Random Bouts Of Nausea

[lisabarella]

Hi all,

I was diagnosed with Celiac Disease in July 2003 and have been on a strict gluten-free diet since. Recently (beginning April of 2006), I started having random nausea episodes. Within 10-15 minutes, I get severely nauseous, disoriented and can not sit up. I need to lay horizontally and take Phenergan (spelling) to get rid of the horrible symptoms. Six of the eight times have been followed by violent vomiting. For example, I was giving a presentation at Deep Roots Market on the gluten-free diet and it started at 8 PM. At 8:50 PM, I was laying on the floor at the food store, throwing up and threw up the entire way home. At 6:30 that night, I was on a spin bike teaching a class and feeling great. This is so WEIRD! This has occurred 8 times since last April and it is debilitating. I basically take the drugs to get rid of the nausea and then pass out for the next 12-20 hours. I am also shaky when these incidences occur. I have checked back and looked at the food that I have eaten and it has all seemed ok. One time, it actually happened at the doctors office and my HR was 104. (BTW: my HR resting is usually 55 ish because I am a runner). Tuesday (july 10th) this happened again while in Chapel Hill at a martini bar (drinking potato vodka!). Not sure if anyone has any ideas - but any type of "brain storming" would be great. I am generally healthy too. I run about 40-50 miles a week and teach SPIN and PUMP at the gym. Not sure what is going on and since it happens randomly, I can't prepare for it. Lisa

[jerseyangel]

Lisa,

That sounds awful--I'm so sorry this is happening to you.

This might be a longshot, but could it be an inner ear problem? Maybe check with an ENT to at least ask if your symptoms might indicate anything in that area.

I really hope you find the answer

[melrobsings]

I have similar episodes but i don't barf. I feel like I'm going to. rarely I need to sit down and take a break. The barfing feeling is becoming more and more though...

I have taken Phenogrin and that is AWESOME stuff but it really knocked me out like a cheap date for about 8 hours. I also have my days of feeling great and feeling like crap. Some mornings I wake up feeling like I got hit by a mac truck. I'm a VERY active person too (dancer) and it's REALLY annoying. You are not totally alone.

[lfij]

Lisa,

That sounds awful--I'm so sorry this is happening to you.

This might be a longshot, but could it be an inner ear problem? Maybe check with an ENT to at least ask if your symptoms might indicate anything in that area.

I really hope you find the answer

i'm sorry you're both not feeling well. I agree, you should both go to some type of doctor instead of here, if you're gluten free, it may not be just celiac you can blame it on. Esp. if you've been gluten-free for a long time.

[lisabarella]

Lisa,

That sounds awful--I'm so sorry this is happening to you.

This might be a longshot, but could it be an inner ear problem? Maybe check with an ENT to at least ask if your symptoms might indicate anything in that area.

I really hope you find the answer

Patti,

thanks for the kind words. I just had a CT abdominal and CT pelvis scan done and it looks like it might be SMA syndrome that is causing the symtoms. But, I am going to check out the inner ear stuff too and finally found a good GI in Greensboro that I am going to see on the 13th of August. Lisa

[lisabarella]

I have similar episodes but i don't barf. I feel like I'm going to. rarely I need to sit down and take a break. The barfing feeling is becoming more and more though...

I have taken Phenogrin and that is AWESOME stuff but it really knocked me out like a cheap date for about 8 hours. I also have my days of feeling great and feeling like crap. Some mornings I wake up feeling like I got hit by a mac truck. I'm a VERY active person too (dancer) and it's REALLY annoying. You are not totally alone.

yes, that drug just makes you feel like your drank heavily and then you sleep and black in and out for 12 hours and still the next day I am sleepy. I am getting the symptoms checked out at all angles. Have you ever heard of SMA syndrome? Lisa

[jerseyangel]

Lisa,

Good to hear back from you--I wondered what happened.

Glad that you've been tested and are closing in on the problem. I've not heard of SMA syndrome. Take care, and continued good luck in figuring this thing out.

[fasterpkat]

yes, that drug just makes you feel like your drank heavily and then you sleep and black in and out for 12 hours and still the next day I am sleepy. I am getting the symptoms checked out at all angles. Have you ever heard of SMA syndrome? Lisa

Lisa,

Are you sure about SMA? One of the major characteristics of SMA is significant weight loss. Have you had that? Also, vertigo is not associated with SMA which it sounds like you have. You may want to look further before going with the SMA diagnosis.