Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free And Still Got Symptoms !


irish daveyboy

Recommended Posts

irish daveyboy Community Regular

I'm not sure if I'm posting this in the right forum ( MODS please feel free to move it)

.

This is a topic I started on the Irish Coeliac Society's Message Board some time ago.

.

This may have been discussed and checked into years ago, I'm not sure as I'm only

posting on this Site for the last few months!

.

If this Topic has been covered before apologies.

.

I have read so many posts by people that have stuck rigidly to the diet and still have

issues so this item maybe something to consider ??.

.

.

People, who are sticking to a gluten-free diet and still suffering some or all of the symptoms, should maybe take a look at food additives in processed and canned products.

.

We all know that modified starch could mean anything if it is not specified.

Some times products use E numbers instead. (E1400 - E1450 should be avoided

  • 2 years later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lady Baba Newbie

I was interested to read your comments about food additives. I was researching non-allergic, non-bacterial chronic rhinitis (which I have along with celiac) and found an article by Prof. Maria Luisa Pacor, MD (Italy) with an abstract about chronic rhinitis stating that food additives (as those you mentioned)"can be considered triggers or aggravating factors, rather than aetiological factors". I also found information about a chemical rhinitis that is aggravated by "biogenic amines, benzoic acids (food additives), and tyramine (found in aged cheeses, etc.) Eliminating these seems to help me but I still have symptoms.

ravenwoodglass Mentor

Thanks for posting this, it may be useful for some of us that are still having issues. It should be noted that the E Numbers are used in Europe but not in the US. In the US most of these items would need to be listed by name on the label.

Lady Baba Newbie

Thanks for your comments. Re E numbers: I found a list at www.naturallyhealthylifestyles.com. It is helpful because it lists the E Number, the name, foods it is used in, and side effects in an easy to read chart. Or, one could just Google it and see what they come up with. I found several sites.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,587
    • Most Online (within 30 mins)
      7,748

    michaelf31
    Newest Member
    michaelf31
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.