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How Long Was It Until You Noticed A Difference On A Gluten-free Diet?

Luke987

By Luke987
in Coping with Celiac Disease

Recommended Posts

sedunk Apprentice
sedunk
Posted

Greetings,

Have you found any gluten-free Licorice? I have been gluten-free for about 2 1/2! I love Licorice, that is my one weakness. I love the Strawberry and Cherry Flavors. Any thoughts where I may purchase gluten-free Licorice.

I am would be so thankful. Yummy. My birthday is this Friday and I am so pissed about the Birthday Cake, Pasta, and bread. I am Italian, we are typically food driven!

Have a wonderful day. I have been searching for licorice. I will keep you posted if I find some first.

Sara

I started to turn the corner at 3 days gluten-free, and was free of most symptoms by 3 months. The learning curve can be steep with gluten-free food, so I accidentally glutened myself a few times in the first few months. Why the hell is wheat in licorice anyway!?!?!

Be patient, and you will start to see results. You may need to eliminate dairy for a time while your villi heal, also.

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sedunk Apprentice
sedunk
Posted

Greetings,

I have been Gluten Free for about 2 /2 weeks. I felt horrible the first week. I was so tired and had horrible ab pain on my left side. I am not as tired this week, but still don't feel well. My doctor told me that my energy levels could be low for the next 6 weeks. My doctor told me to drink a lot of water.

I want to eat everything in sight. My birthday is Friday and I am really cranky about the Cake ISSUE!

I hope you feel better soon.

Sara

OregonGF Newbie
OregonGF
Posted

I'm writing my first correspondence here, OregonGF happy to meet you all. July 2007 I was diagnosed by EnteroLab with 2 genes indicating likely allergy to gluten and negative diagnosis on celiac in the same test. My new nurse practiotioner suggested gluten-free and I have begun.

My energy improved and my depression seemed to lift-away after avoiding wheat for 2 weeks, but I have also picked up on Vitamin D dosage (8,000 mgs!) So, not really sure what's making the changes. It's a big circle all connected and I realize this is a different journey for us all. We each need to figure out what works for us. ;) Speaking here with you all provides a tremendous sense of support that I cannot find out there, where people can eat wheat.

The one thing I want to share in relation to this topic is, last night I ate DOuble fudge lowfat (ha ha) yogurt :ph34r: with Brownie chunks in it. The ingredients included wheat-somthing or another and today, despite a good night's sleep, I am tired.

Thanks for being here everyone and Happy Day GiA (God is Awesome)

OregonGF

Joni63 Collaborator
Joni63
Posted

Thank you for this thread Luke987!

It's so good to know that my symptoms are similar to other's who started the gluten-free diet. I started Wednesday this week so it's been only 5 days counting today. I did have the headaches for the 2nd and 3rd day, but on the 4th day I had the best day I've had in a long time until I think I accidently ate gluten. I slept terribly last night and took a nap this afternoon, but have been great since I woke up for the rest of today.

Now if I can just sleep through the night once in a while I'd be terrific!

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      ttg iga high (646 mg/dl) other results are normal

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      Fiber Supplement

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    • knitty kitty
      Is this celiac?

      By knitty kitty · Posted

      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Fiber Supplement

      By Trish G · Posted

      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Is this celiac?

      By trents · Posted

      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      ttg iga high (646 mg/dl) other results are normal

      By trents · Posted

      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
    • trents
      Fiber Supplement

      By trents · Posted

      Another great fiber option is dried apricots. Four of them give you 3g of fiber and I find they don't produce all the gas that some other high fiber options do. They taste good too. Costco sells a large bag of them that are labeled gluten-free so you don't have to worry about cross contamination issues like you might in bulk grocery settings.
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