Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Birmingham?

jambo massive

Recommended Posts

jambo massive Apprentice
jambo massive
Posted

Hello people hope everybody is doing well, Is there anybody from around birmingham on this site? im struggling to find gluten free beer in a bar is there such a place?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Boffin Rookie
Boffin
Posted
Hello people hope everybody is doing well, Is there anybody from around birmingham on this site? im struggling to find gluten free beer in a bar is there such a place?

Hello! :)

I live just over an hour away from Birmingham and have relatives who live there so am in the area quite often.

Sadly I can't recommend any bars with gluten-free beer though. Only thing I could suggest would be to ask in a bar that has "guest ales" sometimes to see if they'd get one in to try in case it proved popular. You never know, it might bring in coeliacs from all over the place to drink their beer if they advertised it well.

I've only just been diagnosed and only been gluten-free for a week (although think I'm having some cross-contamination issues at the mo) so I'm still finding my feet really. How long have you been diagnosed and gluten-free? Did you find that you had to avoid other foods such as dairy to start with as that has been suggested to me?

Best wishes. :)

nikki-uk Enthusiast
nikki-uk
Posted
Hello people hope everybody is doing well, Is there anybody from around birmingham on this site? im struggling to find gluten free beer in a bar is there such a place?

I'm not in B/ham (I'm in E London) but my hubby (who is the coeliac) is yet to come across a bar that actually sells gluten-free beer :( (although you can get it in supermarkets)

Hubby usually ends up having either cider or an alchopop (e.g bacardi breezer)

Did you find that you had to avoid other foods such as dairy to start with as that has been suggested to me?

Not all coeliacs get the 'temporary' lactose intolerance.

My son has been fine with dairy since going gluten-free - whereas my hubby found that after about 6 months gluten-free that he got terrible stomach gripes with rotten headaches after eating cereal (gluten-free) with milk.

Hubby avoided it for around 3 months - then tried a tiny amount - found he was ok and just increased from there. :)

jambo massive Apprentice
jambo massive
Posted
  • Author
Hello! :)

I live just over an hour away from Birmingham and have relatives who live there so am in the area quite often.

Sadly I can't recommend any bars with gluten-free beer though. Only thing I could suggest would be to ask in a bar that has "guest ales" sometimes to see if they'd get one in to try in case it proved popular. You never know, it might bring in coeliacs from all over the place to drink their beer if they advertised it well.

I've only just been diagnosed and only been gluten-free for a week (although think I'm having some cross-contamination issues at the mo) so I'm still finding my feet really. How long have you been diagnosed and gluten-free? Did you find that you had to avoid other foods such as dairy to start with as that has been suggested to me?

Best wishes. :)

I have beee Diagnosed since i was 2ish but i gave up the diet when i was 8 due to lack of infomation from the doctors to my parents, but i started again about 3months ago after a spell in hospital i never knew how serious coeliac was i was foolish not to be on the diet for so many years (17 of them). I've luckly not had to avoid dairy but i agree cross-contamination is so hard to avoid especially at work i now have my very own special toaster so i can avoid it. Have you found it easy to switch to the diet?? I did at the start but im getting there now i have even started baking cakes!! they taste so yumm......

Hope your feeling well..

Boffin Rookie
Boffin
Posted

I'm not finding the diet itself too bad. It does require more thinking and planning than eating "normal" food but I think that as long as I plan meals ahead I should be ok. Spontaneous "grabbing something while out" occasions won't be able to happen now though.

I think the hardest think I'm finding so far is having to be so wary of cross-contamination. My husband is really thoughtful and careful but it's a lot of getting used to really. I have other allergies (to nuts, fish, mustard and some fresh fruit) so I'm used to having to avoid things and to read labels carefully but none of those allergies were so severe as to have to think really hard about sharing utensils etc.

Still, I've only been doing this for a week so I'm hoping that once I've got the kitchen better organised and got used to this it will become more second-nature.

We've not really bought many specifically gluten-free items yet as most didn't look that fab and are also very expensive. So far we've just been making things from scratch with the Doves Farm gluten-free flour. The bread is very different from "normal" bread but I actually really like it so that's ok. My husband was kind enough to make me a gluten-free choccy cake with the recipe off the flour and that turned out fantastic. You couldn't tell that there was anything "odd" about it!

