Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I'm So Glad I Got Scoped Again

melrobsings

Recommended Posts

melrobsings Contributor
melrobsings
Posted
  • Author
Stop Intestinal Bleeding Diet

Eliminate:

Alcohol, caffeine, decaffeinated coffee, carbonated drinks.

Cheese, cream sauces, milk products.

Sour, vinegary, acidic foods and condiments.

Tomatoes, tomato-based foods.

Citrus fruits or juices, pineapple, grapes, cherries, raspberries.

Cabbage family vegetables, beans, lentils, raw vegetables, coconut, roughage/high fiber foods, leafy green vegetables, hot/spicy foods, deep-fried foods, red meat, nuts and seeds.

Margarine or butter substitutes, artificial sweetners, carrageenan.

Yeast, sugar if necessary.

Garlic, ginger, cumin, chilies, pepper, paprika, tumeric.

Processed foods; preservatives, MSG, nitrates, etc.

OMG THAT'S MY ENTIRE DIET!!!!!!!! ARUGH!!!!! I'm just going to keep my food journal and take it to Dr. Green...any one know if he takes Cigna?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darkangel Rookie
darkangel
Posted
OMG THAT'S MY ENTIRE DIET!!!!!!!! ARUGH!!!!! I'm just going to keep my food journal and take it to Dr. Green...any one know if he takes Cigna?

You don't have to eliminate these items permanently. The idea is to eliminate them and use a very careful diet until you stop bleeding. Then she has other levels that are less restrictive for lesser symptoms like bloating and gas.

melrobsings Contributor
melrobsings
Posted
  • Author

I got an appt with Dr. Lewis, she worked with Dr. Green...THE DR. GREEN!!! It's not till the end of Sept but still!!! :) HOPEFULLY I can get answers!!!

ravenwoodglass Mentor
ravenwoodglass
Posted
I got an appt with Dr. Lewis, she worked with Dr. Green...THE DR. GREEN!!! It's not till the end of Sept but still!!! :) HOPEFULLY I can get answers!!!

That is such good news. If you can get there on a moments notice ask if you can be on their cancellation list, sometimes you can get in quicker. I have wondered how you were doing, I hope they can help you get some answers.

Looking for answers Contributor
Looking for answers
Posted

I have an appointment to see a specialist next week to help me out with my diet. I felt terrific for a long time but recently started get C again. Anyways, maybe you should consider a rotation diet (without gluten, of course) and see if you feel better. Check out what I've read on his site. Open Original Shared Link

Mind you I haven't seen him yet and do know if he'll recommend it to me, but it makes sense. I also read about the rotation diet in the book Dangerous Grains.

I hope you feel better soon!

sickchick Community Regular
sickchick
Posted

Good luck with your Dr appt and your healing journey Mel...

sickchick

Judyin Philly Enthusiast
Judyin Philly
Posted

GOOD LUCK HONEY

I'M FOLLOWING YOU BUT NOT POSTING.

THINK YOU AND I WERE DOING THE SCOPES AT THE SAME TIME.

JUDY

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


evie Rookie
evie
Posted
I can eat rice but I don't eat it very often. i'm not a health freak by choice really lol just cause it's easy (and might i briefly step on my soap box: you damn americans who eat fast food cause it's "easy and you don't have time" GROW UP and stop complaining your fat! it takes the same time to make a salad that it does to get in your car and drive to mcdonalds! it's all about taking responsibility...thank you for listening).

I have to confess I'm a MAJOR candy girl! (might I back that up with I'm a dancer and am very active, I eat them cause I can! Clearly I'm one of those "if the pants fit great, if they get tight, cut out something!" I'm 5 foot 2 and 110 pounds) I have cut down cause I just haven't felt like eating it since I'm bloating LOTS....but I have a huge mikasa bowl on my coffee table and the rule is "it always has to be full". All my friends are GREAT and funny cause they say "Mel can only eat candy, so instead of going out to dinner we go to her coffee table and can eat together!" and they bring candy every time they come over! Right now it's full of tootsie rolls, normally it's full of snickers and full size hershey bars.

I love coffee cause of the taste.

Do you mind posting a snickers like recipe?! i LOVE to bake! The whole foods bread is the only one that doesn't feel like brick to me! I CAN'T GET ENOUGH! not to mention they are great in the toaster oven! I'm cutting down on the coke cause I don't want to gain weight and it is easy to replace that with tea.

