Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Alerting Care Givers


Electra375

Recommended Posts

Electra375 Newbie

I thought I'd share how I plan on alerting care givers at our church's nursery.

I'm going to make a diaper bag and embroider a Med Alert that states in bright bold Red and Black

FOOD ALLERGY (Might get an embroidery Medical Alert Symbol $8 to by the design)

NO GLUTEN

NO WHEAT

NO BARLEY

NO RYE

NO OATS

I never leave any message on my children with just the word gluten, you don't know how many times someone has said "oh, poor thing is diabetic" or "I try not to eat too much sugar either it makes me sick".

:rolleyes: We can't afford mistakes.

I also order things from cafepress.com. My older child is out growing his first set of Silly Yak Ts, so I just ordered him new ones. I ordered one for the baby that is just like above, nothing cute or fancy.

The baby may not stay in the nursery once he begins to crawl, I can't isolate him away from other crawler, after speaking to the director, the don't get that a child with wheat or oat proteins on their hands transfering it to a toy that my child then touches and then puts his fingers in his mouth is enough to make him sick. Unfortunately, my baby is a 4 finger sucker and will not take to a pacifier. A paci would make it a bit easier b/c he would not likely put anything in his mouth w the paci in it. And the nursery serves Cheerios and Goldfish.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



momof2sn Apprentice
I thought I'd share how I plan on alerting care givers at our church's nursery.

I'm going to make a diaper bag and embroider a Med Alert that states in bright bold Red and Black

FOOD ALLERGY (Might get an embroidery Medical Alert Symbol $8 to by the design)

NO GLUTEN

NO WHEAT

NO BARLEY

NO RYE

NO OATS

I never leave any message on my children with just the word gluten, you don't know how many times someone has said "oh, poor thing is diabetic" or "I try not to eat too much sugar either it makes me sick".

:rolleyes: We can't afford mistakes.

I also order things from cafepress.com. My older child is out growing his first set of Silly Yak Ts, so I just ordered him new ones. I ordered one for the baby that is just like above, nothing cute or fancy.

The baby may not stay in the nursery once he begins to crawl, I can't isolate him away from other crawler, after speaking to the director, the don't get that a child with wheat or oat proteins on their hands transfering it to a toy that my child then touches and then puts his fingers in his mouth is enough to make him sick. Unfortunately, my baby is a 4 finger sucker and will not take to a pacifier. A paci would make it a bit easier b/c he would not likely put anything in his mouth w the paci in it. And the nursery serves Cheerios and Goldfish.

I'm glad you brought that up, because I am a nervous wreck anymore when I go to church. I know people are hearing me when I tell them what she can't have and pack her her own snacks, but I still freak out. Our nursery is only one room. Honestly how can they keep a two year old away from the other kids snacks and I'm sure they don't wash the other kids hands after they have their snack. There has to be gluten everywhere. Should I be freaking out? I am new to this. Our kitchen at home is shared so maybe she gets more gluten there? I just feel the spontinaity(did I spell that right??) is gone from our life. I will never be able to relax again!!!!!!!!!!!!!!

What are the silly yak t's?

ptkds Community Regular

I thought this web site may be somewhat helpfu:l Open Original Shared Link. I also bought one of my dd's a med ID bracelet that states she is allergic to wheat, barley, rye, and oats.

I'm lucky enough that the nursery in our church is small. There are only 2-3 kids in there. They just bring fresh fruit and cheese and stuff like that for all the kids. Now if I could just figure out potlucks at church, I'd be happy!!

ptkds

Guhlia Rising Star

I always put a sticker on my daughter's back that says:

NO GLUTEN

No wheat

No barley

No rye

No oats

No malt

No Play-Doh

Electra375 Newbie

Open Original Shared Link

Open Original Shared Link

Open Original Shared Link

I like Sansgluten b/c they have shirts that have the Definition of Celiac. My older child likes SillyYaks b/c the purple Yak is cute. I found glutenfreekids b/c for my baby it is simple, straight forward and list out what gluten is.

I have for my older child a button "don't poison me" and a medical ID braclet that he never liked to wear that is now too small, I ended up putting it on the velcos of his shoe.

The baby is new territory for me. My other was 3 at dx. It is somewhat different in that the baby can't even ask "its gots wheats?"

There are also some allergy type ts and things available on the net.

Since I've been dealing with people in preschool and church nursery for a few years, I've found that people understand the word "allergy" more than they do "autoimmune genetic disorder". But you have people in general who will dismiss food allergies and even medically dx Celiac Disease as hog wash and not give a beep (mostly I find that is with my dh's family and a few of my own extended family members). A medical ID bracelet clearly identifies a serious medical problem and I find most people respect those.

Guhlia Rising Star

If anyone is interested I'd be happy to design a T-shirt for the little ones. Not for profit, of course. I can design it and then pass the file along so that you can order one on cafe press. I just need to know what everyone would like on the shirt. Let me know if anyone's interested. Text only please.

blueeyedmanda Community Regular
If anyone is interested I'd be happy to design a T-shirt for the little ones. Not for profit, of course. I can design it and then pass the file along so that you can order one on cafe press. I just need to know what everyone would like on the shirt. Let me know if anyone's interested. Text only please.

