Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Long Was It Until You Noticed A Difference On A Gluten-free Diet?

Luke987

By Luke987
in Coping with Celiac Disease

Recommended Posts

sedunk Apprentice
sedunk
Posted

Greetings,

Have you found any gluten-free Licorice? I have been gluten-free for about 2 1/2! I love Licorice, that is my one weakness. I love the Strawberry and Cherry Flavors. Any thoughts where I may purchase gluten-free Licorice.

I am would be so thankful. Yummy. My birthday is this Friday and I am so pissed about the Birthday Cake, Pasta, and bread. I am Italian, we are typically food driven!

Have a wonderful day. I have been searching for licorice. I will keep you posted if I find some first.

Sara

I started to turn the corner at 3 days gluten-free, and was free of most symptoms by 3 months. The learning curve can be steep with gluten-free food, so I accidentally glutened myself a few times in the first few months. Why the hell is wheat in licorice anyway!?!?!

Be patient, and you will start to see results. You may need to eliminate dairy for a time while your villi heal, also.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sedunk Apprentice
sedunk
Posted

Greetings,

I have been Gluten Free for about 2 /2 weeks. I felt horrible the first week. I was so tired and had horrible ab pain on my left side. I am not as tired this week, but still don't feel well. My doctor told me that my energy levels could be low for the next 6 weeks. My doctor told me to drink a lot of water.

I want to eat everything in sight. My birthday is Friday and I am really cranky about the Cake ISSUE!

I hope you feel better soon.

Sara

OregonGF Newbie
OregonGF
Posted

I'm writing my first correspondence here, OregonGF happy to meet you all. July 2007 I was diagnosed by EnteroLab with 2 genes indicating likely allergy to gluten and negative diagnosis on celiac in the same test. My new nurse practiotioner suggested gluten-free and I have begun.

My energy improved and my depression seemed to lift-away after avoiding wheat for 2 weeks, but I have also picked up on Vitamin D dosage (8,000 mgs!) So, not really sure what's making the changes. It's a big circle all connected and I realize this is a different journey for us all. We each need to figure out what works for us. ;) Speaking here with you all provides a tremendous sense of support that I cannot find out there, where people can eat wheat.

The one thing I want to share in relation to this topic is, last night I ate DOuble fudge lowfat (ha ha) yogurt :ph34r: with Brownie chunks in it. The ingredients included wheat-somthing or another and today, despite a good night's sleep, I am tired.

Thanks for being here everyone and Happy Day GiA (God is Awesome)

OregonGF

Joni63 Collaborator
Joni63
Posted

Thank you for this thread Luke987!

It's so good to know that my symptoms are similar to other's who started the gluten-free diet. I started Wednesday this week so it's been only 5 days counting today. I did have the headaches for the 2nd and 3rd day, but on the 4th day I had the best day I've had in a long time until I think I accidently ate gluten. I slept terribly last night and took a nap this afternoon, but have been great since I woke up for the rest of today.

Now if I can just sleep through the night once in a while I'd be terrific!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Rejoicephd
      - Rejoicephd replied to Rejoicephd's topic in Related Issues & Disorders
      5

      Basic metabolic panel results - more flags

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources. I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    2. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      You're right, doctors usually only test Vitamin D and B12. Both are really important, but they're not good indicators of deficiencies in the other B vitamins. Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer. The other B vitamins can only be stored for much shorter periods of time. Pyridoxine B 6 can...
    3. NanceK
      - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      12

      My only proof

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron. I wondered how it was possible that I had celiac disease...
    4. knitty kitty
      - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment. The cow's body builds that Casein protein. It doesn't come from wheat. Casein can trigger the same reaction as being exposed to gluten in some people. This is not a dairy allergy (IGE mediated response). It is not lactose intolerance...
    5. trents
      - trents replied to Larzipan's topic in Related Issues & Disorders
      39

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,371
    • Most Online (within 30 mins)
      7,748
    Susan Blodgett
    Newest Member
    Susan Blodgett
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Basic metabolic panel results - more flags

      By Rejoicephd · Posted

      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.