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Help! Pep Talk Needed!

F.deSales

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F.deSales Rookie
F.deSales
Posted

I have been gluten free for 7 weeks. Had my first normal bm in months today. Went to the doc today said I need to have another EGD/colon done . This time I have to eat gluten for two weeks staring tomorrow to make sure the test in accurate. I am trying to get the courage to do so. I can't do the regular blood test because I have complete Iga deficiency.

When I think of the pain and hours I will spend in the "powder room" I get really scared. I am getting very depressed too. I am just starting to feel a bit better and now it is back to a living nightmare. My hubby is going to make sure I do as I am told because last time didn't and the procedure was canceled.

So, I guess I am just asking for pep talks and prayers. I know that you all have probably have gone though this also and I would appreciate some "I lived to tell about it"

Thanks. This group is a blessing.

A~

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mamaw Community Regular
mamaw
Posted

Let me be the first to offer prayers & a BIG HUG to you.... I understand that this isn't a hard painful test but it sure does make for a sore hinny!!! The prep is the worst part I think...

Hopefully the docs will not ask you to repeat again for a long time... I'm going Aug 8 for my endo & colonoscopy. I said I wanted both done at once instead of two seperate times....I'm also repeating because I was just in the hospital......

I alway tell myself it could be something worse & that there are many who will suffer so much more than me....& I remember my savouir on the cross. I will gladly do the test!!! God's Blessings are being sent your way, be sure to catch them & place them near your heart.

mamaw

F.deSales Rookie
F.deSales
Posted
  • Author
Let me be the first to offer prayers & a BIG HUG to you.... I understand that this isn't a hard painful test but it sure does make for a sore hinny!!! The prep is the worst part I think...

Hopefully the docs will not ask you to repeat again for a long time... I'm going Aug 8 for my endo & colonoscopy. I said I wanted both done at once instead of two seperate times....I'm also repeating because I was just in the hospital......

I alway tell myself it could be something worse & that there are many who will suffer so much more than me....& I remember my savouir on the cross. I will gladly do the test!!! God's Blessings are being sent your way, be sure to catch them & place them near your heart.

mamaw

Thank you for your pep talk and sending me some blessings! I need to take to heart my quote from my favorite saint (see below) and like you said remember He who suffered so much for us all that we might be saved! I will keep you in my prayers. And when I am feeling "the prep work" I will send extra prayers your way! It looks like you will be having yours one day before me. Do let me know how things went and how you are doing. I read some of your other posts and it seems like you have some medical crosses to carry like me.

God Bless,

Angie

"Do not fear what may happen tomorrow. The same loving Father who cares for you today will care for you tomorrow and everyday. Either he will shield you from suffering or He will give you unfailing strength to bear it. Be at peace then and put aside all anxious thoughts and imaginings" St. F. de Sales

mhansen Rookie
mhansen
Posted

Good luck and visit the bookstore and splurge on some magazines then go straight to your favorite pizza shop and have a piece for me.

I will send blessings and good thoughts your way this week

Belinda Meeker Apprentice
Belinda Meeker
Posted

Angie,

I feel for u, and will include u in my Prayers as well :)

I always ate pizza rolls by Totino's and wondered why I had those itchy blister on my feet..... well to make along story short they have the nasty word "GLUTEN" right on the package <_< (didn't know about Celiac's then)

So u could try those to make ur process go a lil faster :(

I think the prep isn't as bad as getting glutened, at least for the prep u don't have all the other side affects :huh:

Good luck and God Bless U :)

Belinda

ravenwoodglass Mentor
ravenwoodglass
Posted
I have been gluten free for 7 weeks. Had my first normal bm in months today. Went to the doc today said I need to have another EGD/colon done . This time I have to eat gluten for two weeks staring tomorrow to make sure the test in accurate. I am trying to get the courage to do so. I can't do the regular blood test because I have complete Iga deficiency.

When I think of the pain and hours I will spend in the "powder room" I get really scared. I am getting very depressed too. I am just starting to feel a bit better and now it is back to a living nightmare. My hubby is going to make sure I do as I am told because last time didn't and the procedure was canceled.

So, I guess I am just asking for pep talks and prayers. I know that you all have probably have gone though this also and I would appreciate some "I lived to tell about it"

Thanks. This group is a blessing.

A~

Have you been seeing improvement on the diet? It sounds like you have. Would you consider Enterolab testing? You do not have to go back on gluten for that.

If you are firmly decided to do this please be aware that you can still have a false negative on the biopsies. Also if you have a problem with gluten the challenge may make you very, very sick. If this happens be sure to contact the doctor that day, some have the common sense to diagnose you then. A strong reaction after adding gluten back in is considered diagnostic, if you have one you should consider saving yourself the trauma and expense of the procedures. If it sounds like I am very anti gluten challenge it is because mine almost killed me. Something that had never happened when I was eating it every day, only after a couple months without it.

jerseyangel Proficient
jerseyangel
Posted

Best of luck to you, Angie :) I hope the gluten challenge won't be too bad for you--if it is, Ravenwood had some good advice.

The actual procedures are really not bad at all. I had both done the same day, too. The colo prep the night before is far and away the worst part of the whole thing.

Anyway, please ask that the doctor take many (8-10) samples during the endo. Damage can be spotty and easy to miss. :)

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