occurring alongside the other issues you mentioned like mood disturbances, sleep disruption, and digestive irregularity. It's a frustrating and often invisible effect that can make you feel unlike yourself, so that moment of clarity, though born from a tough dominoes match, is actually a powerful piece of self-knowledge. Identifying a specific culprit like that steak strip is a huge win, as it arms you with the information needed to avoid similar pitfalls in the future and protect your cognitive clarity. You are definitely not alone in experiencing this particular set of neurological and physical symptoms; it's a strong reminder of gluten's profound impact on the entire body, not just the digestive system. Supplementation may help you as well.  The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs. Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.      
    • Scott Adams
      Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS. What you're describing is a very common and frustrating experience when reintroducing gluten after a period of avoidance, and your timeline is perfectly consistent with a non-celiac gluten sensitivity. While a celiac reaction can be more immediate, a sensitivity reaction is often delayed, sometimes taking several days to manifest as your body's inflammatory response builds up; the fact that your symptoms returned a few days after reintroduction is a strong indicator that gluten is indeed the culprit, not a coincidence. Your doctor's advice to reintroduce it was necessary to confirm the diagnosis, as the initial negative celiac test and subsequent improvement on a gluten-free diet pointed strongly towards sensitivity. Many in this community have gone through this exact same process of elimination and challenging, and it's wise to reintroduce gently as you did. Given your clear reaction, the best course of action is likely to resume a strict gluten-free diet, as managing a sensitivity is the primary way to control those debilitating symptoms and allow your body to heal fully.
    • Scott Adams
      Your suspicion is almost certainly correct, and you are wise to be cautious. Draft cider is a very common and often overlooked source of cross-contact because the same tap lines are frequently used for both beer and cider; unless a bar has a dedicated line for gluten-free beverages, which is rare, the cider will run through tubing that has previously contained gluten-containing beer, contaminating your drink. The fact that you didn't react at a clean brewery suggests they may have had more meticulous practices or separate lines, but this is the exception, not the rule. Many in the community have had identical experiences, leading them to strictly avoid draft cider and opt for bottled or canned versions, which are poured directly from their sealed container and bypass the contaminated tap system entirely. Switching to bottles or cans is the safest strategy, and your plan to do so is a smart move to protect your health. PS - here are some articles on the topic:    
    • Scott Adams
      Your post really highlights the financial and emotional struggle so many families face. You are not alone in feeling frustrated by the high cost of gluten-free specialty items and the frustrating waste when your daughter can't tolerate them. A great place to start is by focusing on naturally gluten-free whole foods that are often more affordable and less processed, like rice, potatoes, beans, lentils, corn, eggs, and frozen fruits and vegetables—these are nutritional powerhouses that can form the basis of her meals. For the specialty items like bread and pasta, see if your local stores carry smaller, single-serving packages or allow returns if a product causes a reaction, as some companies understand this challenge. Regarding vitamins, that is an excellent next step; please ask her doctor to prescribe a high-quality gluten-free multivitamin, as insurance will often cover prescribed vitamins, making them much more affordable. Finally, connecting with a local celiac support group online can be a treasure trove of location-specific advice for finding the best and most affordable products in your area, saving you both time and money on the trial-and-error process. 
×
×
  • Create New...