Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Effects Of Hidden Gluten?


ElenaDragon

Recommended Posts

ElenaDragon Explorer

I just started a trial gluten-free period. I'm planning on doing it for two months and see if it helps me at all. I'm wondering what will happen if I miss any sources of hidden gluten, such as cross contamination or something in a medication. I'm doing my best to avoid all gluten, but it is of course difficult. Will I be able to see any results if there is still any hidden gluten left in my diet? If I take out, say, 99% of the gluten, will I still be able to notice an improvement if gluten is the problem?

My blood test for celiac came back negative, but I was probably not eating enough gluten at the time for it to be positive. So I'm trying the gluten-free diet to see if it improves my symptoms.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
I just started a trial gluten-free period. I'm planning on doing it for two months and see if it helps me at all. I'm wondering what will happen if I miss any sources of hidden gluten, such as cross contamination or something in a medication. I'm doing my best to avoid all gluten, but it is of course difficult. Will I be able to see any results if there is still any hidden gluten left in my diet? If I take out, say, 99% of the gluten, will I still be able to notice an improvement if gluten is the problem?

My blood test for celiac came back negative, but I was probably not eating enough gluten at the time for it to be positive. So I'm trying the gluten-free diet to see if it improves my symptoms.

You need to be as gluten free as is humanly possible during the trial. This includes your meds so either call the companies that make them or see if you can access that info in line. Generics are the most risky because they can change binders at will. Also eliminate it from your shampoos and conditioners and your soaps. Make sure you are also not sharing a toaster and that you are very careful if you have to cook gluten for others.

Celaic is an autoimmune sort of response. It takes very little to activate the reaction from CC or accidental injestion. To be really positive you really need to be totally gluten free during the elimination period.

ElenaDragon Explorer

Thanks for the response. I am trying to do everything I can to be gluten free, but I'm just afraid of what will happen if I miss something or accidentally get cross contaminated or something. Since I'm still having symptoms, I don't know how I will know if that happens. I hope a two month trial is enough to see if gluten-free will help me.

ravenwoodglass Mentor

One last thing, are you consuming dairy products? The villi that are damaged by gluten are also the mechanism that aids us in digesting dairy. It is reccommended that we at first cut out dairy as well, hard I know, but it may make a real difference for now. After a couple months gluten-free and after your tummy calms down you can add it back in and see if it is tolerated. During the exclusion phase of the trial it should be cut out though. A sensitivily to dairy in addition to gluten is very common but for most of us this is not permanent.

PeggyV Apprentice

I felt much better after just a month. So did my daughter. Good luck.

Peggy

ElenaDragon Explorer

I have been off dairy (and whey and casein) for months now. I'm also mostly off of soy (I react badly to large amounts of it - migraines, sleepiness, general ill feelings).

Jestgar Rising Star
I am trying to do everything I can to be gluten free, but I'm just afraid of what will happen if I miss something or accidentally get cross contaminated or something.

I just wanted to point out that everyone makes a few mistakes when they're getting started. Just swear at the box or whatever, roll your eyes at the new frustration, and go back to being diligent.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ElenaDragon Explorer
I just wanted to point out that everyone makes a few mistakes when they're getting started. Just swear at the box or whatever, roll your eyes at the new frustration, and go back to being diligent.

Hahaha, thanks. :lol:

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    2. - Celiac and Salty replied to Mell2's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Rectal pain

    3. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    4. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    5. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,230
    • Most Online (within 30 mins)
      7,748

    DJD
    Newest Member
    DJD
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      I was suffering from PF just previous to being dx with celiac disease about 25 yr. ago but have not been troubled with it since. Not sure what the connection between the two is of if there is one. But I do know it is a very painful condition that takes your breath away when it strikes.
    • Celiac and Salty
      I have dealt with proctalgia fugax on and off for a year now. It feels almost paralyzing during an episode and they have started lasting longer and longer, sometimes 20+ minutes. I was recently diagnosed with celiac disease and wonder if the 2 are related. I did request a prescription for topical nitroglycerin for my PF episodes and that has helped tremendously!
    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.