Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Dd Had Scope Done This Morning


ptkds

Recommended Posts

ptkds Community Regular

My 14 month old dd had her scope and biopsy done this morning. They had to poke her 4 freakin' times to get the IV in. I was fine until the 3rd try, then I just started crying along with her.

Anyway, the dr saw ulcers in her stomach. We even got pics :unsure: .He said her intestines look somewhat ok, but he is pretty sure she has Celiac disease. He told me to put her on a gluten-free diet right now. So we should know something for sure from the biopsy in about 2 wks. My MIL is still saying it might not be Celiac disease, but I think it is just wishful thinking and she needs to accept reality! :P

On a sidenote, we stayed at the Ronald McDonald house last night since the hospital is nearly 2 hrs away from our home. Let me tell you, it was wonderful. They were the sweetest ppl, the place was wonderful, and they had TONS of food, though not 1 thing was gluten-free. So if you ever need to stay in one, don't hesitate. If you can afford to, donate to them. What they offer is fabulous. They had a bulletin board covered in pics of preemie and sick babies whose parents stayed there. It was very touching. And we saw 1 little girl who had a feeding tube in her nose. I don't know what was wrong w/ her, but I do know that it was a blessing for her and her family for them to stay so close to the hospital. Just my 2 cents!!

ptkds


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
My 14 month old dd had her scope and biopsy done this morning. They had to poke her 4 freakin' times to get the IV in. I was fine until the 3rd try, then I just started crying along with her.

Anyway, the dr saw ulcers in her stomach. We even got pics :unsure: .He said her intestines look somewhat ok, but he is pretty sure she has Celiac disease. He told me to put her on a gluten-free diet right now. So we should know something for sure from the biopsy in about 2 wks. My MIL is still saying it might not be Celiac disease, but I think it is just wishful thinking and she needs to accept reality! :P

On a sidenote, we stayed at the Ronald McDonald house last night since the hospital is nearly 2 hrs away from our home. Let me tell you, it was wonderful. They were the sweetest ppl, the place was wonderful, and they had TONS of food, though not 1 thing was gluten-free. So if you ever need to stay in one, don't hesitate. If you can afford to, donate to them. What they offer is fabulous. They had a bulletin board covered in pics of preemie and sick babies whose parents stayed there. It was very touching. And we saw 1 little girl who had a feeding tube in her nose. I don't know what was wrong w/ her, but I do know that it was a blessing for her and her family for them to stay so close to the hospital. Just my 2 cents!!

ptkds

I am so glad that it is over for you. It is so strange for me to know that a 14 month old can have ulsers. But, an so glad that you have some answers.

I have a friend who is in Washington DC, who heads up the McD's Houses and has been a help to another family here at Celiac.com. It's good work and they are dedicated. It is hard sometimes to imagine what is behind closed doors sometime.

They are a wonderful group for support.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - chrish42 replied to chrish42's topic in Doctors
      2

      Doctors and Celiac.com

    2. - Scott Adams replied to shirlane's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Is AG1 safe for Celiacs??

    3. - Scott Adams replied to chrish42's topic in Doctors
      2

      Doctors and Celiac.com

    4. - nataliallano replied to MagsM's topic in Related Issues & Disorders
      28

      Inflammation and Menier’s disease link?

    5. - Wheatwacked replied to Betsy Crum's topic in Related Issues & Disorders
      5

      Chest pain from celiac


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,257
    • Most Online (within 30 mins)
      7,748

    Y2Kimberly
    Newest Member
    Y2Kimberly
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • chrish42
      All I can say is this site is great!
    • Scott Adams
      From their website I see "organic barley leaf powder" as an ingredient. Keep in mind that the gluten is in the kernel, and not in the leaves. https://drinkag1.com/about-ag1/ingredients/ctr
    • Scott Adams
      Before the rise of social media we were well known by a lot of doctors and were recommended by many, especially our Safe & Forbidden Lists, but as doctors get younger and younger this is probably not happening as much as before. 
    • nataliallano
      Thanks Scott I will definitely check my vitamins and minerals to see what I am missing so then I can supplement. I was very concern about my Meniers syntoms and i tryed to find some alive. Now im just realizing that my celiac is provably the root cause of my Meniers none of the 12 doctors I saw told me anything about this.  This web site is so helpful, thanks to people like you we can get answers. 
    • Wheatwacked
      Vitamin D deficiency can contribute to rib pain. Chest pain stemming from the ribs ccould be costochondritis, which involves inflammation of the cartilage connecting the ribs to the breastbone. This pain can range from mild to severe, potentially mimicking heart attack symptoms, and is often worsened by breathing or movement. Other potential causes include muscle strain, rib fractures, or even referred pain from other conditions.  It will also help to chose vegetables low in omega 6.
×
×
  • Create New...