Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Effects Of Hidden Gluten?


ElenaDragon

Recommended Posts

ElenaDragon Explorer

I just started a trial gluten-free period. I'm planning on doing it for two months and see if it helps me at all. I'm wondering what will happen if I miss any sources of hidden gluten, such as cross contamination or something in a medication. I'm doing my best to avoid all gluten, but it is of course difficult. Will I be able to see any results if there is still any hidden gluten left in my diet? If I take out, say, 99% of the gluten, will I still be able to notice an improvement if gluten is the problem?

My blood test for celiac came back negative, but I was probably not eating enough gluten at the time for it to be positive. So I'm trying the gluten-free diet to see if it improves my symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I just started a trial gluten-free period. I'm planning on doing it for two months and see if it helps me at all. I'm wondering what will happen if I miss any sources of hidden gluten, such as cross contamination or something in a medication. I'm doing my best to avoid all gluten, but it is of course difficult. Will I be able to see any results if there is still any hidden gluten left in my diet? If I take out, say, 99% of the gluten, will I still be able to notice an improvement if gluten is the problem?

My blood test for celiac came back negative, but I was probably not eating enough gluten at the time for it to be positive. So I'm trying the gluten-free diet to see if it improves my symptoms.

You need to be as gluten free as is humanly possible during the trial. This includes your meds so either call the companies that make them or see if you can access that info in line. Generics are the most risky because they can change binders at will. Also eliminate it from your shampoos and conditioners and your soaps. Make sure you are also not sharing a toaster and that you are very careful if you have to cook gluten for others.

Celaic is an autoimmune sort of response. It takes very little to activate the reaction from CC or accidental injestion. To be really positive you really need to be totally gluten free during the elimination period.

ElenaDragon Explorer

Thanks for the response. I am trying to do everything I can to be gluten free, but I'm just afraid of what will happen if I miss something or accidentally get cross contaminated or something. Since I'm still having symptoms, I don't know how I will know if that happens. I hope a two month trial is enough to see if gluten-free will help me.

ravenwoodglass Mentor

One last thing, are you consuming dairy products? The villi that are damaged by gluten are also the mechanism that aids us in digesting dairy. It is reccommended that we at first cut out dairy as well, hard I know, but it may make a real difference for now. After a couple months gluten-free and after your tummy calms down you can add it back in and see if it is tolerated. During the exclusion phase of the trial it should be cut out though. A sensitivily to dairy in addition to gluten is very common but for most of us this is not permanent.

PeggyV Apprentice

I felt much better after just a month. So did my daughter. Good luck.

Peggy

ElenaDragon Explorer

I have been off dairy (and whey and casein) for months now. I'm also mostly off of soy (I react badly to large amounts of it - migraines, sleepiness, general ill feelings).

Jestgar Rising Star
I am trying to do everything I can to be gluten free, but I'm just afraid of what will happen if I miss something or accidentally get cross contaminated or something.

I just wanted to point out that everyone makes a few mistakes when they're getting started. Just swear at the box or whatever, roll your eyes at the new frustration, and go back to being diligent.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ElenaDragon Explorer
I just wanted to point out that everyone makes a few mistakes when they're getting started. Just swear at the box or whatever, roll your eyes at the new frustration, and go back to being diligent.

Hahaha, thanks. :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,318
    • Most Online (within 30 mins)
      7,748

    direne
    Newest Member
    direne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.