I'm with you on the grains, I don't think we are supposed to have them...

Guys I'm SO EXCITED to call Dr. Green!!! I'm hoping I can get in fast (and he takes my insurance...minor detail! lol) and praying that I don't have to cut out dairy. I FEAR that is the issue...well part of the issue...I'm starting a food/poo journal today and hopefully it will tell me something.

Again I can't thank you all enough for everything!!!

evie Rookie
evie
Posted
I can eat rice but I don't eat it very often. i'm not a health freak by choice really lol just cause it's easy (and might i briefly step on my soap box: you damn americans who eat fast food cause it's "easy and you don't have time" GROW UP and stop complaining your fat! it takes the same time to make a salad that it does to get in your car and drive to mcdonalds! it's all about taking responsibility...thank you for listening).

I have to confess I'm a MAJOR candy girl! (might I back that up with I'm a dancer and am very active, I eat them cause I can! Clearly I'm one of those "if the pants fit great, if they get tight, cut out something!" I'm 5 foot 2 and 110 pounds) I have cut down cause I just haven't felt like eating it since I'm bloating LOTS....but I have a huge mikasa bowl on my coffee table and the rule is "it always has to be full". All my friends are GREAT and funny cause they say "Mel can only eat candy, so instead of going out to dinner we go to her coffee table and can eat together!" and they bring candy every time they come over! Right now it's full of tootsie rolls, normally it's full of snickers and full size hershey bars.

I love coffee cause of the taste.

Do you mind posting a snickers like recipe?! i LOVE to bake! The whole foods bread is the only one that doesn't feel like brick to me! I CAN'T GET ENOUGH! not to mention they are great in the toaster oven! I'm cutting down on the coke cause I don't want to gain weight and it is easy to replace that with tea.

I'm with you on the grains, I don't think we are supposed to have them...

Guys I'm SO EXCITED to call Dr. Green!!! I'm hoping I can get in fast (and he takes my insurance...minor detail! lol) and praying that I don't have to cut out dairy. I FEAR that is the issue...well part of the issue...I'm starting a food/poo journal today and hopefully it will tell me something.

Again I can't thank you all enough for everything!!!

I am wondering if you might have ulcerative colitis causing the bleeding...several months ago I had a colon infection that caused me to have the colitis..at that time the bleeding was severe but now only have it ocasionally..but have not been able to pinpoint the cause. I am celiac for one and one half years and have that pretty well under control but just do not

know what causes the occasional light bleeding. Hope you find good answers soon..evie

I have read so much about this Dr. Green and what a good diagnostician he is..so good luck to you!!

Steveofmt Newbie
Steveofmt
Posted

If you are in the NYC area, you should get an appointment with Dr. Peter Green at Columbia Medical Center. I'm told he is one of the country's foremost experts on Celiac disease.

So as most of yall know I just had another scope because (mind you this has been going on and off since CHRISTMAS and I have been to 2 doctors and looking for my 3rd doctor) I have had bleeding and I am pooing poos 1/2 my weight about 5 times a day. To me, that means SOMETHING IS WRONG. Well this last a-hole scoped me a week ago scoped me because he thought it was a hemeriod and cotterized it. Fine. dandy.

Then after I woke up he brought me into his office and told me in short that I was a hypochondriac and there is no way i have any kind of gluten allergy.

This pissed me off to no end....but here is the kicker.

I'M STILL BLEEDING!!!! WTF?!??!? anyone got ideas? I'm terrified it's Chrones.

So I'm once again looking for a NEW doctor that LISTENS, is smart, and educated in celiac disease...oh and one that my insurance takes. People PLEASE list any and all doctors that you know of in NYC or Astoria area that take insurance. I know some of yall have told me about them but they are to far from me and don't take my insurance. Thanks so so so much.

babygirl1234 Rookie
babygirl1234
Posted

i need another scoop done dont ask me why she did say she wants to get the plopy gone and to make sure it didnt grow since the last one, but other then that i dont know why shes going in for a 2nd time, its the upper scoop this time

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,864
    • Most Online (within 30 mins)
      7,748
    Jojo3
    Newest Member
    Jojo3
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.