That's a cool idea Angie.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



janelyb Enthusiast

we got a medical alert bracelet as well and my son refuses to wear them on his arm so I cut the chain off and placed it on a small key chain and attached it to his shoe. It works perfect. This also got me thinking and I was playing around with powerpoint today and made a few Gluten-free Casein-free logos to print out as he gets older to laminate and attach to backpacks and lunch boxes.

sample 1

Sample 2

sample 3

Electra375 Newbie
we got a medical alert bracelet as well and my son refuses to wear them on his arm so I cut the chain off and placed it on a small key chain and attached it to his shoe. It works perfect. This also got me thinking and I was playing around with powerpoint today and made a few Gluten-free Casein-free logos to print out as he gets older to laminate and attach to backpacks and lunch boxes.

sample 1

Sample 2

sample 3

Very nice.

BTW - whatever happened to character lunch boxes that came with a thermos??? I was in a store that had all the school stuffs out and they wanted $9 for a zippered tote for a "lunch box", it didn't come with a drink thing at all!!! I guess I'm going on the internet to look for lunch totes that are large enough to fit the stainless steal thermos soup carrier and thermos and fruit carrier.

janelyb Enthusiast

I know the gold old lunch boxes, now they are vintage and probably pretty pricey on ebay. Try thrift shops or garage sells. I wish I still had mine from childhood, however, I don't think my son would be into Miss Piggy or Strawberry shortcake...lol....

Very nice.

BTW - whatever happened to character lunch boxes that came with a thermos??? I was in a store that had all the school stuffs out and they wanted $9 for a zippered tote for a "lunch box", it didn't come with a drink thing at all!!! I guess I'm going on the internet to look for lunch totes that are large enough to fit the stainless steal thermos soup carrier and thermos and fruit carrier.

blueeyedmanda Community Regular
I know the gold old lunch boxes, now they are vintage and probably pretty pricey on ebay. Try thrift shops or garage sells. I wish I still had mine from childhood, however, I don't think my son would be into Miss Piggy or Strawberry shortcake...lol....

I used to have a sky blue Wizard of Oz lunch box. Boy did I love that. I did pick up a Wuzzles lunch box at a flea market one day for a quarter. The good old days when cartoons were decent, not like the crap they have out there today.

Moustique77 Newbie
Very nice.

BTW - whatever happened to character lunch boxes that came with a thermos??? I was in a store that had all the school stuffs out and they wanted $9 for a zippered tote for a "lunch box", it didn't come with a drink thing at all!!! I guess I'm going on the internet to look for lunch totes that are large enough to fit the stainless steal thermos soup carrier and thermos and fruit carrier.

I was just diagnosed a few months ago and needed a lunchbox for work. I found a Silly Yak Pack at www.sansgluten.com Its a good size lunch cooler - no thermos, but it certainly fits my containers and I put my cell phone and wallet in the pocket. Its really great and I get to tell people about my celiac disease when it gets noticed.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      30

      My journey is it gluten or fiber?

    2. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    3. - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      Disaccharide deficient, confusing biopsy results, no blood test

    4. - Samanthaeileen1 replied to Samanthaeileen1's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      Thoughts? Non-endoscopic Celiac diagnosis in two year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,819
    • Most Online (within 30 mins)
      7,748

    Charlette Jillie-Martinez
    Newest Member
    Charlette Jillie-Martinez
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      Is there a digestive enzyme that helps build a healthier gut? I see people taking them but not sure what really works
    • trents
      So the tTG-IGA at 28 is positive for celiac disease. There are some other medical conditions that can cause elevated tTG-IGA but this is unlikely. There are some people for whom the dairy protein casein can cause this but by far the most likely cause is celiac disease. Especially when your small bowel lining is "scalloped". Your Serum IGA 01 (aka, "total IGA") at 245 mg/dl is within normal range, indicating you are not IGA deficient. But I also think it would be wise to take your doctor's advice about the sucraid diet and avoiding dairy . . . at least until you experience healing and your gut has had a chance to heal, which can take around two years. After that, you can experiment with adding dairy back in and monitor symptoms. By the way, if you want the protein afforded by dairy but need to avoid casein, you can do so with whey protein powder. Whey is the other major protein in dairy.
    • jenniber
      hi, i want to say thank you to you and @trents   . after 2 phone calls to my GI, her office called me back to tell me that a blood test was “unnecessary” and that we should “follow the gold standard” and since my biopsy did not indicate celiac, to follow the no dairy and sucraid diet. i luckily have expendable income and made an appt for the labcorp blood test that day. i just got my results back and it indicates celiac disease i think 😭   im honestly happy bc now i KNOW and i can go gluten free. and i am SO MAD at this doctor for dismissing me for a simple blood test that wouldn’t have cost her anything !!!!!!!!!!! im sorry, im so emotional right now, i have been sick my whole life and never knew why, i feel so much better already   my results from labcorp:   Celiac Ab tTG TIgA w/Rflx Test Current Result and Flag Previous Result and Date Units Reference Interval t-Transglutaminase (tTG) IgA 01 28 High U/mL 0-3 Negative 0 - 3 Weak Positive 4 - 10 Positive >10 Tissue Transglutaminase (tTG) has been identified as the endomysial antigen. Studies have demonstrated that endomysial IgA antibodies have over 99% specificity for gluten sensitive enteropathy. Immunoglobulin A, Qn, Serum 01 245 mg/dL 87-352
    • JoJo0611
      Thank you this really helped. 
    • Samanthaeileen1
      Okay that is really good to know. So with that being positive and the other being high it makes sense she diagnosed her even without the endoscopy. So glad we caught it early. She had so many symptoms though that to me it was clear something was wrong.   yeah I think we had better test us and the other kids as well. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.