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New Member Symptoms For Years

Nan 70

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Nan 70 Newbie
Nan 70
Posted

Hello All,

I am new to the forum and have a few questions.

For the past 7 years I have been to many Dr's with these symptoms. Have had neurological testing..normal..Brain scan..normal... Cardiology testing just finished..normal..

Allergy testing..allergic to wheat and many other foods..have chronic hives for many years. Take Zyrtec.

Blood test now shows Celiac. B12 =320

I have been told that my symptopms are anxiety for all of these years. Now I don't believe it.

These are my symptoms...

Tingeling on soles of feet. Loss of some feeling in parts of toes. Sometime buzzing feeling in legs..Off and on. This has been going on for 6 years at least. Does not seem to get any worse. But it is there 24/7. negative for neuropathy..

A very strange vibrating feeling deep in chest. Notice it more when laying quiet. It feels just like a little motor running. Rather a frightening feeling in the middle of the night.. This is my main concern. Just finished with all sorts of heart tests and I am fine.

A buzzing noise in one ear..Many years of this.

Do these sound to you people who suffer from Celiac like symptoms of this disease? At this point I am at a loss.

Thank you,

Nan70

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gdobson Explorer
gdobson
Posted

Hi Nan:

I know there is a huge range of symptoms, but I have never experienced anything like that. I used to get bone pain in my arms and cramping in my feet and hands pre-diagnosis.

I hope you feel better.

Gina

mftnchn Explorer
mftnchn
Posted

Hi, if you tested positive celiac, seems like that is a good place to start. If you don't see any change in your symptoms after being very strict on the diet for awhile, you can keep looking. There are celiacs here with primarily neurological symptoms.

You might check out the lyme disease thread that has a long list of symptoms, too. Some of us have both.

Jodie2DQ2 Apprentice
Jodie2DQ2
Posted

Hi Nan,

My name is Jodie. I have been gluten free for about 5 months. I to have that vibrating feeling in my chest, it kind of goes in to my arms as well. I have noticed it went away when I quit eating sugar. I ate some sugar stuff on the 4th of July and I have had the feeling ever since. It is wierd and scary. Mine is also worse at night. I am going to see a Dr. in Colorado for Celiac and hope he can figure out what is going on. I am alot better but still having problems. If I figure anything out I will let you know! You please do the same. How long have you had that feeling? Jodie

Nan 70 Newbie
Nan 70
Posted
  • Author

Jodie,

I have had these symptoms for at least the past 5 years.

The only way I can describe the vibrating feeling is to tell you to put you hand hard against the inside wall of your refrigerator while the motor is running and then place that feeling deep in your chest. Is that what you are describing?

Never thought of the sugar connection but have been reading many articles on celiac and neurological symptoms. Seems that there is a connection. I anyone can figure this out I will post but have only found out that my blood test shows celiac.

Keep me posted on how you make out.

Thanks to all of you that sent replies.

Nan

GFhopeful Rookie
GFhopeful
Posted

As to the ringing in the ears, i had that symptom and was actually diagnosed with Meneire's diease (an inner ear dysfunction) 3 days before i landed in the hospital and it was discovered by biopsy that I had Celiac. Anyway, Meneire's consists of ringing and fullness in the ears (or one ear) and bouts of extreme dizziness. Since the Celiac diagnosis, I have done a little reading on both, and it seems as if there is a connection between food allergies and inner ear function, so that may be the cause of the ringing. Since going gluten-free 6 weeks ago, I have had a couple times of ringing/fullness but no vertigo/dizziness bouts. Maybe yours is also wheat related. I hate the mystery of the unusual symptoms but can say that the diet has helped lessen or eliminate my symtoms and I hope the same happens for you.

Nancym Enthusiast
Nancym
Posted

I hope you're supplementing your B12 now! That's too low. You might heal up some if you get that B12 level up. Check out "The Gluten File" in my siggy, there's loads of stuff in there about neurological issues of celiac disease.

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