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How Long Back On Gluten For Blood Test?


bjshad

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bjshad Apprentice

Hi - I have a question. I have a 3-1/2 year old daughter with sensory processing dysfunction, leaky gut, and a positive Enterolabls stool test for IgA anti-gliadin antibodies. We've had her gluten free for several months now, and if she gets ahold of gluten, I don't really notice that much difference, other than stinky poops, but no other real issues that you'd think would go along with Celiac.

I would like to have her take some blood tests for Celiac. We are also going to have her tested for diabetes 1 and liver function tests as I understand either one can cause a positive IgA anti-gliadin test.

So, my question is how long does she need to be on gluten before we can have these tests done? She's been off gluten for about 3-4 months now, so not a super long amount of time, but I want to know for sure what we are dealing with here and I know she will need to be on gluten for the tests.

Also, because of her leaky gut and sensory issues, will using digestive enzymes to help her digest gluten interfere with blood tests? Does anyone know?

Thanks so much for any help you can give.

Beth


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Guest j_mommy

There's another thread going on right now about the same thing. Some say 2 weeks to a month, some say longer than that.

Her body has definetly begun to repair itself if she's been off gluten for that long.

cruelshoes Enthusiast

See Open Original Shared Link. There is info from the University of Chicago celiac program regarding gluten challenge.

bjshad Apprentice

Thanks! Exactly what I was looking for.

Beth

See Open Original Shared Link. There is info from the University of Chicago celiac program regarding gluten challenge.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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