Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Colonoscopy Tomorrow


anerissara

Recommended Posts

anerissara Enthusiast

Ugh, I have a colonoscopy tomorrow and I'm really nervous about it! I don't know what I'm more worried about...the nasty prep I'm in for starting at 6 tonight or the procedure itself or the possibility of finding something really scary going on in my digestive tract. I'm sort of a mess!

The good news is that I really like my new gi doctor. I had to wait *months* to get in to see her, but she's really good. She listened to all my issues and she was very knowlegable about celiac's. She said that judging from my symptoms it was probable that I do have Celiac's and she's not recommending (at least at this point) that I go back on wheat to dx for sure. She said that she thinks the gluten-free diet is a really good one for anybody with gi issues, so if I'm doing OK on that she thinks I shouldn't change it. I'm hoping she can help get rid of the D that I still have even on the diet....but at this point as long as I don't have anything serious going on in there I really am at a point where I'm ready to accept the fact that I'll just always have digestive issues and leave it at that. I'm so sick of the whole thing!

Anyway, if it turns out OK tomorrow I will be so relieved. I just wish I could fast forward time and have it over with...I am so nervous!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Food for Life
Food for Life



Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.


dlp252 Apprentice

Yeah, I had my colonoscopy (and an endoscopy at the same time) last year. I had D and blood, but my colon was very healthy. They thought maybe I had C.Diff, or diverticulitus or polyps or something, but it was clean. The blood cleared up, but the D continued up until just a week or so ago. I did have a stomach polyp though and some esophagial damage.

And, yeah, the prep isn't much fun, lol! The thing I was most nervous about was the car ride over to the surgicenter LOL. The actual procedure itself wasn't too bad. Even the IV wasn't as bad as I thought it would be. I was sedated enough throughout the procedure that I remember nothing from the time they wheeled me into the room until I woke up in the recovery area. Apparently I was well sedated cuz it took me at least 30 minutes once I was "awake" to really wake up, lol.

Cruiser Bob Newbie

Well, I get to start my prep. at noon and go in for a scope on both end tomorrow also. I however am not too comfortable with the GI doc, as they screwed up my initial interview and now medical record. They had no idea they were doing a colonoscopy until I called them this morning to verify and I've got a strange feeling the diagnosis will by Chron's no matter what my insides look like, because that appears to be their big marketing push at this time.

We'll see, I still need to get my insides looked at to see what's going on. It's been 7 years gluten-free, 6+ diary & egg free (98%), 4+ years with almost no nightshades. Something is going on between the two ends that affects my whole being.

So tonight there will be at least two of us not having much fun, then tomorrow, then the wait for results, then getting a proper interpretation, then doing my own verfication, etc., etc.

Bob

anerissara Enthusiast

I'm nervous about the ride there, too...it's only a few blocks luckily but they have me taking the stuff starting again at 6 a.m., so hopefully I'll make it. dlp252, I'm glad everything turned out OK for you! I've had bleeding, too...it's been traced to an internal hemrroid, but I'm nervous that they'll find something else, too. I'm wondering if they'll say Chron's, for the same reason Cruiser Bob mentioned...it seems to be a popular dx right now. It's comforting that I won't be the only one sleeping in the bathroom tonight...what time is yours scheduled for? Mine's at 10:00. I'm praying that at this time tomorrow we'll both have a clean bill of health...at least as far as they can tell at the time. I am not looking forward to waiting for results, either.

dlp252 Apprentice

Well, I'll certainly be thinking of both of you! I think I had to get up at 3:00 a.m. the day I did mine because my appointment was early, lol. That's why I was so nervous about the ride. I think I took a towel with me to sit on just in case. :lol:

I thought I would get Chron's too, but nope, they couldn't even do that for me. :P I DID get the dreaded IBS tag though. :P

anerissara Enthusiast

I'll be sooooooooooo happy if I get the IBS tag, at least that means it's nothing serious and then I can go about trying to find ways to make it better.

But I share your frustration that there isn't a quick or easy fix! I wonder how many other people have IBS *and* Celiac's?

Ugh, here we go....I'm on the first cup of white grape juice and what appears to be liquid dish soap. Same basic ingredients, anyway, according to the label. It doesn't taste as bad as I expected, but then again I'm only 1/2 way through the first cup and I haven't experienced the nasty results as of yet. Wish me luck!

dlp252 Apprentice

Good luck! As I recall, I started getting worried because mine didn't kick in right away, but they had me start the morning OF my procedure! Keep some reading material in the bathroom and don't do anything that you can't drop in a hurry. :lol:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
NutHouse! Granola Co.
Daura Damm



Celiac.com Sponsor (A8-M):
Holidaily Brewing Co.


anerissara Enthusiast

Ugh, I can't wait. So far I don't feel anything except slightly sick from the salty taste and the fruit juice, which I never drink because it makes me sick. Sigh. I guess that I won't miss white grape juice after I get through tonight and tomorrow and never want to see it again, since I don't really like it anyway!

