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How Long Was It Until You Noticed A Difference On A Gluten-free Diet?

Luke987

By Luke987
in Coping with Celiac Disease

Recommended Posts

sedunk Apprentice
sedunk
Posted

Greetings,

Have you found any gluten-free Licorice? I have been gluten-free for about 2 1/2! I love Licorice, that is my one weakness. I love the Strawberry and Cherry Flavors. Any thoughts where I may purchase gluten-free Licorice.

I am would be so thankful. Yummy. My birthday is this Friday and I am so pissed about the Birthday Cake, Pasta, and bread. I am Italian, we are typically food driven!

Have a wonderful day. I have been searching for licorice. I will keep you posted if I find some first.

Sara

I started to turn the corner at 3 days gluten-free, and was free of most symptoms by 3 months. The learning curve can be steep with gluten-free food, so I accidentally glutened myself a few times in the first few months. Why the hell is wheat in licorice anyway!?!?!

Be patient, and you will start to see results. You may need to eliminate dairy for a time while your villi heal, also.

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sedunk Apprentice
sedunk
Posted

Greetings,

I have been Gluten Free for about 2 /2 weeks. I felt horrible the first week. I was so tired and had horrible ab pain on my left side. I am not as tired this week, but still don't feel well. My doctor told me that my energy levels could be low for the next 6 weeks. My doctor told me to drink a lot of water.

I want to eat everything in sight. My birthday is Friday and I am really cranky about the Cake ISSUE!

I hope you feel better soon.

Sara

OregonGF Newbie
OregonGF
Posted

I'm writing my first correspondence here, OregonGF happy to meet you all. July 2007 I was diagnosed by EnteroLab with 2 genes indicating likely allergy to gluten and negative diagnosis on celiac in the same test. My new nurse practiotioner suggested gluten-free and I have begun.

My energy improved and my depression seemed to lift-away after avoiding wheat for 2 weeks, but I have also picked up on Vitamin D dosage (8,000 mgs!) So, not really sure what's making the changes. It's a big circle all connected and I realize this is a different journey for us all. We each need to figure out what works for us. ;) Speaking here with you all provides a tremendous sense of support that I cannot find out there, where people can eat wheat.

The one thing I want to share in relation to this topic is, last night I ate DOuble fudge lowfat (ha ha) yogurt :ph34r: with Brownie chunks in it. The ingredients included wheat-somthing or another and today, despite a good night's sleep, I am tired.

Thanks for being here everyone and Happy Day GiA (God is Awesome)

OregonGF

Joni63 Collaborator
Joni63
Posted

Thank you for this thread Luke987!

It's so good to know that my symptoms are similar to other's who started the gluten-free diet. I started Wednesday this week so it's been only 5 days counting today. I did have the headaches for the 2nd and 3rd day, but on the 4th day I had the best day I've had in a long time until I think I accidently ate gluten. I slept terribly last night and took a nap this afternoon, but have been great since I woke up for the rest of today.

Now if I can just sleep through the night once in a while I'd be terrific!

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      My only proof

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    • marion wheaton
      Are Lindt chocolate balls gluten free?

      By marion wheaton · Posted

      Thanks for responding. I researched further and Lindt Lindor chocolate balls do contain barely malt powder which contains gluten. I was surprised at all of the conflicting information I found when I checked online.
    • trents
      Are Lindt chocolate balls gluten free?

      By trents · Posted

      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      Are Lindt chocolate balls gluten free?

      By BlessedinBoston · Posted

      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      My only proof

      By knitty kitty · Posted

      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      My only proof

      By Jmartes71 · Posted

      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
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