Hope you continue to do ok. I'm not sure if I'm really noticing much of a difference yet as my symptoms were variable anyway so I think it's too soon to tell. Just keeping fingers crossed that all turns out well really. :)

  • 4 weeks later...
covsooze Enthusiast
covsooze
Posted

Just noticed this thread! I live in Coventry :D and used to live in B'ham (pre-coeliac days). Have you managed to find gluten free beer in the supermarkets yet? I've bought some from Tesco. Never had any in a bar. Have you been to le Petit Blanc in B'ham? They have a gluten free menu and it's delicious. :) Not cheap though - although much cheaper at lunchtimes and is definitely worth it for a special occasion.

Have you joined Coeliac UK and found a local group yet? That's probably your best bet for getting local info.

Boffin, where do you live?

Susie x

  • 2 months later...
Blinkyz Newbie
Blinkyz
Posted

Oops double post - See below :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Blinkyz Newbie
Blinkyz
Posted

Hi there,

I'm new so not sure if my post will work.. But I recently moved from Birmingham to Sweden.

I was never properly diagnosed because my doctor was a complete idiot and kept telling me it was a ulcer or IBS or whatever else they could come up with, but I can tell you it's a bit obvious that I'm a celiac as I can't tolerate hardly anything from the "Ingredients to avoid list". I've been a celiac for about a year now..

I never did find a gluten free beer in stores, but you should do a search on google or any other search engines and you can find beer that you can order online. It is a bit more expensive and make sure to check that it's Celiac safe and not just gluten as some people don't really get the difference.

Also - If you go out quite a bit in brum, becareful of Vodka. Yes vodka. I never knew that most vodkas are made from wheat!? Smirnoff is the only one I have managed to come across in a bar that's Celiac safe. (That doesn't mean Smirnoff Ice though as I think it has malt in it.)

Hope this helps! Any probs send me a mail or message (Still getting used to this site!)

Rach xx

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to Jmartes71's topic in Related Issues & Disorders
      15

      My only proof

      Years ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came...
    2. Rejoicephd
      - Rejoicephd commented on Jefferson Adams's article in Gluten-Free Cooking
      1

      Your Complete Gluten-Free Thanksgiving Plan: Recipes, Tips & Holiday Favorites

      Wow what a helpful article!! I am just seeing this now but I hosted a small group of family for Thanksgiving at my house this year and I did some of these things- got a butterball gluten-free turkey, got gluten-free stuffing, had a few gluten-free sides, and a gluten-free nothing-Bundt-cake. I had other non gluten-free things there too for others, and I also...
    3. Scott Adams
      0

      Rainforest Cafe Fined After Child's Severe Allergic Reaction: What It Means for Gluten-Free Safety

    4. marion wheaton
      - marion wheaton replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    5. trents
      - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      3

      Are Lindt chocolate balls gluten free?

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,422
    • Most Online (within 30 mins)
      7,748
    HAUS
    Newest Member
    HAUS
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Years  ago a friend and I drove north into Canada hoping to find a ski resort open in late spring,We were in my VW and found a small ski area near a small town and started up this gravelled road up a mountain. We  got about halfway up and got stuck in the mud. We tried everything we could think of but an hour later we were still stuck. Finally a pickup came down the road, laughed at our situation, then pulled the VW free of the mud. We followed him back to the ski area where where he started up the rope ski lift and we had an enjoyable hour of skiing and gave us a shot of aquavit  before we left.It was a great rescue.  In some ways this reminds me of your situation. You are waiting for a rescue and you have chosen medical practitioners to do it now or as soon as possible. As you have found out the med. experts have not learned how to help you. You face years of continuing to feel horrible, frustrated searching for your rescuer to save you. You can break away from from this pattern of thinking and you have begun breaking  away by using some herbs and supplements from doTerra. Now you can start trying some of the suggestions thatother Celiacs have written to your original posts.  You live with other people who eat gluten foods. Cross contamination is very possible. Are you sure that their food is completely separate from their food. It  is not only the gluten grains you need to avoid (wheat, barley, rye) but possibly oats, cows milk also. Whenever you fall back into that angry and frustrated way of thinking get up and walk around for a whild. You will learn ways to break that way of thinking about your problems.  Best wishes for your future. May you enjpy a better life.  
    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.