Teacher1958 Apprentice

I have a colonoscopy in less than three weeks and am really nervous already. My friends say they're a piece of cake, but I don't care for needles or anything invasive. I want to have things checked, though, because I've had symptoms since 1965- nope, that wasn't a typo- 1965. If everything in there is clear, I will be so happy, but once I get a gastroenterologist, he will probably recommend an endoscopy, too.

I had a bone scan today. I asked the technician when I'd receive the results, and she let me see the line graphs resulting from the scan. She emphasized that there's more to it than just the graphs, but at least they were well within the normal (green) range. Maybe my bones have not been affected.

Good luck tomorrow. Let us know how things went. Just think, 24 hours from now you'll be relaxing and it will be behind you.

anerissara Enthusiast

WhoooooHoooo! It's over!

And so far everything looks OK. There was an area of inflammation that the dr. thinks could be either just due to the procedure itself or maybe a bacterial thing (microscopic colitis maybe?) but other than that things looked OK. Whew!

And I have to say, the whole process was not nearly as bad as I thought it would be! The prep wasn't fun, but it wasn't that bad either. I was *totally* out for the whole thing and don't remember anything at all. The gas afterwards hasn't been bad either...I guess maybe because of my IBS that I've had for so long having D and gas is just no biggie.

Anyway thanks for all of your support and help, it was good to have some BTDT advice yesterday!

Cruiser Bob, how did it go for you?

dlp252 Apprentice

Glad it went okay for you and that things look good!!! Yay!

Teacher, good luck to you as well!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):
    Lakefront Brewery
    Tierra Farm




    Celiac.com Sponsors (A17-M):

    GliadinX



  • Recent Activity

    1. - Scott Adams replied to Lotte18's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      New painkiller, Journavx

    2. - Scott Adams replied to AllyJR's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      Confused about my results

    3. - Lotte18 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      New painkiller, Journavx

    4. - Lotte18 replied to FayeBr's topic in Coping with Celiac Disease
      4

      Corn reaction and ataxia

    5. - Scott Adams replied to NightRaven92's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      I am wondering if my symptoms are Celiac Disease related..


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      129,632
    • Most Online (within 30 mins)
      7,748

    Laszlo
    Newest Member
    Laszlo
    Joined

  • Celiac.com Sponsor (A20):
    Smith & Truslow


  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    NutHouse! Granola Co.



  • Upcoming Events

  • Posts

    • Scott Adams
      You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/  When I looked this one up I didn't see any gluten ingredients.
    • Scott Adams
      Your situation is actually more common than many realize, and while confusing, there are logical explanations for your test results. The key points are that your biopsy showing villous blunting and increased lymphocytes does indicate intestinal damage typically seen in celiac disease, despite your negative blood tests. This phenomenon is known as seronegative celiac disease, which affects about 10% of celiac patients. Your partial HLA-DQ2 genetic result doesn't rule out celiac either, as a small percentage of celiac patients don't have the complete genetic markers. The fact that you've responded so dramatically to a gluten-free diet is another strong indicator that this is likely celiac disease rather than NCGS, since NCGS doesn't usually cause intestinal damage. Your doctor might consider ordering additional tests like IgG-based celiac tests (tTG-IgG or DGP-IgG), or repeating the endoscopy after you've been gluten-free for a longer period to check for healing. Many celiac specialists would actually diagnose you with celiac disease based on your biopsy results combined with your positive response to the gluten-free diet, regardless of the blood test results. It may be worth consulting with a gastroenterologist who specializes in celiac disease for further evaluation. Your experience highlights why celiac disease can be so challenging to diagnose and why doctors need to look at the whole clinical picture rather than relying on any single test.
    • Lotte18
      Hi all, I have to have gum surgery tomorrow and was wondering if I should ask for this new drug, Journavx, instead of Vicodin.  I tried looking it up online and got, Not gluten free.  There is no gluten in the ingredients for this drug.  ????  Has anyone else had experience with Journavx?  Advice?   Many thanks, Charlotte
    • Lotte18
      Hi Faye,  Sorry I didn't see your post sooner.  I suffered from ataxia as well.  None of my drs. thought it was dairy.  They were wrong.  Turns out lactose intolerance was the cause.  Pancreas just isn't making the enzymes like it used to.  I now drink lactose free milk for the calcium and eat lactose free yogurt by Green Valley, when I can find it.  My ataxia problems vanished.  Hope this helps.
    • Scott Adams
      This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...